Jason, Sorry to hear your choice of treatment is limited; however, you’ve done a great job of exploring your options. As others have pointed out, find a skilled surgeon and one you have confidence...
Jason, A PSA test is like a “check engine light”; it can be the result of several things and signals addition checks are necessary. A biopsy is much more definitive and your’s was positive with some...
Jason, We each have unique circumstances that need to be applied to our treatment choice. One size fits no one regarding treatment choice in PCa. It pays to do your research and select the best...
Jason, My stats would suggest I was an ideal candidate for active surveillance; however, recent joint replacements due to arthritis had me very concerned about additional biopsy infection risks. I...
Jason, Every treatment option has treatment risks. It’s important to understand those risks and select the best treatment option for each personal situation. Most urologists down play the risks...
Vince… I wonder how much of the ‘new normal’ is discussed prior to surgery by the urologist. BTW, the information I posted earlier is mostly from discussion with one of the guys I cycle with. We were...
The medical term for leaking urine during orgasm is climacturia and unfortunately it’s rarely discussed. It’s very common for more than 50% of men when their prostate is removed. It can also occur in...
Seven years post SBRT with mostly a dry orgasm and that’s the only side effect. A lot to be grateful for. The dry orgasm is no big deal for myself or my spouse of fifty-five years tomorrow. In fact...
Great results!! I wish more guys would consider that treatment option. Any negative side effects to report?…Terry...
Larry, Although I’m following this thread; I was in an entirely different risk group when diagnosed. I did find the prostatecancerfree.org site helpful in evaluating the various treatment options....
Idog…Always good to be vigilant; but, probably way too early to be concerned. I’d retest in six months. A PSA of .2 for guys still having their prostate is still a very low number. Best wishes…Terry...
Sela, Glad you found this forum and it’s wealth of sound information. The best medical decisions are always informed ones. Best wishes…Terry...
hrpufnstuf…You may wish to contact Dr. Rahul Tendulkar at Cleveland Clinic. I’m sure he would know what work has been done regarding SBRT as a salvage option. I found him to be easy to talk to and...
DBozz, Best wishes for continued low numbers. Don’t panic if you see a bounce down the road as it can be quite normal. As you can see from my numbers below the road has been bouncy. I’m currently on...
JR…The best treatment decision is the one you select after thoroughly evaluating all the options. Unfortunately far too many men make that decision without understanding their options. Glad to see...
Can’t speak of the effects of ADT; however, I have four total joint replacements (both shoulders and knees) due to osteoarthritis. The surgeons have you on a stationary bike within hours of knee...
JR… I believe every treatment decision includes some risk of unwanted side effects. I chose SBRT since the data I looked at suggested it would cure my cancer with the lowest risk of unwanted side...
GG…I don’t know the accuracy of PSA testing but PSA is expressed in nanograms per milliliter. This is the same as parts per billion…indeed a very small number. I can’t even imagine how many parts are...
Made my morning. Thanks....
Hi Tom…A recent veteran’s Administration study of the risks of secondary cancers from radiation treatment for prostate cancer was shown to be very low. Prostate radiation only slightly increases the...
I rarely have to get up unless I drink a lot of liquid prior to bed time....
hrpufnstuf…I’ll be following you on this new journey. The fact you were a fellow low volume Gleason 6 when originally diagnosed is certainly in your favor and something I can relate to. Duke is a...
No DRE here since radiation treatment. I currently only do a yearly PSA check. Life is good....
JR…A day or two following my biopsy I got a call from urologist saying my biopsy was positive for cancer and to schedule an appointment with his office to discuss treatment. The earliest available...
JPS…Very tough diagnosis for sure. For high risk guys a single monotherapy treatment may not be the choice that offers the best odds for a cure. I hope you’re considering MSK. It’s a center for...
JAW…I had SBRT in June of 2017. Back then SpaceOAR (gel) was just getting started and I had an endorectal balloon at each of my five fractions (treatments). I did not have rectal or bowel issues at...
Billy…I hope you do something nice for the guy who put you on to this forum and glad you’re here. I believe you’ll find the guys here knowledgeable, helpful and compassionate. When I was diagnosed as...
JPS1…All I can add is my belief that the very best practitioner and team can make a big difference. Keep asking questions. Best wishes Terry...
Ron…No experience with ADT; but, both knees and shoulders replaced. I was able to delay surgery for a number of years with Celebrex…may help if you and medical team want to delay the surgery....
Several guys I know locally are being treated with the “UroLift” to alleviate urinary issues with BPH with good results. One is suffering from PCa as well and the UroLift clips will actually be used...
I agree with Dude you get more detailed info from the PACE-2 search. SBRT is as safe as the more common ‘standard of care’ EBRT and far more convenient with radiation delivered in five fractions...
Pitgirl…Sounds like your guy has a tough diagnosis. I’ve found this forum to be a big help for myself and I hope going forward it helps your husband and yourself take some of the mystery out of this...
Dr. G….I too was treated with SBRT about the same time (June 2017) as yourself. Seems like a distant memory now and as best I can tell I have no significant side effects. I had an endorectal balloon...
Djin…I’ve found most good studies do require digging into the details and it’s easy to abuse statistics. Thanks for posting this study. Terry...
I’ve posted previously that when I was diagnosed 2017 that SBRT was not being used for PCa in Western PA. As a result I traveled to Cleveland Clinic for treatment. No regrets. I recently found out...
Statistics…You double your chances of winning the “Power Ball” by purchasing two tickets instead of one....
Bounces following radiation are typical for about 30% of RT guys (based on info from my RO). The common bounce period is 12-24 months out and some can be even longer. Mine took more than three years....
Every treatment option has the risks of unwanted side effects. The challenge is to make an informed treatment decision. I wonder how many people actually take the time to read the article or...
Hugo, I’m not familiar with the term P540S; but, certainly recommend that you review these results when your urologist returns. Although most forms of prostate cancer are very slow growing it’s best...
Hi etc. I agree that PSA following radiation treatment as a monotherapy can be a bit bouncy. It’s important to continue monitoring. Have you experienced any troubling side effects from your treatment?...
Murph, At the young age of 48 and an increasing number of positive cores it’s a good time to be investigating treatment options. This certainly is a disease where one size fits none. Every treatment...
Hugo, From my personal experience I would expect biopsy results to be returned within a day or two. In my case I got my results back over the phone; however, the earliest date I could get with my...
Hi Hugo, I’m glad you opted for the perineal biopsy. It’s the best and safest diagnostic tool for PCa and John Hopkins is a great facility. Based on your testing to date the data suggests PCa is...
Although I’ve heard that fatigue can be an issue with RT I did not experience it. Possibly SBRT with only five fractions makes a difference? My RT and his primary CNP recommended staying as active as...
Dude, My initial impression is the differences in PSA values maybe statistically insignificant. I did find an interesting article from the Sperling Prostate Center site discussing “Prostate Zone...
Thanks for posting since I have a similar interest. Although I’m not a member of the ADT club nor do I believe my ever increasing PVC’s have anything to do with my treatment; I have started...
Kindness, Most urologists simply practice as they’ve been trained and have only one tool in their tool box. When I was diagnosed as a low volume Gleason 6 I had more fear of the infection risks of...
Glen, I don’t think there is an exact or agreed on explanation as to why PSA can be a bit bumpy for guys treated with radiation. It is however common. Even at 70 months my PSA appears to still be...
I had SBRT as a low risk Gleason 6 with a rising PSA 6 years ago. I met with my RO or team member on a regular basis by virtual visit for five years. At the post 5 year point my RO felt no additional...
Hi John and welcome to the forum. This is a great place to seek out information, ask questions and make an informed decision. For low and most low intermediate risk guys radiation is a great option...