Ive been taking abiraterone 250 mg as described since 11/2021 after mets to my lung. It brought my psa from 5 to 0.02 and significantly shrunk the 2 lung tumors. I tried enzalutamide initially for 2...
IMHO a prostatectomy definitely shrinks the penis. If a prostate, which contains urethra, is say 1-2 inches diameter, and then removed, the severed urethra is re attached during surgery, minus the...
My firmagon experience was in 2012, it was almost a year after RALP and in preparation for salvage radiation. I had 2 shots, one caused a pretty intense local redness, swelling and tenderness but...
John. Good to hear your cyber knife went well! I hope you continue to be free of any symptoms Today I noticed your question about AR v7 from a couple months back.... I will post my brief experience...
After a trial of xtandi in September/October I stopped the med d/t extreme fatigue and mental fog. Very severe, to the degree that I would not take anything if Xtandi was my only option. Im now on...
Hi Brothers, Im 10 years out G9, RALP, Radiation, ADT. Psa back up to almost 5 this year. Found 2 small mets in right lung after CT/axumin scan/lung biopsy x2. no symptoms. Started Xtandi in...
David, Thanks for updating, people don't realize how far their post go..... there are few people that can relate to things we are going thru even tho many genuinely try. Often just getting the words...
I think they're some better meds to consider, darolutamide, enzalutamide, Provenge ....Id look into options. Im G9 x 10 years, starting Xtandi 1 day ago, due to lung mets...
Im 10 years out this month.. I can't seem to update my profile stats but my psa up to 4.9 this July, Axumin and CT showed 2 lung nodules, bronchoscopy in August confirmed prostate mets. I have no...
I am a Gleason 9 ... 2 years post radiation/RP/3 months Firmagon. Just got Psa back at 0.02 so things are in remission. My T level is still low, almost 2 years out at 175. I had perineural invasion...
my first Firmagon injection was impressively uncomfortable for a day or 2. red tender indurated area equal to about 2 hands on lower belly. like 20 wasp stings. subsequent injections were much less...
I will freely discuss HT side effects Foxrun... No libido, poor endurance, trouble focusing on tasks; compounded by fatigue, worsening depression, anxiety (which I never had at all) , weight gain,...
Similar situation as I finished SRT in October and did the minimal recommended HT of 3 months.I opted for Firmagon because its a monthly injection and I could back out if side effects were too severe...
GOOD NEWS....8 weeks post SRT my Psa is <0.1 My T level is 7...as in single digit 7. I did concurrent Firmagon with SRT and am 3 months since last injection. I felt like my T was improving base on...
im 2 weeks behind. Fininshed SRT 10/2 and had significant urinary and fecal urgency every 2 hours or so. Just starting to improve 7 weeks out. I feel the urge but can hold it longer, so its an...
I just completed HT/RT. I really didn't want the HT, but multiple opinions led me to include it. I only did 3 months on Firmagon, but I feel it was more difficult than surgery or radiation. On a good...
I finished SRT in October. My 8 week Psa is approaching, but I dont really know what would be a good Psa or a concerning one?? Im a year out from RALP with Psa's of 0.06 0.13 0.2 prior to SRT. G9...
Thanks C C I know I am not alone in my newfound crankiness/anger. Scott...
Your choice sounds very reasonable, but I agree with getting multiple insights from professionals....
Be careful, start low and make very small incremental doses up and certainly try a dose more than once before increasing ......my advice. I had wildly inconsistent responses and eventually a severe...
Ive also had severe ache with trimix. Around 6 months ago an intense ischemic erection left me with significant scarring and even worse ED. It was a smaller dose than I had been using. I have old...
Watched the youtube video on the Rad machine....pretty straight forward, not sure why you'd need specialists...lol...
Thanks for the insight guys... my Psa in April was 0.13, up from 0.06 4 weeks prior. I ve had 5 consults thus far. 3 say add HT, 2 say just radiation....
I will be starting SRT soon and am considering HT as well. Out of 4 opinions thus far, 3 recommend HT with SRT. I was leaning towards the combo but after searching prior threads on this site and...
“Basically out of 1,000 men who are screened, one man will not die of prostate cancer who otherwise would have died of prostate cancer,” said Moyer, a professor of pediatrics at the Baylor College of...
Perhaps a preemptive attempt at reducing (no political comments - 142) costs?...
prop70...... my year of birth preceded by a shortened name of a drug I use most frequently...propofol........well I administer it not use it lol...
I was having poor to moderate success and worked up to .35ml then BAM! 5-6 hour erection. I now have bad case of peyronies I am sure from that prolonged erection.It was the most painful hours I have...
I have seen 2 radiation oncologist so far...one advised radiation of prostate bed and nodes along with HT. The other just prostate bed radiation without HT. I am leaning towards just radiation at...
thx David for your attention and caring...
Im 7 months postop RALP....1st postop Psa was 0.01, then 0.06 4 weeks ago which was repeated Friday. Got result today of 0.13....not my lucky #. Im having repeat CT and bone scan this Friday and will...
Minor infections may respond to a few pills, but if the prosthesis is infected it must come out, surgically. I see infected implants in all body parts taken out quite regularly in my line of work,...
You guys ever wonder what some men would do if surgeons were able to enhance our "anatomy" to the degree breast augmentation is often done? Just a thought..lol...
This myth is debunked! Flaccid state is ridiculous ....seems it thinks its submerged in 32 agree water no matter the temperature. Urinating requires unearthing the lil bastard. Erections only with...
Im a G9 and can relate to the indifference. My 4yo son needs a dad otherwise I would care less about whats going on. But having him I made the APPT, got a physical, requested a Psa, followed up,...
i agree with fewer rules...
I had inconsistent results and worked up to .35 ml . I dad several 4 hour erections and one 6 hour that Im convinced did some permanent damage. i.e. shortening, curving and girth loss in the distal...
Good judgement comes from experience. Experience comes from bad judgement....
Thx for the quick replies. I agree with the need to get set up with the appropriate oncologists asap. I have spoken with one who is acquaintance and he gave me some names of docs he recommends. His...
I failed to post my first postop PSa which was 0.01 in January. Just got results at 16 weeks...Psa 0.06. Not reassuring with a gleason 9. Surprised that I received the results over the phone, but it...
I felt no pain at 4 weeks and a day and have done what I want since without problem...yet. tho bear in mind that medical people make the worst patients....
Search RSD...reflex sympathetic dystrophy... and see if symptoms fit. I haven't heard of it on the penis but no reason it couldn't be....
Trimix is under a month old and I was on no other ED drug. Ive only recently been using Trimix so obviously I have some dialing in of the dose to do. So far its been wildly inconsistent, but not...
Kinda had a bad experience with my Trimix today...injected this morning a dose that has only given me about 75% fullness before...really just for some penile rehab, but for the first time I got an...
I do anesthesia for a living and did not choose it for my robotic procedure as it would've added little benefit IMHO. If I were having an open procedure...different story. I would have had a spinal...
What part of the country are you ?...
Casey, Yes...I understand now. I hadn't thought of the 4/5 percentages in that way. I will investigate my report further to see where mine lies. I expect radiation recommendation, but I really feel...
Casey59, Thx for the candid information. I have a fair amount of experience interpreting medical studies and their graphs but I seem to have trouble interpreting the one you linked to..."percentage...
I am 1 month post RALP gleason 4+5=9 , PSA 6 at 41 yo but with negative margins, nodes, vesicles ...etc. Maybe Im extremely lucky, but I can only seem to find other cases of gleason 9 with at least...
Im 41 and about 3 weeks post DaVinci. I can only tell you what I chose and how things are going. Overall, the surgery and recovery have been much easier than I expected. The catheter was minimally...