My medical oncologist at West County is Dr Melissa Reimers. Very happy with her. My radiation oncologist is is Dr Cliff Robinson and I really like him too. Side note about Siteman. I applied to Mayo...
Already done Pluvicto. Didn’t work real well for me unfortunately...
Been a helluva last few days for me. Had new scans last Tuesday and they showed stable with possibly one small new spot but said it was very inconclusive. Called my Dr and asked if I could take...
Yes I’m getting a bunch of Benadryl first now too. Starting me off at a 25% rate gradually working me up to 75%. Had my daughter in law cut it way back and told her to keep the clippers charged cuz...
Had my 2nd infusion Thursday. Very limited side effects if any. Pretty happy about that. The one side effect I am having is the one I was hoping to avoid. Hair started falling out about week three....
Hi all. Unfortunately I start chemo next Thursday after LU 177 didn’t work real well for me. I’ve read up on side effects etc but would like to hear from people who have gone thru it. Any tips or...
Thanks for checking in on me. Haven’t been on here much lately. Well put me down as one who LU -177 didn’t really work like I was hoping it would. When I started, my PSA was 6. During treatment it...
Did you get accepted in to the trial then?...
Had infusion #3 this past Friday. Didn’t have the nasesu Saturday morning as I did the last time because my PCP prescribed me some Ondansetron for that. Haven’t had a PSA for a few weeks. Do have...
Don’t get too concerned about PSA bounce yet. Mine went from 6 to 9 after my first dose then back to 8. Haven’t had a PSA lately but scans are a better marker at this point. My scans showed...
Did you enjoy that as much as I did?...
Update: had new scans done Monday. Got the results today. No new lesions which is good. A spot on my spine showed signs of treatment response which is good. Had a spot on my rib that was bothering me...
If you get accepted in to the trial, insurance doesn’t need to be involved as the trial so far has covered everything. I go to Siteman West County. My MO is Melissa Reimers and my RO is now Dr...
I too finally caught COVID. First time I’ve had it. Have been very careful. Not too bad yet. Waiting fir a call back from Dr as I’ll I’ve taken so far is the home test. Concerned as I just had my...
Taking a little longer to recover after 2nd infusion. Loss of appetite and just overall queasiness this time around. When I do eat, think I’d feel better if I stuck my finger down my throat for a...
Yes they do. They check me right after and before I leave. Machine looks like something out of Ghostbusters. They do use precautions but not as much as I thought they would. Guy comes and checks on...
On my way home now from infusion #2. We drive about an hour and a half for treatment. Today my PSA went from 9.62 down to 8.63. I guess had I not had that PSA 2 weeks in I’d probably be pretty...
I don’t think I was supposed to have one 2 weeks out but the order was there from a different Dr. Cyclone-ISU- I always enjoy reading your posts. Your positivity is something that we can all learn...
Go for my 2nd infusion tomorrow. Been going for blood draws every week for last 6 weeks. My PSA after 2nd week went from 6.76 to 9.72. There was an order for a PSA out there from my urologist and not...
That’s really encouraging then. One of the test sights is Washington University which is where I go. Real encouraged by this....
Is this the same as Lu-177 or something different. They’re getting weekly infusions where us LU -177 people get one every 6 weeks....
Ok 5 mins was a bit of a stretch but not much. They emptied the drug in to me and then used a saline solution a couple times. Maybe 10-15 min but not any more. Waited longer for the Dr to show up to...
I don’t see the download pdf tab??...
Had my first treatment yesterday. Actual procedure lasted about 5 mins then had to lay around for about an hour as they continued to monitor my vitals. Pretty tired last night. Went to bed about...
Well I found out Monday that I too got into a trial/clinical study. Half get Zytiga, which was what I was going to get next anyways, or the Lu-177 infusion. Found out Wednesday that I did in fact get...
Yea I just found out this AM that I did in fact get accepted into the trial. I don’t get to choose but if I did, I would pick that yes. Based on your results and what I’ve read it looks like the best...
I’m curious if they give you anything after the last injection. Do you still get Zytiga to keep it from coming back since HT doesn’t work for me...
I find out this week if I get into a trial also. I am castrate resistant and have 4 spots on my spine which sucks. I’ve had radiation twice, first to the prostate bed and second time to lymph nodes....
Yes. His nurses say he never sleeps. I emailed him once about 9:30 at night hoping he’d respond first thing in the AM. He responded about 20 mins later. He spent about an hour and a half with me a...
Oh please no!!!!!! He’s my RO. He’s great. Damnit. I’ve lost my urologist and now my RO in the 2 1/2 years since my original diagnosis. He is incredible. He would always calm me down as my journey...
I’ve been trying to get one but my damn insurance company keeps denying the request. After first denial they told me I had to get a bone scan and CT scan first. Bone scan showed 3 suspicious spots...
Awesome. Best of luck to you....
Dr Randall James Brenneman. I can not say enough good things about him & his staff. He and his staff were awesome. He was very aggressive towards my cancer. He is very accessible. If you email him he...
My Urologist just prescribed Oxybutynin for me. It’s to control an overactive bladder. Some nights I get up 3 times and others once. He said I could take up to 3 a day with the only side effect a dry...
Mine never really left as my first PSA after surgery was .108. Then my baseline PSA before radiation was .574 on 11/5/2020. After 37 sessions of radiation it only went down to .43 on 4/7/2021. At...
I too am currently going thru same thing. Had a PSA done in August and it was 1.167. Three weeks later it went to 3.2 (had prostatectomy in May 2020 and round 1 of radiation late 2020). Started...
I just switched to Siteman myself. My new Urologist is Dr Kim at Barnes Jewish West County. Young guy. Really like a recommend him. My oncologist is dr Brenneman. REALLY like him. He explains things...
I emailed my Dr the other night and asked if they were going to do a PSA before I started radiation to set a baseline and he said no as we just did one in August. They did a testosterone test at same...
Haven’t posted on here in awhile. Next Monday I start round 2 of Radiation. 27 treatments. Here’s my history. Had prostate removed in May 2020. Gleason 4+3 with cancer on the margins. First PSA 3...
I had 37 treatments back in November 2020 to just the prostate bed. Had to have empty bowels and a full bladder. Start a 2nd round of radiation on the 22nd of this month as I had a recurrence which...
Dr Bruce Roth at Siteman. I highly recommend him. Very personable and great chair side manner. Added humor to things....
I live on Lake Springfield just south of Springfield. Memorial is where all of my dr’s are....
Went to Siteman Cancer Center/Wash U for the 2nd opinion I was seeking. I met with a medical oncologist who specializes in Prostate, kidney and bladder cancers. Really liked the guy. He was 67 years...
My 1 yr anniversary is this coming Wednesday. Haven’t decided what to do. I too remember that day like it was yesterday. I’m still not at the non-detectable level yet but hoping to get there soon....
To clarify. Doing radiation first makes it more difficult to remove the prostate later not the catheter. Sorry bout that....
Nolakevin. Sorry you’re here. Like yourself I was a fairly young 59 when I got diagnosed last year in April. It is a shock that’s for sure. I was a Gleason 7 (4+3) at diagnosis but ended up a 3+4...
Well had my teleconference today with my oncologist. He was optimistic as to where I was. He was happy that my PSA is going down. Said that I am only 3 months post radiation and that the radiation...
I’m going to wait & see what the dr says Wednesday. My wife thinks we should look really hard at Mayo. The advantage of Siteman is the proximity of course and I could do treatment there whereas Mayo...
My son lives in St Louis and I was considering Siteman anyways. Has anyone been there and have a suggestion on who to use. I guess I should look for a prostrate dr who specializes in oncology. Looks...
Took 4 lymph nodes from the left side & 10 from the right. All were negative. Perineural invasion identified. Left anterior apex and left lateral margins positive for carcinoma. Margins negative for...