So my boyfriend has surgery in 2012. Been a journey. Our mentality at this point is doing nothing until it reaches bones. He does not want ADT if he can avoid it. It's been a slow creep. Hopefully it...
Ugh, something else to worry about. Hoping it is minor....
FlJupiter, check out Dr. Brady https://www.adventhealth.com/find-doctor/doctor/jeffrey-brady-md-1932195617...
Happened to my boyfriend too... after 7 years. Sadly, can never be too comfortable. It could be a fluke. Have another test done....
God bless you both. Something to be said to live your final days on your own terms, savoring life....
Hi Mary, yes, not the best birthday gift. The anxiety is unavoidable. Try to put it in the back of your mind, and for now, track PSA. You'll see a trend... if there is one. No reason to go back to 3...
Hi, My boyfriend became detectable about 7 years after surgery. It can happen. It's time to track it. You've got a long runway, so I would not be concerned at the moment. When PSA approaches .2, that...
You take covid shot and boosters? I know a number of people who acquired AFIB post shots. Not a conspiracy theorist. Just know many folks in this position. My dad actually passed from it....
My boyfriend became detectable 7 years after surgery. Had salvage radiation 10 years after. Can never truly rest....
Melaine, thank you. I do appreciate your note. So, he did have pelvic radiation when he reached .13 last year. He got down to .04 a year ago after radiation. We then had a couple of <.1 when we...
Hi JNF, we moved from NJ to Florida. Had a great team in NJ.... uro and mo. We found a great uro down here in Florida. uPSAs at 3 month intervals. When we hit .2 (whenever that is) we'll start...
Thx JNF... we moved and when we went to the new lab, for some reason they were not testing ultrasensitive. After 2x, we go it fixed. Like you said... .07 is <.1. Probably been hanging around there...
JNF, there were no scans at .13. Assumed PSA was too low to show anything. PSA tracking is a little odd after SRT because we moved and had a couple of regular PSA's and not uPSA. History is; 12/12...
After my boyfriend's surgery in Dec 2012 (Gleason 3+4) at 64 years old, we had a 7 years of undetectable. Went forward with SRT last summer at .13 without ADT. It was a slow creep. He wants to avoid...
I know it's so scary! I believe it is called small cell prostate cancer. You can google it. It is more aggressive and emits low PSA....
It can be. There is a variant of PCa that doesn't emit much PSA but can be aggressive. I am not very familiar with it, but others will chime in I am sure that have more information about it. I wish...
If you have any incontinence problems, alcohol only exasperates it. Muscles relax. For us, not worth it. My boyfriend and I have the occasional... but that is it. We did like to pound them before PCa....
He is in God's hands. Our heartfelt condolences go out to you and your whole family. He was lucky to have you by his side as were you to have him in your life. God bless you all....
https://xxxxxxxxxf/cancer-is-trying-to-do-what-a-sniper-could-not?utm_campaign=p_cp I hated to do this as it is a good cause. but I had to edit out the link, as it was a violation of Forum Rule #4,...
We pulled the trigger at .13. Clearly you have a BCR. .2 is the max you should wait. We knew where we were headed, so didn't want to risk it. Takes time to get things going and didn't want to risk...
As noted in a previous post. We started SRT at .13 w/o ADT. 4 months later... undetectable....
No scans... doc said would not show anything. Likely in prostate bed... and so far it looks like that was the case for us .2 is the upper limit as others have mentioned. My boyfriend was diagnosed in...
My boyfriend was in a similar situation this past summer. Surgery 12/12. Original gleason was 3+4=7. Psa became detectable after 7 years. Slow creep over 2 years to .13. Pulled the trigger on SRT w/o...
I think you need to move a little faster. If you are going to do SRT, the optimal time to do it is before your PSA hits .2. Seems you are past that and rising quickly. We went through similar with my...
Hi Melaine, So I have some info... I do not have all the gory details of the pathology, but I can tell you that it was 3+4, occupied 25% of the gland and the lymph nodes and margins were clear at...
Hi, I have posted before on this. My boyfriend had RP in Dec 2012.... Pre-RP PSA 4.2...clean margins, 3+4, no adverse pathologies. In May 2019 lost < sign.... slow creep to .13 in June of 2021. 7...
Dr. James Wong in Morristown Medical Center. Very accomplished doctor... https://findadoctor.atlantichealth.org/provider/James+R+Wong/640799...
My boyfriend just finished SRT without hormone therapy. We pulled the trigger at .13. We are 9 years out from surgery. They said don't bother with scans. It won't show anything. His first psa 1 month...
Ed C (Old67), I am sorry to hear that you did not see a drop as you had hoped. It's hard for the surgery folks to understand how the PSA is supposed to respond with radiation. I've done some research...
Hi, For those that may have seen my earlier post. My boyfriend, 9 years after RP, had his PSA go up. It slowly climbed from year 7 to year 9. We pulled the trigger on SRT (without ADT) when he hit...
For those who asked... based on analysis by his cardiologist, he felt it was a likely causal relationship between the shot and his congestive heart failure. It's not a well published side effect, but...
My father got the vaccine and 5 days after the 2nd dose he was diagnosed with congestive heart failure. He was hospitalized and on oxygen for almost 2 months. He is fine now... but nah, no booster....
Hi, I will give you our perspective... 1. My boyfriend had gleason 7.. 3+4 2. We opted for surgery as his primary treatment for a couple of reasons... a) we wanted it out b) we wanted a pathology to...
Don't want to be the debbie downer, but my boyfriends became detectable after 7 years. We are now at SRT at 9 years after a slow uptick. His RP was clean and contained.... you never know....
62gal... yes, my boyfriend would not change a thing. We had a 9 year respite of no cancer. Yes, it is a bummer to have a biochemical recurrence at this point, but the PSA is so very low. At least we...
Djin, ADT was nixed by my boyfriend, but just an option from the RO. It's a 10% additive benefit right now. I've done some research on it as well. The RO did not indicate that it was mandatory at...
Hi all. We met with a fantastic RO here in NJ. Dr. James Wong. One of the top RO's in the country and a pioneer in radiation therapy. We all agreed that we are moving forward with SRT w/o ADT. We'll...
Thx for the replies. We go to RO tomorrow....
Hi, back in 2012 my boyfriend had is prostate removed. Pre-op PSA was 4.1 and Gleason 3+4. Post RP, path was clean... clear margins, both seminal vesicles and lymph nodes negative. All was well. Fast...
My boyfriend had surgery with Samadi in Dec of 2012. No issues, cured. We've gone back to the city ever since for PSA and exams. He remembers us, as does his staff. We've never had a problem and he...
My cousin worked on the pile. He is a NJ fireman. He got 9-11 testicular cancer in his late 50's. Thankfully he is ok. My boyfriend got his prostate cancer from agent orange. He was a combat vet in...
In my years on this site and reading, I "believe" this small cell is deceiving and generally doesn't have a corresponding high PSA. An aggressive cancer will produce a lower than expected PSA for the...
Many years ago my aunt had contracted encephalitis and wound up having brain surgery. It was VERY experimental at the time. Saved her life, but she had no short term memory. Long story short, she was...
I started dating my boyfriend over 6 years ago. He was diagnosed within the first 6 months. 6 years later he is doing well and so are we. He was cured with surgery. It was a long haul to get...
My boyfriend had nagging leaking problems as well. Same issue as yours. Taking Cymbalta helped a lot, but it was not a cure all. He had the sling put in by Dr. Nitti in NYC. Issue-less. We know he...
Yes there is a problem. My boyfriend was diagnosed and treated back in 2012 by Dr. Samadi. Many on this site don't like him for various reasons, but many have not been treated by him, but I have seen...
I don't comment much on this site anymore. My boyfriend had surgery almost 5 years ago with Samadi. We still go back for followup to his office directly. He and the office staff are very professional...
My boyfriend got excellent results with the sling. Life changing for him. It's not a big deal to get implanted. You want to make sure you have an experienced doctor. Don't necessarily rule it out. My...
My boyfriend leaked for 4 years. He took Cymbalta for a year. It did help, but did not dry him up. He had the sling procedure as well this past December. He has not worn a since either. AUS was never...
My boyfriend hasn't had a drip either since 12/7. Everything has been great. Highly recommend if you can find a good surgeon. We are in NJ, so went into NYC to have the procedure done by Dr. Nitti....