Hello Zeke. I have been seeing Dr. Kwon at Mayo since July 2019 and others in my zoom support group have recently gone to see him, it can take up to 6 or 12 weeks to get in to see Kwon. The phone...
I am being seen at Mayo in MN and have had 4 PSMA scans in a 9 month period and all were fully covered by Medicare and supplemental insurance. Previously I was having C11 scans every 3 to 4 months...
I noticed this thread is talking about statins and lipid panel numbers. When I am placed on ADT (lupron or eligard), fourth time now, my lipid numbers start to rise after 6 months. I was offered a...
In March of 2020 I started 4 months of Taxotere chemo and 22 months of Eligard, and lost a lot of strength and muscle tone and energy. In March 0f 2021 I had major lumbar back surgery and was very...
Hi Scott. You may be retaining fluid in your legs. I also reduce my fluid intake b4 6:00 pm, sometimes when I go to bed I will have a full bladder again in 2 hours then 2 or 3 hours later also. If I...
Dr. Eugene Kwon at Mayo Clinic in Rochester MN is the type of oncologist-urologist you are looking for. He only treats metastatic and recurrent metastatic prostate cancer. To get a good idea of his...
Are you on private insurance or Medicare ? How is the cost of the Orgovyx being covered ? I would not mind if my mental and hot flash SEs were reduced. Dave...
I drove past the Four Corners Monument last September with plans to stop there but it was closed due to the pandemic, sort of a quick addition to my bucket list, if I am driving past why not stop....
I am in a rural South Dakota town with 650 people, shots became available to the public Feb 3, I got a message asking if I was interested but didn't reply soon enough, but got called when shots...
This is very interesting news for me. I am currently on my third series of Lupron therapy, when I get past the 9th month of treatment the brain fog becomes a major problem, short term memory,...
This did not turn out like the preview showed 6 nice columns, don't know what i did wrong...
I don't know how many of us on Lupron, Eligard, or firmagon deal with lipid panel numbers going the wrong direction. Mine did the second time on Lupron in 2017 for 1 year, I was told to start on a...
Hello AJ123 I started my Taxotere on March 30 with a port placement and the first infusion and it was very easy, just sit in a recliner and relax. A March 9 PETCT showed 3 new metastases along with a...
Thank You for all the supportive comments. I kind of feel like a rodeo bull rider. The undetectable PETCT scan and PSA is like getting to the 8 second buzzer, but I'm not sure if I spent more time on...
Here in rural north central South Dakota it is sort of a mixed bag. In our local small town I see less masks even though there is a small uptick in Covid cases in the surrounding counties and in...
A March 9 PETCT at Mayo Clinic found 3 new mets along with 1 prior met and a 6.1 PSA, started on Lupron and 2 weeks of Casodex. March 30th was first Taxotere dose with a 1.03 PSA. Taxotere every 3...
I too have been dealing with gross hematuria. Starting March 30 about half of my voidings had pink or red drops in them. April 2 my Uro did a cystoscopy and reported white scar tissue on bladder neck...
Wow, how things have changed from June 1 to June 11. June 1st was my 4th round of Taxotere, smooth and easy like the first three, days 2, 3, and the morning of day 4 I was feeling great until a 11:30...
Just a quick note from South Dakota about CV numbers. My county is McPherson and 3 adjoining counties. McPherson; pop 2400, 1 CV case, 1 recovered, 36 negative tests Campbell; pop 1400, 0 CV cases,...
Hello Mike. My Taxotere infusions are a couple of days ahead of yours. The first was March 30 and like you I felt this is easy, only a little bone pain on day 4, the port placement ached more the...
From my own feelings and experience I would want to disagree with these findings unless it involved the use of ADT at the start of any delay. I was diagnosed in Feb 2016, started on Lupron in May,...
I think part of the answer to what are necessary procedures and what ones can be delayed depends on the CV-19 activity in each location. Several of my recent appointments have been handled very...
With the latest CDC announcement that the Covid 19 could last another 18 to 24 months till we have 60 to 70% having been infected and achieve herd immunity we will have to go ahead with medical...
I live in a rural county (2400 people) about 70 miles from a city of 30,000 people. They have had 15 confirmed cases of Covid 19 with 10 recovered so far. It is hard to figure out the direction the...
I had done Lupron and RP in 2016 and BCR after 6 months, restarted Lupron and did 33 sessions of IMRT. Side effects were very minor, some afternoon fatigue for a week a little over halfway thru the...
I am 70 miles from a city of 30,000 in north central South Dakota that has 2 cases of CV none hospitalized. I saw my MO Thursday and was quickly scheduled for a Monday port placement and the first of...
Bagman, I had a similar event. RARP in Sept 2016 with BCR after 6 months which was treated with IMRT and Lupron. One day in Sept 2019 I had blood and some blood clots for about 6 hours, a urogram...
I will be starting chemo later this month. Just finished scans, started Lupron and Casodex, but have not met with MO. I have a 75 mile drive and curious if anyone drove themselves home afterwards,...
Gleason 3+4 PSA 85 high volume. Had 23 lymph nodes removed, 3 were cancerous. I did have some mild swelling of both ankles and calves for about a year, compression socks and time resolved that issue....
Thank You for the chuckle, it lifted my day. Sitting in the house in north central SD watching it snow and blow. Just had returned from the Mayo Clinic; got good news, we really don't know news, and...
When the Urology nurse removed the Foley and taught me how to self-cath she said I would probably test positive for bacteria in my urine because of the Foley and if I did more self-cath. From what I...
Surgery 9-2016 Urethra stricture dilated 10-15-2019 with a Foley Cath for 10 days. Just had my PSA done today to see if I qualify for a PETCT trial at Mayo Clinic. It was 1.6 on July 2 2019 and had...
Dr. Kwon at the Mayo Clinic in Rochester Minnesota specializes in the treatment of reoccurring PC....
I have recently finished treatment for a second reoccurrence of PC. First treatment was Lupron followed by DaVinci surgery. Salvage treatment was Lupron and 33 sessions of IMRT to pelvic region with...
My post is not cancer related but touches on the human will to heal and live. 3 years ago my mother fell and broke her hip at age 102, following a successful surgery she spent less than 80 days in...
I am dealing with my second BCR, 12-6-2018 PSA .12, 3-6-2019 PSA .33, 6-3-2019 PSA .94. My second round of Lupron was from May 1 2017 through April 10 2018 (stopped because of side effects, but PSA...
I had my last Lupron (4 month) on 12/19/2017. The amount billed was $2917.91 and the in network discount was $1955.00 so my insurance paid the MO at the cancer center $962.91....
Hello Michael. I am also struggling to stay fit following Lupron, surgery, and then Lupron again with radiation treatments. Livestrong offers a program at some YMCAs for cancer patients, its 12 weeks...
I did my SRT in June and July of 2017 and had to be careful of eating bacon of any other greasy type food during the treatment period or I would deal with diarrhea. I started Lupron on May 1 2017 and...
I am rather surprised that I have heard of a few men that have removed their catheter by themselves. My urologist did a voiding trial where saline is back filled into the bladder before the catheter...
In South Dakota you can get an organizational license plate that has room to put a sticker between the first letter and the rest of the numbers. Popular are firefighter, military, college or pro team...
If I go through my urologist and have her order a PSA it costs $133 but if I walk into the lab and pay cash upfront, no insurance claim filed at all, the cost is only $30. If you will not reach your...
I am only familiar with prescription control methods. My R.O. used Effexor or generic Venlafaxine, my Urologist uses Megestrol Acetate called Megace , Gabapentin is also used by my internal medicine...
It is two years since I was first diagnosed and an finally starting a workout routine. My wakeup was my first yoga class this past February when I could not hold an arm pose such as downward dog for...
I also am in an ongoing struggle with anxiety and occasional depression. I am finished with my radiation treatments but stop in every once in awhile at my cancer center to visit with the crew there....
I am only on Lupron but am prone to tears at just about anything, a change in something previously scheduled, getting lost while traveling which I seem to do much more often lately, or when anything...
I had my latest PSA done January 22nd <.01. It is only my third PSA since ending IMRT in July but it is holding in a good place. I was not as anxious this time prior to the blood draw even when it...
Uncle Harley, I had 33 sessions 8 1/2 months after my RALP, I had no incontinence problems after the surgery and after the IMRT I had some post voiding dribbles. I did not have any burning with...
Thank you everyone for the positive and supportive posts. I first got the idea for the topic on the 23rd but it just didn't seem right to post a depressing topic on the day when we all should be...
Drs at Mayo started me on OsCal 500mg calcium and 200 units D3 with very first Lupron injection. I have been taking 2 daily ever since even when first Lupron course ended, now on second course of...