Is there a certain kind of pump that is recommended? Seems like I've seen someone say they got a prescription for one instead of just buying online....
Well, I had the appointment to get trained on how to inject today, but I was asked why I hadn't tried a higher dose of cialis yet. My Dr. had me on 5 mg a day, but never had me try a higher dose. So...
I already had a case of Peyronies right before my surgery, so I'll definitely ask about that. Do the shots give you 100% of what you had, or something less than that?...
Thanks, Jay, that gives me hope. So you didn't have to try the shots?...
Thanks, glad to hear the needle isn't too bad. Once I start taking the shots, any chance things improve and lessen the need for the injections in the future? Or is it a case of once I start those,...
I'm 52. No ED issues before surgery. Had RALP in December. Had lots of continence issues for months, finally started getting better. I need to wear a pad for leaking. With so much incontinence, sex...
Thanks for the optimistic thoughts everyone, I was feeling a little down about all of this....
Thanks, Stephen.That's what I need is a plan. All they gave me was information on the basic kegel and sent me home. I'll definitely try the different positions....
Thank you to everyone for their input and help over years. I did active surveillance for a gleason 6 for almost 10 years, then a gleason 3+4 came along. I was trying to decide whether to do radiation...
My 7 is right at 5% I believe. How old are you? I am 50, and I've already had sepsis from one biopsy, so I'm ready to treat it, IF I can make a decision! I am, it is favorable intermediate, less than...
CPA Dude, you are in AS with Gleason 7? I didn't know they did that. That’s my current tactic. I’m favorable intermediate G3+4 on AS, but had a 140cc prostate and urinary issues. Had the HoLEP to...
My prostate is not overly large, so not sure what's causing my issues exactly. We are trying flomax currently to see if any improvement. Only been on it a few days and so far it's only given me a...
I am still trying to decide between surgery and radiation. Has anyone had BPH issues before radiation? My issues are weak stream and a little leakage after, if I'm not careful. If so, were your...
Well, I did not get a lot of clear answers. One big advantage of surgery that I hadn't thought about is that my urinary issues will be cured (weak stream and a little leakage after, if I'm not...
Thanks for all of the responses! I learn more here every time I post. I was able to get another appointment with the radiation oncologist at UTSW, and it's this morning. I am going to raise a lot of...
I'm 50. Gleason score 3+4=7 (grade group 2, pattern 4: 5%) involving 2 cores (combined:9 mm, 30%). So it's small volume cancer, and only a small amount of it is Gleason 7. I am set for surgery later...
Mattam, You are correct, I'm still not certain about surgery. I scheduled it because it's now been 5 months since the gleason 3+4 biopsy and I still haven't started treatment. But I think I am...
TC, yes it seems like there have been remarkable advancements in radiation (spacer gel to protect the rectum, for example), and much information about the surgery v radiation debate has not caught up....
Michael, I have seen a radiation oncologist, but they are biased too. I would like to see a Dr. who was neither a surgeon nor a radiologist, but still an an expert in the field, if I could find one....
Thank you Tudpock. Yes, I've done everything you suggest, but it's still a difficult decision. The only thing I didn't do but wish I had (and may still do) is find someone like Scholz who has no dog...
Also, if I proceed with the surgery on September 26, I am curious about the recovery period you experienced. I am an attorney, and I have to go to court a lot, including trials. So I need to figure...
I've been on AS with Gleason 6 for 8 years, but now (Since March) have Gleason 3+4=7 (grade group 2, pattern 4: 5%) involving 2 cores (combined:9 mm, 30%). I've seen all the doctors, done all the...
Halbert, I'm in Dallas. So I'm going to check out MD Anderson in Houston, which I think follows a team approach....
Thanks, AZRoad. It was a similar comment you made below that reminded me to ask that question....
Thanks fellas! One final question (for now) before I embark on this. Are there prostate cancer doctors out there who are not radiologists or surgeons, have no dog in the hunt, and can guide you as to...
Thanks you Halbert and Mumbo. This is my current plan. I am sending off the biopsy results to Johns Hopkins. Then I'm going to MD Anderson to meet with an expert in each area. It really sounds like...
Central PA, yes I've got a weak stream that I know taking out the prostate would cure. But, just very concerned about possible ED issues. Duke, who did you see at MD Anderson? As I understand it they...
Some of you have mentioned radiation as a possible alternative. What about proton therapy or that procedure that Dr Crawford was known for (freezing the diseased sections)?...
Just wondering, I've had many biopsies, so this last one was targeted, but there were still 8 or more cores total. The two referenced were into the lesion that had been shown on the MRI....
Thanks for the replies! I didn't realize that radiation was something that I could consider at my age, but I will look into it. I dread that surgery but will do it if need be. JNF, I'm in Dallas....
So I was first diagnosed in late 2013, see my history below. It was only low volume gleason 6, and I was comfortable with active surveillance. However, PSA started inching up in 2020. Recent PSA was...
Thanks for the input. This PA does several hundred a year. So I'm going to go ahead with him doing it soon, rather than wait more than a month for the Dr....
I need to have a biopsy done, but it's going to be more than a month before my Dr. can do it. The alternative is that I can have a PA do it pretty quickly. It's not surgery, so I don't know why a PA...
Thanks, Mumbo. Yeah I'm probably jumping the gun until I get another biopsy to see exactly what the situation is. But I just wanted to see what the treatment options were these days so I could start...
So I was first diagnosed in late 2013, see my history below. It was only low volume gleason 6, and I was comfortable with active surveillance. Even my Dr., Dr. Roehrborn at UTSW was comfortable with...
Also, if you want information from someone other than me, you probably should start a new thread so you can get the attention your post needs. -Jason...
PC Legacy, I am happy to discuss my experience with you. Just send me an email to [email protected]. We can talk by email or phone. However, you really need to get the biopsy results before you can...
Thanks Allen. Others have recommended Klotz's videos and he makes a lot of sense....
Are you going to meet with any doctors down there or are you just getting the MRI? I am in the process of scheduling an appointment with their multidisciplinary prostate cancer clinic. I've had an...
Thanks to everyone for all of the input. I wish I could respond to each individually, but that's not really possible. The one thing I keep coming back to is the Detroit study (I think there have...
I was diagnosed with a small Gleason 6 in December. It was in one core, less than 8%. PSA is between 3.8 and 4.4. I posted on here earlier this year with regard to surgeons, and I appreciated the...
Thanks for the input everyone. I am going to get evaluated for TFT at Univ of Colorado (If I can get anyone up there to call me back, no luck with that so far! ). If I don't qualify I'll probably do...
Roy, What surgery results did Dr. Lee give you? I think Dr. R said 98-99% of his patients were continent and 65-70% were potent. For my age, though, he thought the chance of potency would be 90%....
Robin, I had been wondering about MD Anderson, as I hadn't seen much on here about them. The multidisciplinary clinic sounds like a good idea to me. Thanks. -Jason...
Dave, My only concern with Cadeddu was that he does a lot of kidney surgery, too, and is not focused on the prostate. Did he tell you how many RARPs he had done? Did he give you his surgery results...
CuriousGeorge, I tried to email you to ask you more about your experience with Dr. Roehrborn, but your email is hidden. I have now added mine, so you should be able to email me. Thanks. -Jason...
Thanks for all of the responses. I'm so glad I found this forum. You have given me much to think about. I have an appointment with Dr. Roehrborn tomorrow to go over the results from the second biopsy...
I am 42 years old. I have had two biopsies showing Gleason 6 malignancy. The first was in late December by my first urologist. He recommended surgery, but he had only done a handful of the robotic...