Stephanie I follow you're posts and want to thank you for sharing this journey with us. Your family is lifted up with every post I read. Have a blessed day & fun with Maggie! Barbara...
Mumbo- He takes 40mg almost nightly but it doesn't seem to be more of a response whether he takes 40 or 100mg dose or anywhere in between. Results are better when he takes it on an empty stomach. Uro...
Halbert and PeterDisAbelard: Thank you very much for the info you gave. It seems that it is a trial and error process to go thru. Viagra gives good results but only for literally about 5 minutes....
Fuelguy 51 - our appointment was to do an in office injection but he backed out when he saw the needle (he really hates them). So we'll try a different med and keep injections in out back pocket for...
Mumbo-the NP told us Cialis wouldn't work as well as Viagra did for him. He told us of the expense of Levitra and of course our ins won't help with that one. We'll give it a whirl and see if it's...
Well, the appointment about injections was a no go. Hubby just couldn't deal with the idea of sticking a needle "there". We will try Levitra & see what kind of results we get with that. Sildenafil...
Hello All! We have an appointment tomorrow to start injections to help with ED. We would like to ask if you all have any suggestions/recommendations of what works for you. What questions should we...
STW Thank you for your encouraging post. It's as valuable a contribution to this forum as the latest research posted! Congrats!...
Thanks Mumbo. I'll definitely check this out....
F8 All the doctors we consulted with including 2 RO's rec surgery for my husband's case. All you have to do is read other forum brother's accounts to see that SE from ART & SRT can add to SE...
And the fact that he doesn't think like that is what worries me. He's not in a good place right now....
Mumbo & Stephen Always lots of options to consider & learn about to be prepared for decisions as they may come. I appreciate your personal experiences. My husband is so bummed about ED at his age...
Michael T-thankfully no positive lymph nodes Djin-I think I've updated the signature now 🤞 if it doesn't show, his post op PSA 0.06 at 26 days post op (very early test for some reason) He was...
New research indicate that men with positive pelvic lymph nodes or a prostatectomy Gleason score of 8 to 10 with disease extending beyond the prostate may benefit most from adjuvant radiation therapy...
Halbert-thanks for the reply. I don't know how to help him get thru the depression & anger he is experiencing. I pray with time he will begin to be hopeful again....
This is great news! Congrats and enjoy life!...
Hi all. My husband is now 8 wks post RALP. Incontinence is a non issue, thankfully. But the struggle with ED seems to be getting worse instead of better. We are talking about "usable" elections for...
Prayers for good news on your scans next week. You have been thru a lot. Hope all the doctors coming together can get you an answer on that fatigue....
Psych yourselves out for potency: instead of Recovery Phase, call it the Discovery Phase :) Djin[/quote] Semantics are very important!...
Yes, we have read/been told that as well. I think the frustration comes from not knowing how much recovery there will be. Have to do the rehab & find out!...
Overall healing is going well. He's been back to work now, just being careful as he owns an excavation business. Belly gets sore and he is fatigued.. His continence is probably 99%. Just a little...
We did not ask why Uro tests so soon after surgery. We have been wondering about that as well. It's definitely added stress! Guess we'll see what Uro says when he contacts us. We are beyond...
Hubby had 1st PSA following RALP 2 days shy of 4 weeks post op. From what I've read on the forum, this is pretty early. It has been one week today since blood was drawn and he finally got the results...
15 years! Wow! Congrats and best wishes to you!...
Thanks for your replies. I know in his heart he doesn't really wish he'd kept the cancer. He's got a lot of processing feelings & physical recovery to go. Thankfully it's not just my support that...
An update on hubby, Catheter is out. Was not a pleasant experience for him at all. But no pain meds since its removal! Continence is great! No pads after day 3. He was never really concerned about...
Catheter is out. Not an experience he enjoyed! But moving better now. I have added final path details in my signature. We will see uro in 3 weeks for PSA and discuss radiation vs observation. I asked...
That got a nervous laugh out of him!...
Husband's catheter comes out tomorrow! He's never liked dancing much and I know he is ready to get rid of this dance partner! We are hoping to receive final pathology report tomorrow. His urologist...
I say good riddance! Haha!...
Yes, home tomorrow. Thankfully we don't have stairs to try to navigate! I am anxious for the final pathology report and I will definitely be posting that....
Today was surgery day. All things considered, there were no surprises from the surgery. Dr says it appeared confined to the prostate, spared nerves on both sides. Lymph nodes looked/felt normal....
Thanks for your info GTO Guy! Always good to hear from someone who's been there. I stumbled onto this forum thru a Google search. And you're right, it has provided a wealth of knowledge & support...
Thanks for asking Halbert. My husband has decided to use a local surgeon that we consulted with this past week as well. We feel very confident with his experience and at peace about the decision. My...
I don't know how you feel about out of the box treatments. WWW.XXXXX This link is to a blog by Xxx. His story is amazing. He was given 3 months to live after SCLC diagnosis. He makes several...
Thank you everyone for taking the time to reply. We are trying to soak up all the knowledge we can! My husband, is leaning toward St. Louis, for surgery. Dr. Bahyani with Batnes Jewish Hospital. He...
Thank you all! He is trying to lose some weight before surgery. Our insurance says we can go anywhere we want as long as they are in network. I quickly threw out MD Anderson-Houston, Johns...
We definitely plan on doing that!...
His surgeon told him the same thing. Cancer is confined to right side. Left side all benign. So Dr felt pretty certain he could spare left side bundle, but would have to see about the right side...
Pratoman, They both stated his age (49), his Gleason 8 putting him in the high risk category. The risk of recurrence would definitely on the table, so would like to keep RT on the table in that...
Thank you! We are considering JH or MD Anderson. Need to check with our ins. Forgot to mention his bone scan was clear!...
Hello all. My husband & I met with proton therapy center and radiation oncologist as well as treatment planning with our current urologist this week. All 3 have recommended RALP for my husband's...
BWeaver, where are you located? Is there a particular Proton Center you are in contact with? Have you met with different radiation oncologists regarding different forms of brachytherapy and external...
What are your thoughts/experiences with proton therapy?...
Again, thanks for all the knowledge and your experiences. I have 2 questions: 1. Is it true that if you do radiation and then have a recurrence, you can't have the RALP? Therefore, it may be better...
Thank you to everyone who has responded & welcomed us so far. We definitely have a lot to learn and decide....
We are in Oklahoma...
My 49 y/o husband found out yesterday that his biopsy was positive for cancer. PSA 9.1, Gleason score 4+4=8 on all 7 positive cores, grade group 4, 28 total cores taken during MRI fusion biopsy. He...