Halbert, I do recall you mentioning him in the past and looked him up at the Wash U website. When I viewed his profile it appeared his primary area of treatment was surgery. Are you aware if his...
All I'd like to add is: Go to the BEST cancer treatment center near you (or travel if that is required), but it sounds like that is MSK and sounds like that is your plan. My dx was also G9 (upgraded...
I received proton radiation treatments at Siteman (Mar -May 2022) and discontinued ADT in Sept 2023. So far, blood tests are good -- PSA is undetectable, Test is almost undectable at 5, but so far...
TJ, I get what you’re saying. My wife is only a few years younger and I suppose I could say I’ve always been “lucky” (your term) that we’ve both always had a very active relationship in that...
Thanks for your input. I have been on daily Cialis 20mg consistently until just this month when my PCP reduced it to 5mg. IDK if that makes any significant difference. Docs have said nothing about...
Glen, it looks like you are still participating on this MB. You said: "I cannot explain how gosh awful I feel when my testosterone was as low as 25 except to use the word depression, anxiety,...
Thanks for the replies. NowCal, I have a hard time (is there a pun there somehow?) imagining getting an implant. I thought I was brave even considering the injections. At 68yo with Test at17 I hate...
I cannot express how encouraging it is to read your post!!...
Dx 12/29/21 GS8 or 9, depending on whose opinion you go by. Opted for Proton RT at Siteman St Louis Mar-Mayy 2022. 44 tx. Also started Eligard- 3mo injections. Zytiga added June 2022. ADT was...
My dx was nearly 2 years ago. G8 by St Lukes. Upgraded to G9 by J Hopkins. Sought treatment at Siteman (where else in STL?) and graded G8. Take your pick. PMSA Pet indicated my PCa had escaped to one...
Reimers is also my MO and I'm very satisfied with her care. I hope I do not need a RT any further, but I'll take note of his name. Looking forward to my next appt with Reimers and hoping to get off...
as the growing concerns about ADT and the increase in various health risks it can cause (cardiovascular, psychological, etc).~ Djin Tonic I took special note to the mention of "psychological" risks....
Thank you Google (for what it's worth): https://www.pcf.org/news/18-month-adt-optimal-for-locally-advanced-prostate-cancer/...
Thank you both. Michael, considering similar diagnoses, it's encouraging to see you posting 10 years since treatment. I'm anxious to see what my MO thinks about stopping the Eligard after 18 months....
I am from the STL metro area. After several consultations after the PCa dx I contacted a RO at Siteman. I cannot imagine anyone in STL going anywhere else for cancer treatment. After reading the book...
12/29/2021 diagnosis (G8 but upgraded to G9 on 2nd opinion from J Hopkin;, PSA ~ 9.5) PMSA indicated spread to one LN and to seminal vessels 03/14/2022 started 44 PRT (ended 05/14/2022) at...
I did 9 weeks of daily proton radiation therapy from March 14-May 16, 2022 at WashU/Siteman CC in St Louis and started on Eligard at the time of the first PR tx. Pretty fatigued through all that....
Thanks, Cyclone! No I’m not exercising enough other than I try to keep busy with projects. Been planning to get back to the “Y” and need to get off my *** and do it. Curious— what do you pay for the...
Thanks, Michael. Then unless there are some SE to my liver or heart (someone said their BP soared), I can’t see any reason to “fix it” if it’s not broken. You’re signature is very encouraging if I’m...
Mattam, my bad — you are correct about the start date of ADT. MARCH 14. Same date as 1st RT. So, only 7 months so far. (Seems so much longer.) The original plan was 2 years of ADT. MO did not really...
Just some background first. Dx Dec 2022 -- GS8 or 9 (depending on which pathology you choose). Spread to LN and SV shown in PSMA PET. Started 44 Proton RT on March 14, completed on May 14, at...
Glad to hear you're sailing through Covid. I'm afraid it sounds like it's here to stay, but hopefully with minimal mortality rates from here on out....
18 YEARS! YES! We need those kind of reports! Thanks for continuing to checking in here. I'm just 9 months since dx and 4 months since completing PBRT and scheduled for my next PSA later this week....
My wife and I both came down with Covid this past January. She is Type I diabetic and has immunity issues and ended up hospitalized for 6 days with very low oxygen levels and had to be on oxygen for...
I've been a Type 2 diabetic for over 10 years and have been treating it with insulin for about that same time as I did not like the SE of the oral meds. (Swan, Lucky you! Victoza didn't do a damn...
My 1st dx was GS8 but a 2nd opinion from J Hopkins upgraded it to GS9. PSMA PET indicated involvement in one lymph node. My urologist still tried to "sell me" on RP but knowing I'd still require RT I...
My RO got the PSMA approved on appeal. I believe part of the appeal was that my MRI had indicated an enlarged lymph node which was indeed malignant. I have AARP Medicare Advantage with UHC. The RO...
Olmsnhunk, I looked back and you were the member who first gave the the referral to Dr Brenneman. I re-read you’re opinion of him and can only say that you were too modest about him in your...
My menopausal aunt recommended Black Cohosh. I’m not any kind of an “herbalist” but no more HFs. YMMV...
Had my 2-month follow up since finishing PBRT. Got some good news and bad news— Good news — all my lab results are great. PSA undetectable. Testosterone 5. Liver enzymes good (watching as I’m on...
Yep, the “old” thing is relative.~ Vince So true. Check out those clips of the Stones or Paul McCartney. Then check out a couple of Biden....
[/b]my GP started me on venlafaxine ~ Rob I like what I read about the positive affect, but I also read it can cause significant weight gain. THAT I don't need. The ADT already has cost me muscle...
Thought I would chime in on my very limited experience of ADT. 44 PBRT completed May 14th. No real noticeable SE from that at this point. No urinary or bowel issues like many seem to have from...
Reading of someone who has been fighting this battle for 15 years is encouraging. I’ve only started my journey about 7 MONTHS ago and it already seems that it’s been a LONG trek. I don’t think in...
JNF— TWO YEARS of ADT is the plan. (I had stated 22 weeks to go in error. It’s nearly 22 months yet to go.)...
I started Proton Beam RT on March 14th and completed #44 on May14th. Got my first Eligard injection (6-month) with the 1st RT and took Casodex for 30 days. Started Zytiga (1000 mg) a few days after...
BTW— my experience was a real conversation with my wife this morning....
My favorite shoe style has evidently been discontinued by the manufacturer (Crocs) so I got busy on Amazon and found a few (very few in size 14) remaining. So this morning I told my wife to watch for...
Thanks guys! Michael, it is my plan to follow the direction of my team of docs. I feel I’m at a leading CC so they’re probably more in top of things than I am having just my WebMD degree. 😀 I was...
First off, I finished my last of 44 proton radiation treatments yesterday (05/17/22). Have also been on Eligard (6-mo injection) now for 9 weeks. Now my RO is referring me for consult to a MO. This...
Terry- My thoughts were that the fatigue was mostly from the ADT but the RT staff said most patients experience it by the midpoint of treatments to 3-4 weeks after the conclusion. IDK. I’m hoping it...
I have 6 more proton treatments to complete the total of 44. Approaching 2 mo since Eligard injection. I’m anxious to get past the RT and see if my fatigue lessens. Now it’s going to be a long 3...
Thanks for the many replies. Hit the sack early last night (9:30 — used to not go to bed until midnight) so I could awaken early (5:00) to head out to my 7:00 treatment. Got to the proton lab early...
Terry—just saw your questions. Siteman did not request the slides. They had pathology from St Luke’s Chesterfield (St Louis) and John Hopkins. I started Cosodex (oral) for 30 days and got my first...
FATIGUE One of the ladies on the radiology staff mentioned to my wife today that I will probably be dealing with this fatigue (which is my biggest complaint) until about 2 weeks after my final RT. I...
YES! Using different labs can make a definite difference. I was getting PSA testing using 2 labs— the hospital lab usually but if they were backed up then I’d go to Quest. Hospital labs results...
I dealt with a serious lack of libido 25 years ago just from Low-T. Weekly T-shots fixed that nicely. Having to quit the T-shots when I got the PCa Dx killed the libido again. Can't say I'm happy...
I believe the PSMA PET Scan is the new gold standard I was fortunate to get it approved before I made any final decision o treatment. It showed the cancer was already outside the prostate capsule...
John— I’m curious about where you’re getting treatment. I’ve recently started on this journey and going to Siteman and seeing Dr Brenneman, RO. Finished 32 of 44 proton treatments. As expected,...
After 6 weeks on ADT, hanging is the only thing it is doing....