It's a slow-growing disease and to some degree is what it is if you see what I mean: time is not the main driver. How are your urinary symptoms? Good I imagine with that pocket-sized prostate! Mine...
I found radiation after 18m very tolerable. (I had persistent PSA of .18 and a very long doubling time almost the same as pre-op: I was 0.2 when they radiated. 52.5Gy/20.) Bed only, no nodes....
Hope for the best, prepare for the worst. Accept, as I have done and as a large number do, that it not being the end of the road is not the end of the line, if you see what I mean. That takes some of...
There's a lot of guff, but some good stuff. It's a muscle and needs exercise and you are very literally in the hands of your surgeon. Ghastly side effects are NOT a given depending on his/her skill...
Djin: I don't want to appear aggressive, but aren't you living proof of the possibility of a biopsy missing cancer? I certainly am. As a known 3+4 I had a second MRI-guided trans-perineal targeted...
It's not one core: it's one of the RANDOM (12) cores PLUS a hit on one of the TWO areas of concern. Agree that the scans are unlikely to show much (so try not to lose too much sleep) but you do need...
@Geetarman I think most get the ref. RT? In title: not in sig: computational overload here....
Curative INTENT yes. Curative HOPE certainly. Curative EXPECTATION: best approached eyes wide open. Healingwell describes itself as a support site for chronic conditions and it is not an accident...
Haha: @Tudpock18 : we are both (perhaps) showing observer bias. But I agree, @groundhogy looks to have a high probability of cure. Whether "most" of us have been cured as opposed to managed depends...
Unprostated unposted: missed the 4y bump. Glad surgery went well: congratulations and keep it up....
Oh Gd @groundhogy you are like a little girl selling flowers in no-mans-land: get your head down, quick! Haha - just kidding of course but this could be DESIGNED to start a war. For me, the data are...
I agree with @FranPro , for the same reason. I would at least MRI....
Persistent PSA of 0.18 after 8.5 weeks, so pretty clear-cut. Remains to be seen (perhaps) whether a hot node or the remains of the EPE. Tentative plan is another PSA and meet uro and radiation onc on...
Treat a G7. Surgery, radiation? Who knows. For me, the 1.25 pint bladder is a payoff, but opinions vary, to put it mildly. But if surgery it has to be the right surgeon. Every week I get my heart...
A friend of mine had a brachy insert to a hot node. Not sure if it was brachy boost but it is certainly focal and might be what the onc is referring to....
This is not exactly the one I have in mind but it's a good start https://www.sciencedirect.com/science/article/pii/S2287888218300461 ...
I thought it might be useful to share MY THOUGHTS about what surgery candidates for prostate cancer treatment should be looking for in their treatment. It is NOT a post to advocate surgery. That's a...
@SteveF : going back to your fluid monitoring, there is a huge inventory so in and out can differ a lot. You probably have 6 weeks’ water flow on board. I’ve noticed things like a lot of salt (on...
Even though they’re Hawkeyes :-), you’re actually illustrating why you MUST pursue excellence. Your dates look wrong bit on a reasonable interpretation it is WELL worth the wait....
I have posted links in a reply above to linearly and exponentially fitted curves, @groundhogy...
Edited. But good grief. Sorry: I'm being compulsive on this one (second edit). I said others' experiences are irrelevant COMPARED to @groundhogy taking charge. I stand by that. Thinking on, some sort...
Bumping this in lifht of your other thread. Have you had an MRI? I believe not: this is standard of care now and we all need to be on that....
Other people’s experiences are IRRELEVANT compared to YOU taking charge of YOUR care. Forget politeness: this is your life. INTERROGATE these sawbones till you find one who is PROUD of his or her...
Hej @Jefff and thanks for the update. I am exactly 3 weeks ahead of you and I found my body told me pretty clearly what was OK and what was not. Also, after 6 weeks it was like a switch threw and...
Thank you, Anne. And Mods and others, believe me this is tame (and very educational and developmental) compared to a lot of the other material 13yos are getting on the Web. Anne I'm not sure you got...
Damn right you've been lucky! Well done. You prove someone-on-here's point (not sure who: a regular) who says that clean surgery that gets it all means G-score is irrelevant. I was EPE but otherwise...
GG you're getting some great advice here. @Island Time: since this is one possible future for me and perhaps a bunch of us, can you spell out "He answered, “This surgery won’t begin to pay dividends...
Well I never: live and learn https://pubmed.ncbi.nlm.nih.gov/23906190/ Good luck Dr. V and I hope you get the urinary issues sorted: that all seems a poor reward for a brave and IMO correct step. Do...
@Mumbo : knock you out if you're lucky... My 2nd was under local. In itself, fine but that local injection got my attention, I can tell you. @IsItSerious : thinking about this a bit, PCa is not the...
Good for you, putting yourself through that again. As above, I would hope it will be transperineal. Again, worth checking. If it's some guy with a gun you know where squinting at a screen, run. In...
Larry, @bbqdude, you have got me tinkering with some of the mathematics of uncertainty that IMO Drs need to understand. We all wish you luck: of course we do. So what is luck on Monday? It is not...
@jefff. YMMV but they had me on heparin for 2 weeks, and my tube was pulled after 12 days, yours after 7 I think. If you’re on anticoagulants, any blood being shed from the surgery is going to be...
PS I never replied on your other thread to your kind question as to how I am doing. Hunky dory, thanks! 2 of the trifecta in days but sweating the cancer one (first PSA Dec 15) because I should have...
Hi Larry: I’m sorry to be Dr Gloom but the chances are good that you have clinically-significant PCa and not so good that a biopsy (if it’s 12-needle) will find it. The good news is you have a full...
I agree: imaging is THE miracle in recent treatment developments where "recent" takes you back at least as far as nerve-sparing. It is-with respect-crazy to throw treatment-changing information away....
@DjinTonic: lymphadenectomy is a fast-moving area where the direction of travel is towards fewer LN removals. USMMV but in the UK LN are not sampled for GG 1 or 2. I was 3 and the surgeon expressed...
@jefff: as my uro said to me a few hours after my tube came out, "this is as bad as it gets": you are one of the "immediately continent" club. Congratulations. It is very largely because you had the...
As part of my research, I met a top RO here in London. The big selling point to me of RT was the lesser ED. She said something very interesting: in 5 syllables: "Use it or lose it". She said she...
No...
Yup: almost too many options. All good so your odds are really good. Great neck of the woods too. Some fine advice in this thread....
Hey @JTwig. That's really too bad and I'm sorry. But in some ways you are already an old hand at the worst part of this, the waiting. Waiting for biopsy results is bad. I am sure post-treatment PSA...
I mean, really people. Jeff I know the uro will have told you this but DO NOT TRY THIS (catheter removal at home). It WILL be a Foley balloon catheter with a little branch upper-thigh level you hook...
@lapilot that's a real bummer: so sorry to hear that. BUT as I am sure you know, even if it's a genuine BCR, it's so late it is unlikely to amount to a hill of beans. My great friend IRL had the...
Great stuff, Chip. I'm sorry there was stuff in your chips but you have the ultimate entry level T1 G6 so for now you can take a relaxed (but vigilant) view. A lot of your PZ is still there, and...
Hi team: Anyone who has had ART/SRT, or can post a link, what am I looking at in terms of impact on UI (Urgency and Leakage) and ED? I have basically scored a free pass so far. Do I keep that or am I...
Yeah: I think I kind of see where @Mumbo is coming from. This whole thing about "s/he put up a brave fight" or whatever just ups the pressure on the patient. Some like that, and you know, whatever...
@Gman sorry for the cross post but @Todd1963 that is INSANE. @Redwing I hear you on the numbers, but any lack of "proper" prioritization is not intended to minimize your (plural) challenges. We are...
Todd: on your cross-post "Haven't made my decision regarding surgery versus radiation+ADT+HDR? yet, but pleased that my consulation appointment with Johns Hopkins got moved up to next Friday. Should...
@Mumbo Hahahaha. @Debralyn, it feels just like having a foot of rubber tube with a balloon that has deflated but like any balloon that has been inflated for a week, is crinkly, pulled through your...
In the spirit of celebrating our little triumphs, just before my op, by the grace of Gd, I had UR that was REALLY unpleasant and nearly had me in the ER. One night I was up every single hour to...