Hi Another direction to consider. Before I was diagnosed with UC my first sign that something was off was the color of stools that you are describing. I was taking a lot of ibuprofen for headaches at...
Thank you. Yes I read it and we’re hoping for the same....
mattam Yes they were surprised also and said the same thing. The highest his psa has been is 30. Don’t know if it’s the particular spot it’s in? Not sure. In May when the pain started it happened...
My husband diagnosed 2017 Gleason 9. Did radiation and lupron. May of this year Mets in four spots on spine. Was put on lupron again but not keeping his psa down. Psa is 14. Started xandi 3 days ago....
Hi For those who have had success with Xandi I was wondering how long after starting it did it help with the pain? Thanks...
Thank you for posting this!!! Good research, good info....
Yes I really wish I could take it because I’ve heard it’s a good anti inflammatory. The only reason I made the connection is my psoriasis flared so badly every time I tried it. I have friends who...
Please no name calling........
Hope this resolves soon. I’m so sorry you are going through rough times. When I had a blockage once my daughter brought me mint tea because she said it stimulates the bowel (didn’t know that) and oh...
I might add something about hemp oil. I have friends who take this for pain and migraine headaches with very good success. I tried it and it made my psoriasis worse. Thought it was a fluke so waited...
Hi. My husband did the radiation and he did really well with minimal side effects. That being said I have experience with long term diarrhea having ulcerative colitis for over 30 years. I second a...
Oh I forgot I also have never done well with sulfites even long before I had psoriasis and I’m allergic to sulfa drugs....
Hi. You might want to search psoriasis night shade and see what you find. I have found that plants from the nightshade family makes my psoriasis much worse. This include tomatoes, potatoes, bell...
I know there’s a lot of hard decisions. It would be easier if everyone knew beforehand what the outcome to each would be 😊. Husband was dx in 2017 G9. He had radiation and now is doing lupron every...
Check out Rezum Water Vapor. My husband had TURP but a friend is going to have this newer procedure. Done at an office visit. Takes about 15 min and fewer side effects. Sounds promising....
I think it’s important to note that there are two different kinds of hernias being discussed on this thread. Mine is a para stomal hernia from my ileostomy. The surgeon that did mine, which failed,...
I never had any inclination to name it, anymore so than I would name anything else on my body. Don’t have names for my eyes or knees or elbows lol. Besides some of the previous names are such pretty...
I am in the same position. Developed a hernia soon after ileostomy years ago. Kept getting blockages landing me in the hospital. Finally found it it and had repair done w mesh in 2016 which failed...
“Be yourself, everyone else is already taken”. 🌞🌞🌞...
I am sorry this is happening to you. Hopefully your Dr will find the cause. The only thing I can think of that might help is mixing some liquid chlorophyll in with your water. It is an internal...
Hi. I’m looking at the county website to see if I can find the info on your parents marriage license. What was the date they got married? That would help lots. 🙂...
Try Navitas. It’s from the Netherlands and has nothing else in it. Most online vitamin retailers sell it. And it’s delish.....🤗 Also considered a super food, very high in many vitamins....
Hi I get the individual pks. They are made by Medical Action Indusries. I really like the brand M9 better but Edgepark doesn’t carry that brand. I may order the M9 from McKesson. They used to carry...
Hi, I use benzoin tincture. I get it from Edgepark a medical supplier and my insurance covers it. However I have also ordered it from amazon. They have many brands. Just make sure you use the kind...
Hi I wear something similar to spanx because of a hernia. I’m not sure but if what you’re asking is can you feel how full the bag is thru this layer the answer is yes. I can with no problem. Also...
So glad you’re doing ok....
Hi.😊 Haven’t heard from you for a while. Are you okay? I miss reading your posts. Whether you are up or down, I like hearing from you. You have quite a gift of words. Would love to see you publish a...
Also wanted to say I hope your recovery is going well!!...
I use the thick eakin seal. I have a hernia now so the outer edge gets worn down by the time I change it (six days). You could try each one and see what works best. The thin might be more comfy with...
I used to get them quite often. Started using one drop of tea tree oil on my toothbrush along with my toothpaste. Rarely get them now. It’s a natural disinfectant. Worth a go. Maybe rinse with a drop...
Best thing I have ever found for food poisoning is apple cider vinegar. Has to be the natural kind with the mother in it. You can see the sediment in the bottom of the bottle. Don’t get the clear...
I live in one of the hotspots (Seattle area) and they have now had the first death in the US here. A student just tested positive that has no ties to any out of country travel so the concern is...
The pain you describe can also be linked to gallbladder problems. Also the light colored stool is another indicator. Might be good to get your gallbladder checked out. It’s often overlooked. Google...
Hi, Look into angstrom colloidal minerals. There is the Angstrom brand and others, but they are all considered angstrom because the term refers to the size besides being the name of that one company....
To all the tired who need more energy. Not really inspirational but found this on Pinterest and it made me smile. It doesn’t bother me that Disney has given me unrealistic ideas about men. I’m more...
I hope your surgery went well. Wishing you a complication free recovery!!...
Wow can’t believe you got out that soon. Awesome! Haven’t done the consult and won’t for a while. Have some other things going on so will have to wait. Take things easy and don’t push yourself too...
Alaskan, Thought of you yesterday. Hope your surgery went well. Probably on lots of pain meds right now and pretty sore. But let us know how your doing when you feel better.... hugs!...
This is very interesting. I’ve had UC since 1986 and had colon removed in 2002 but they left the recal stump. It never gave me any trouble but biopsies in 2016 showed moderate to severe active...
I am planning a consult with the Dr in Portland in my original post. Dr Wright is a capable surgeon with quite a lot of experience and comes highly recommended. He didn’t help me but I have a lot of...
Just wondering what Dr you were referred to? Have you had your surgery yet? And if yes, I hope things are going well....
Just thinking if it was the same dr both times might want to find a different surgeon. Maybe someone else has more training/different method that could be more successful....
Hi, You might also want to check into having your gall bladder looked at. Often forgotten it can cause similar pain as Inflamatory bowel disease....
Yes, his name is Andrew Wright. He’s the hernia guy there but I don’t think the majority of his surgeries are parastomal hernias. I did ask beforehand and he does them and has experience just not...
I only occasionally notice now but the first several years that I had UC I would get headaches and feel awful when the rain would roll in. When I had the skin tests done to detect allergies she asked...
You might want to have your gallbladder checked also. In 2016 I had really bad nausea and it felt very similar to a blockage so that’s what I thought I was feeling. Ended up in ER twice and my...
I’m wondering if any know of a good hernia Dr on the west coast? Really anywhere west of the Rockies would be ok. I live in Washington state and already had my hernia repaired once and it came back...
I might also add it let you see who made the last post so it was easy to see if someone had added a comment since you had last read that particular thread. All that is gone, now it’s just not user...
Hi, I was also one who does not like the new design changes. I do not come here and read post very often as I did in the past - and no it’s not because I’m doing great - I am not. I think the thing...
Hi, When I first got UC many years ago I also had severe pain in my chest and thought I was having a heart attack. The Dr just laughed and said unlikely since I was 29 :) The pain from the intestines...