Fantastic news Dan!...
Hi packfan11 I had a Turp 5 1/2 yrs ago no rise or fall in psa from it. No other issues the blockage was removed and I was peeing like a 13 yr old boy again. It's wonderful they can do these...
Stephanie So sorry for you and your family's loss. Everton...
Dan I have answered via private email Everton...
GH I did hyberbaric treatment while I was on 10 weeks of antibiotics for a dental infection. You can find out some info here https://mo2r.ca/ Radiation...
Due to dental infections that only a dental surgeon could finally find after a cat scan saying my Jaw has ONJ of the jaw. I did 10 weeks of daily infused anti-biotics and 40 sessions in a barometric...
I did, but C Diff has dropped me to a grade 6 weight of 130 lbs from 170. Friggin Lupron making for an emotional roller coaster this week. Getting new wills written, Bank meeting plays on a guy ! :)...
No worries for referencing my experience, as it also brings other people aware to the possible side effects although rare.. I am finally doing fine now, after having to fight C Diff from too long on...
Hi Mattam That would be me, you are referring to for ONJ. I had been on Zometa and Prolia. I got a dental infection that was a nightmare to get rid of. I did have regular dental checkups. I saw a...
Hi Turner 2 I started with Venlafaxine 1st for 6months it started to fail after 6 months. My Uro switched me to Gabapentin @ 1200 mg daily. This has worked great for the last 4.5 yrs. I am still on...
I used Effexor for 6 months then switched to Gabapentin and have used it for the last 4.5 years. It does a great job at keeping the S.E. at bay....
Melaine I have C Diff right now and have a Oncologist Dietitian and my Cancer Doctor working with me. I have lost 20lbs of weight from severe diarrhea. I am drinking 2 - 3 G2 with a 1/4 tsp of salt...
Count me in....
Todd1963 That's fantastic news Todd. Now you can breathe easier! I remember going for disability pension and getting approved, it was a huge relief for my wife and I. I am not allowed to work and...
Hi Roycanuk My 1st line of treatment was Lupron and 6 treatments of Docetaxel. This took my PSA from 350 to 0.016 pretty quickly. My psa started slowly climbing and 1.5 yrs later we added Zytiga. I...
I know they make an auto injector for needles, so you just hold on the spot and push a button. I did not use one when I was trying Trimix just a needle, I was just told they exist. I am sure if you...
Thanks for your reply Cyclone, I should get my Genetic testing report next week when I see my M.O. Chemo is definitely on the table and I will ask if Zytiga is a possibility after chemo. I...
Hi Folks I have just been diagnosed with osteonecrosis of the jaw. I have had some dental infections this year, but beside that no dentist could nail down my front aching teeth problems. Dental scans...
I had Chemo and Radiation to my hip, with Lupron. It has come back to my hip and I did do ration again, so far so good. My lungs have been clean since 2017, all this under the care of a Medical...
Mattam Many thanks I will ask my M.O. as it is approved in the Great White North ( Canada ) ;)...
Well folks short run on Xtandi, did not get a full week. I cannot remember much about the experience, swollen lips and I bite one, red marks on nose that went away 1 day after I stopped. I could not...
Sorry to hear about your wife Mark, you can try this site https://healthunlocked.com/bluefaerylivercancer...
Hi Guys I had 5 sessions of SBRT last Nov / Dec 2020 it dropped my PSA from 14.1 to 0.3 in 60 days. Well being on Zytiga my PSA did not stay down as we had hoped. My journey with zytiga has now...
I had a good run with Zytiga, but it now is failing me. I am moving onto Xtandi. Best of luck to you guys who remain on it. I will update here my progress with Xtandi....
I wish him well, but cannot comment on those meds. What I use for dry mouth is Biotene mouth wash and I suck on these X-Pur mints they are suppose to stimulate salvation. I got mine off Amazon....
I took flomax and rapaflo to pee easier prior to getting a Turp, to not get up at night I take Nocdurna....
Fantastic Todd! Congrats on the 15yrs! You and Mandy enjoy your time in Hawaii....
I have been on Lupron for 4.5 yrs now. I did 5 sessions of SBRT in mid November to Dec 2020. It was a total of 30gy. My PSA in early Nov was 14.0 in early Dec it was 7.9 and Jan 2021 was 2.4 and Feb...
Thanks for this. I am told I am on Lupron for life, so I have considered this but have not had a recent discussion with my Urologist. It's probably time to revisit this....
I would take a guess it is loss of blood flow. I believe there must be a penis ring you can put on to help with this. They are called silicone penis rings....
I sent it to a friend and he got all upset and said that mick is embarrassing himself and he "needs" keith. i'm like wtf man lighten up it's supposed to be a fun song :-)[/quote] I liked it, Dave...
I wore Ice Gloves for all 6 of my chemo sessions. I have no problems with my hands. I was also told to paint my finger nails with a product called Hard as Nails....
Unreal guys what you pay for Lupron in the USA, I am in Ontario Canada. I just picked up a 90 day shot for $ 1,985.00 paid for by plan injection no cost from doctor....
Hello to my southern friends, interesting seems to be no shortage up here in the Great White North. I am 60 miles west of Toronto and get a 90 day shot of Lupron in the butt....
I wish the doctors where more upfront on the side effects....
Urologist always have....
Mike I was being considered for radium 223 in October, as I had started having alot of hip pain again after 4 yrs of none. The R.O. then spoke to me about SABR 6 treatments, each one 6gy one to hip...
I have been on both no problems with insomnia, as Mumbo has said try taking in the morning instead. I did get bladder spasms with it though but not with Flomax. My problem ended up being solved with...
I also meant to ask you....have you taken any breaks in those 4 years and are you taking any supplements like Calcium for your bone density?[/quote] No breaks from Lupron, taking vitamin D, no...
Been getting Lupron 3 month shot for the last 4 yrs, never was asked about wanting a 6 month shot. Maybe depends on the province, I am in Ontario. Maybe insurance company will not allow it if you...
PSA been climbing slowly since Jan 2019. I recently switched from Zytiga and Predisone to Zytiga and Dexamethasone. I have my blood drawn and see the M.O. every 30 days. Recent scans are showing no...
Steve0 I to had prostate cancer lung metastases. After a treatment with chemo, it cleared my lungs and it remains that way. Best of luck to you!...
We where to be in San Diego for almost the month of April, well that did not work out. We have a credit for 2 yrs with the airline, although enough stink has been made the Airline is going to change...
I am going into the hospital's chemo ward every 30 days. While I am there I get my Xgeva shot and lab work. I see a doctor for my lab results. My Zytiga is renewed for the next 30 days. I feel...
I am doing okay thanks. with all things considered. I've gotten good care and advise from my M.O. As my signature shows I have been on Zytiga and Predislone since Sept 2018. The chemo worked well to...
Went last Thursday for my 30 day checkup at the hospital. I was asked about 6 - 8 questions prior to getting in.The place I go is where chemo is administered, so a small area of the hospital. The...
We where due to fly from Ontario, Canada to San Diego for 3 weeks the start of April. Spoke to my brother-in law and have decided to postpone the trip for another time. My mom is in a home up in the...
I seemed to start having problems staying asleep about 2 - 3 months after starting Lupron. I could fall asleep for 1- 2 hrs, but then be awake again for hrs. I mentioned this to my urologist who...
I have had three yrs of 3 months shots with just a sore spot for a couple of days. She does flick the needle with one finger for a few minutes to make sure it is all mixed up. It is given in one...
Lupron for me was the hot flashes until they where brought under control. There is some brain fog also for me it has now been 3 yrs. The Lupron would drop his PSA, but at what cost to him. This is...