Below is the info from the first spot that was taken from bladder neck Diagnosis PRELIMINARY DIAGNOSIS: A. BLADDER TUMOR, TRANSURETHRAL RESECTION - 1. ATYPICAL SMALL ACINAR PROLIFERATION (SEE...
Oh no. I know his PSA was only around .3-.3 when the PSMA PET scan (11/21)showed the spot in bladder neck and the 3 very small spots on ribs. He’s been fighting PC for about 10 years now....
Dad just had his second PSMA PET scan today. Praying for good results. His last one was November 21 and he had a spot in bladder neck and 3 very small spots on ribs. He started Lupron Dec 1, 2021....
Still awaiting communication from MO/RO. I’m sure this is all normal to them but I have anxiety that things could be growing in other spots....
Got the news today from the cystoscopy in May. Cleveland Clinic said the spot in bladder neck was prostate cancer cells again (same as January). Bummed! Was really hoping it was going to be benign....
Got the news today. Cleveland Clinic said the spot in bladder neck was prostate cancer cells again. Bummed! Was really hoping it was going to be benign. This has grown since it was removed in...
I should also note that my Dads PSA has never been very high. It was 3.8 when they discovered his prostate cancer. It was .3-.4 last year (and had bounced around all last year with the .3 being in...
Thank you all so much for your replies! I totally agree that having a good mindset can make a world of difference. I also believe that we have several options and paths to take to treat and manage...
Has anyone here had cancer regrowth while taking Lupron? My Dad had a PSMA pet scan last November. It showed 3 very small/immeasurable spots on ribs and recurrence in prostate bed. He started Lupron...
Well no answers yet. The specimen is now being sent to the Cleveland Clinic. What we do know is this….weakly to moderately positive for PSA/PSAP and negative for P63 CK7 CK20 and gata3. The spindle...
I am blown away by all of the similarities between your husband and my Dad! Dad didn’t want to go to Vietnam either. He was drafted as well. The VA said his pacemaker was due to agent orange as well...
Ok. Thanks. His procedure was done last Tuesday May 24. These cells are in the bladder neck. Just very strange that there would be PC regrowth when he started Lupron the first of December and PSA and...
Dad had some more cells removed from bladder neck last week. They sent them for biopsy and they are doing immuno slides. I’m not sure what that is for? Maybe a more I’m depth look? I googled it but...
@spouse21 so your husband didn’t have prostate removed? My Dads sound a bit similar you your husbands except he had prostate removed (see signature). He was also in Vietnam and exposed to agent...
I’m curious about this as well. Please see signature then continue reading. 10 years out from original PC diagnosis we are at stage IV now. He has no symptoms but PSA got to .3 last October so we did...
Dr scraped out what was in there again. Praying so hard that it wasn’t cancer regrowth. I really can’t wrap my mind around how it could be regrowth since the last scraping of bladder neck (which...
Dad is going Tuesday for Cystoscopy,again, so the urologist can get into the bladder neck (second time since January 2022). He saw something that dad described as looking like a “skin tag” type of...
Dad is going Tuesday for surgery so the urologist can get into the bladder neck again. He saw something that dad described as looking like a “skin tag” type of thing in the bladder neck. I’m not sure...
Yeah, he has no other symptoms besides urgency and a weaker flow. I think the idea is to get out any cancer that could be there. My worry is that how would the cancer be regrowing there when he’s on...
I wish my Dad were more computer savvy. I always tell him about this forum and different cases that are on here, some if which seem worse than his and the men are having good outcomes. I think he is...
What happens if the PSA is undetectable but there is a small regrowth if PC that crept up to bladder neck from prostate bed while on Lupron. My Dad has been on Lupron since the first of December. He...
Well, Dad had a pacemaker put in on 5/3. He did great with that! He had follow up bladder scope in 5/4 and there is something there in the bladder neck again (where the urologist had removed prostate...
We certainly hope it’s something like that! Idk if he could see it with the scope to tell or not or why he is leaning towards thinking it’s prostate cancer. At any rate, we will have to wait for the...
I’m sorry you are going through this. My Dad is 75 now and is also looking at possibly getting a pacemaker due to low HR. It sure does seem like everything hits at once. His urologist is going take...
My Dad had a PSMA Pet scan at .3 and he had a recurrence in the prostate bed and 3 unmeasurable (very small) spots on ribs, prostate removed in 2012, recurrence in 2017 in prostate bed, hit with...
My Dad said he has been experiencing UI since having his cystoscopy and biopsy in January. He had his bladder neck scraped out as some PC from the prostate bed had started to creep up that way (see...
Dad said ever since the bladder scope/biopsy when he has to urinate he has to go right away. Anyone else have that? We see the radiation oncologist for a follow up, this week. Any questions we should...
My husband is continuously telling me we have to trust the doctors. I know that we do. Sometimes it just helps to talk to others who have been, or are in, a similar situation. It would have helped to...
Hi everyone I’m having a tough day. My dad went in for a colonoscopy due to a focal perirectal wall area of uptake of 8mm. Well, if you’ve been following me you know that we found this spot on a PSMA...
Ok. Thankful for that! I pray the hormones work for quite some time....
How did they treat that?...
My Dad had a recurrence 5 years after prostate removal. At that point they did SRT to fossa after biopsy revealed it was there. He also had a years worth of Lupron which was out of his system Feb...
Please see signature to see where we are on this journey. So, Dad started on the Lupron and Xgeva and so far his PSA went from .4 to less than .1 so that is great news! It was .4 on Dec 1 and less...
Thank you! Yes, we pray the Lupron will continue working for quite some time in those areas the pesky PC popped up in!...
Yes, they did that when they did the scope/biopsy. Good luck!...
Hi everyone! Sorry for the delay on update. So, Dad started on the Lupron and Xgeva and so far his PSA went from .4 to less than .1 so that is great news! It was .4 on Dec 1 and less than .1 on Jan...
Thank you so much! I hope so!...
We sure hope it puts the brakes on! He just had his PSA last Wednesday and it had gone up to .4. It was .3 the end of September. I believe they said they will check it quarterly. I’m not real sure...
Dad had his Lupron shot yesterday and X-geva shot today. Praying for great results! Prayers and good vibes appreciated! Urologist sending his information to medical oncologist tomorrow so should have...
Fiddlecanoe I do appreciate your honesty! I didn’t want to come off as not appreciating what you said....
Yes, it’s true that the hormones might not work but I guess it was my understanding that they likely would and if they didn’t then there were other meds he could take, or levels of hormones? I...
Island time….you nailed it! That is exactly how we’re feeling right now. Every one of you has helped me tho and I will share with my dad! I’ll likely post again after his bladder scope and meeting...
All valid and great points! Sometimes it’s hard to see the positive when you are in the middle of it all. You are so right! It’s definitely a roller coaster! I do remember the urologist saying, too,...
Thank you so much. You guys and your knowledge and responses are truly a blessing! The urologist said that dad was a bit rare that the radiation resistance only happens in about 1 out of 100 so I...
Yes, he took the Lupron (I believe a month dose to try then a 6 month dose) in 2018. I’m assuming that is likely what lowered the PSA then if he was radiation resistant…. I should add that my dad is...