Thank you CYCLONE its so lovely to hear from you and I hope you are keeping well - we've had a long bank holiday weekend here in England and have had various offspring visiting which has been lovely,...
Hi All Just to give an update - my husband has just finished his first month on Erleada with only mild fatigue to contend with. His PSA is now <0.1 but his testosterone is twice the upper limit of...
Thank you so very very much ! CC...
Cyclone !!!! Its so nice to hear from you and especially nice to hear that you like tea too !!! I will confess ....my tea drinking habits are not very educated - I like very strong tea (builders brew...
Thank you Jack !...
Hi All ! I've been back online here this past week catching up on posts and seeing how you are all doing! It seems like an age since I was last active on here - probably last Summer, as life suddenly...
Hi !!!! So good to hear from you - its strange, it feels like years and years since I last posted and was in touch with you all ... when I looked at the post it was of course only last year !! I...
Thank you Sr Sailor for being so kind and encouraging and also for posting the thread link - I'm rather slow at forums and hunting stuff up - bit like a needle in a haystack for me !!!!...
Thank you Djin for explaining this so clearly ! CC...
I've always felt that the surgeon should have taken all the pelvic nodes - given the high PSA but he thought it was contained (although how it could be given the PSA was quite high) - my husband got...
Hi ! You're right his post-RP was pT3a NO and no nodes were removed or tested ...there was a complicated reason the Consultant gave ...think it was to do with the possibility of lympodema in the...
Thank you - its what I'm thinking too. The Consultant we have now is never very forthcoming about anything, he's very careful not to say anything whether positive or negative except when pushed by...
Hi All I've not been on the forum much for some months now what with covid ...not to mention I've had elderly relations who have been poorly so apologies for just turning up and asking advice- again!...
Hi All Just back from the Consultant - he was very laid back and said that 90% of the prostate was cancer so it was the right decision for John to have had surgery and that there is still a very...
Thanks Peter - I find it easier to learn from non-medical people - you all explains your views in easy to understand language ! I had to laugh too with your comment about watching TV shows with him...
Thanks Trail Guy - i’d not come across that disease before but had heard of the possibility of strictures - I appreciate the heads up re a pump and that its def worth getting to keep the member...
Thanks Halbert - I should perhaps have tried a UK based online forum but was drawn to this one as there is a lot more information in here - probably because under the NHS they will give you the gist...
Thanks Djin and Mumbo! I’ve had no experience of going privately before so it’s a new concept to me - studying, asking questions, asking for a second opinion re pathology etc etc - in the UK we have...
Thank you all so much for the replies - much appreciated ! I was surprised that the Consultant was reluctant to remove his lymph nodes - I thought given his high PSA and the fact the PET Scan showed...
Hi About 5 weeks ago my husband was diagnosed with prostate cancer, 55 yrs - PSA 84 in Oct 2019 then PSA 94 beginning of Feb and it has been a whirlwind time during which I’ve spent so much time...