“The good cancer” - I had people tell me that after my diagnosis. Others said “you’ll be fine” and my surgeon (and now former urologist) told me and my wife that we were “the couple that always sees...
Bill, All good input from others here so far. I’d just like to add that our cases are very similar in that i just turned 50 when my 6.7 PSA showed up in an annual blood test and I had no symptoms...
wow — what a miracle and an inspiration! wishing you many more years of undetectable!...
I misspoke about the Scotch: I actually celebrated 5 years with a snort of Armorik, a fine French whisky. Good stuff....
I’ll see my uro in August — I’m thinking that he will move me to annual PSA testing. At that point I’ll ask him if I can do that through my PCP, as that would be a bit easier for me on a couple of...
Just now received my latest PSA result — <0.014. That makes it 5 years and a few months post-RALP. I saw my RO today and she gave me a big hug and said we’re done — I’ll see just my uro moving...
I had RALP and then SRT about 4 1/2 years ago. I have my PSA test every 6 months with my Uro plus a follow up visit with him, which I understand makes sense. But my RO who performed my SRT still...
wonderful news — may you have many more years ahead of you!...
I realize that the subject of testosterone therapy for those who have or had PCa is controversial and complex. For a number of reasons I am exploring the idea of treating my low T (around 300). What...
Congrats on 10 years and wishing you many, many more!...
Wishing you and Jim peaceful and loving days ahead. I trust that Hospice will provide you both with the comfort and quiet that you will need. My mother chose Hospice care after battling colon cancer...
yes, that’s the link...
Another example of why it pays to get a second opinion: https://apple.news/Am_pVDIabR8G_hFQOaQJcNA Moderator: please make link clickable. Thanks....
Interesting post and certainly a subject worth pondering. I would rank my PCa diagnosis — especially the BCR — as my worst death-scare, even though my doctors assured me I’d live a long time (I was...
I registered and look forward to attending. I trust it’s OK with you that I shared this with my cancer therapist at my local hospital so that she, in turn, can pass along to others who might be...
Thanks for sharing. I’m about a 25-minute drive away — I’ll consider attending — looks like an informative event with great speakers/panelists....
Welcome, and hopefully you won’t need to revisit this site after your biopsy. I don’t have answers to your questions, but I’m sure someone else will chime-in soon. Question for you: Curious as to why...
Congrats on 10 years — especially with a Gleason 9. I imagine having had an excellent surgeon plays a big part with with your success. My biopsy showed a Gleason 9 and the MRI just days before...
Thanks for sharing this story. It brought back sad memories for me of the 10-month period my mom battled stage 4 colon cancer at the age of 72. She and I were especially close, and I struggled...
I saw an Endocrinologist last week after my PCP referred me due to blood work that showed some hypothyroidism. I told her about my PCa and she then inquired about my family history, which includes a...
In my case, my doctor prescribes me methylphenidate (brand name Ritalin LA). I take long-acting capsules in the morning. For me, it makes all the difference in terms of attention and energy. I’ve...
So glad to hear you found a solution to your depression / cognitive issues. I too battle depression and I take a variety of medications including ADHD meds. It does make a world of difference. There...
Paxton, Interesting stuff, thanks. I always get tested between 8:00 - 9:00 am. Paul...
I was pleased to see on my latest blood draw that my T jumped from 253 to 386. My previous draw was 12 months ago (same lab). I believe that’s the highest it’s ever been since I began testing at...
I believe I move to annual testing after 5 years....
I go to Summit Medical in Florham Park for my blood draw. I believe they use Quest lab....
Received my 6-month PSA result this morning and am pleased to report I’m still at <01 after 4 years following RALP and SRT. I truly was in the darkest place I had ever been 4 years ago, so I count...
Colon cancer killed my mother at age 72 about ten years ago. She lasted about 10 months from diagnosis. Surgery, chemo, radiation. And she was getting colonoscopies regularly. I’ve had 4...
jason, my surgeon was also weak in the area of setting expectations for side effects and healing. so i just rolled with it. unfortunately, i pushed myself too hard too early and ended up with a nasty...
I remember the first time I heard Jeff Beck: In college, after a few beers one night, my buddy threw on one of his albums. When i listened to “Blue Wind” I was completely blown-away and loved...
I was a G9 (later downgraded to a G8) and had RALP with a subsequent .2 then .38 PSA before salvage radiation. My two cents on your husband’s situation: take time (at least a few months) to heal from...
larry, glad to hear surgery went well for you. like others have said, walk as much as you can manage, but don’t be like me and push yourself too hard in the coming weeks / months — i ended up with a...
chris, thanks for sharing the wonderful news. it is inspiring to me and i’m sure to others to know that there is hope after diagnosis and treatment…...
pratoman, like you, i had SRT and ADT for six months following RALP. It’s been about 3 1/2 years since SRT and I get my PSA every 6 months until my 5th year of undetectable then annually after that,...
ha! hard-headed i was indeed: i moved 9 yards of woodchips with a pitch fork and a wheelbarrow three weeks after RALP....
wife #1, your husband is blessed to have such a supportive spouse. my wife was great in that regard too. yes, continue to remind your husband to “behave” and not over-do it during recovery. i didn’t...
I wish you luck in convincing your husband to get a second opinion. My wife tried unsuccessfully to get me to get a second opinion after I was originally diagnosed. I regret that I didn’t listen to...
I was diagnosed at age 50 with G9 and had surgery then SRT with Lupron (details below). I was terribly worried about my life expectancy during those days. I made myself sick with worry, in fact. With...
If I do have one regret about my cancer, it’s that I didn’t get a second opinion on my initial treatment. I took the word of my urologist that “99%” of doctors would agree that surgery was the way to...
Steve, I have nothing to add except to say I wish you the best on your continued treatment journey. I couldn’t agree more that this disease can certainly be a roller coaster ride…....
I recall being borderline anemic after my SRT. My RO was not too concerned....
I am far from being an expert on this subject but I did experience surgery and salvage radiation. Given the SE of surgery in my case (hernia, some incontinence, and ED) I would give very careful...
Awareness is key. Immediately after I was diagnosed with PCa I reached out to male family and friends to implore them to get PSA tests if they already hadn’t done so. Shortly thereafter my uncle was...
I agree that LVI is a risk factor. I had LVI too but my surgeon wrote it off as a “soft finding” when I questioned it. I fired that doctor, found a new urologist, and soon thereafter had radiation...
I was never undetectable after surgery. I immediately consulted with numerous medical oncologists, urologists, and radiation oncologists at the very best centers I could find. The MO at MSK and two...
I agree with everything above — all good advice. I was 50 when I was diagnosed with 4+5, organ-confined. Later downgraded by MSK to 4+4 and required ADT and SRT only months after surgery. I suffer...
“Motown” is what some of us call my hometown of Morristown, NJ....
I gave up on being an optimist when my surgeon/urologist incorrectly declared me “cured” and his “star patient” after he reviewed my RALP pathology report. When I went home, reviewed the report...
Latest PSA results came in this morning and I breathed a huge sigh of relief: another <0.01. Whew. 6 or 7 PSA tests since radiation and I still get anxious at test time, but each passing test seems...
When my RP failed I threw the kitchen sink at it — opted for full pelvic radiation and 6 months of Lupron (I was assuming the cancer was either in the prostate bed or lymph nodes). 3 years and four...