I've not had any adverse side effects really. Sexual function is off a bit but it works and anyway I'm 74. As far as the question about cancer in the latest biopsy reports, I believe that the...
Hello all. After my PSA rose to nearly 9 in 2019 I elected to have SBRT/Cyberknife treatment in Oct 2020. Over the course of the next year it declined to about 0.68 and then jumped up to 1.46 18...
Paxton, that's great to hear. I did SBRT/Cyberknife almost 2 1/2 years ago now and with the (somewhat scary) radiation bounce at 18 months which came back down I've had no issues. Everything pretty...
Nuclear fusion is one of those miracles that always seem to be 10 years away....
Hey Chip, great to hear. I had Cyberknive about 26 months ago, and except for what turned out to be a radiation bounce at 18 months, everything is well. Next PSA test in Feb, fingers 🤞 crossed as...
So the Captain Obvious statement I think is good for RT patients to know, as I didn't know it and came across it almost by accident, but just in time: "Radiation bounce is a real thing and can occur...
Hey Terry, it was you who I was thinking about. your signature was one of the things that convinced me to ask questions when mine started climbing. Hopefully mine will stay under 1.0 for many years :)...
Yeah, I also responded to a post re: the importance of 2nd opinions. Dr. Martinez was, in essence a 2nd opinion. but my discussion with him was to be about me being a candidate for HDR, but he...
My initial biopsy was 4+4 and upgrade by Epstein to 4+5. My recent "radiation bounce" PSA uptick led my UO to recommend immediate treatment, either salvage RP or cryo. After a couple of consultations...
Pitgirl, very sorry about the news but you're in good hands here; a lot of very knowledgeable people to guide you. I also don't see the sense in surgery at this point. My therapy choice was SBRT (...
I haven't posted in a couple months but brief history is SBRT/CyberKnife Oct '20 when PSA was ~ 9.0. After the treatments: 1/25/21 PSA: 0.84 8/5/21 PSA: 0.68 2/9/22 PSA: 1.10 3/22/22 PSA: 1.46...
You're right about not putting my anxiety on him. He hasn't had a PSA test in at least 5 years and it was done in another city so he's trying to find it....
I'm trying to get him to remember is last PSA. But for my curiosity question: All things being equal, does he likely have a small amount of cancer now that is expressing via psa?...
My brother at 71 just had a PSA reading of 1.9. It's low and well within the range of < 6.5. (Or whatever the accepted number is for men in their 70's). His URO is not concerned at this time. He...
I held out for a little over a year and then caved. It was for sure, stressful. Glad I did as after my decision to treat, Epstein came back with 3+4....
Congratulations! I've often thought (over the last two years) that living for another 10 years will be a victory....
I was replying to a recent post from maddixone who had a biopsy that yielded a G6 along with a PSA in the 9's. Most everybody recommended that he get a 2nd opinion from Dr. Epstein as many (including...
I was at 3+3 but with high volume and my PSA was between 8 and 9 so I decided to go with SBRT/Cyberknife. Having made that decision and reading on this forum I also got the advice to get a 2nd...
Cancerfight, did you make a decision yet? Here are my thoughts: First, as should be obvious, this forum is a great resource with some very informed guys to help. Hopefully it's not too much :) One...
Hey Mel, I'll probably have my next PSA in a couple of weeks and of course hoping that the last drop is a trend. I'm really glad that I checked back in on the forum as well as talked to some other...
I watch the TDF every year, pretty much every day primarily to see the quaint little French towns and mountain scenery....
Low testosterone results in muscle loss. Ah, you're right. Didn't make that connection but now I'm curious. I'm visiting him in two weeks and we'll discuss....
Could you elaborate?...
I think he was talked into HT but I don't think he's resistant to RT. At this point my advice to him is to have a 2nd opinion with a RO that does Cyberknife in Scottsdale, Az and let him go from...
I think his dystrophy may likely take him before the hormone treatments lose their effectiveness. Maybe that's what the URO is thinking....
I have a friend who is 72 and has had a PSA approaching 10. He lives in Az (I'm in Ga.) and to date has not been very involved in his situation. Three or four months ago he said he was taking shots...
So after being delayed for a funeral I finally had my appointment with Emory Proton Therapy (PT). It was somewhat of a disappointment. For some reason I thought that PT could do a focused beam, but...
When I was first diagnosed I knew nothing of radiation SE or trade-off's with RP. I was a deer in the headlights when the URO laid out my options; RP, RT or AS. He went quickly through the options...
TWF, don't panic. The thread I started is pretty long but the upshot is that I had SBRT/Cyberknife therapy 18 mo. ago and my PSA started rising, from 0.7 to 1.46 and my docs, URO and RO both were...
I read about it several weeks ago. It apparently has to do with: "...all of whom had tumors with genetic mutations called mismatch repair deficiency (MMRd), seen in a subset of approximately 5–10...
Fingers crossed as always :)...
Epstein report arrived. As with the local biopsy report, no gleason score was assigned. He did bump down the volume of the smaller tumor sample to 10% from 20% and left the following note: NOTE: The...
So I had two significant pieces of information in the last two days of my research. First of all, even though I could not talk with Dr. Jon Coleman at Sloan (NanoKnife), a nurse called me and said I...
Guys, I have a question that's been nagging at me re: biopsies and how well they represent what's in each of the cores or divisions that shown (at least in my biopsy reports) divided into 6 sections,...
Hey Paxton, yeah, the different lab accuracy is puzzling but I guess real. As I go I'll stay with the hospital lab that I've used for three years and use one of the other labs (maybe the one that...
In light of the classification cited in one of the paper: "Prostate biopsies after radiotherapy naturally fall into four categories: negative, atypical acini suspicious but not diagnostic of...
JNF, the Epstein report should be here shortly. I have a follow-up with my urologist who requested it for me next Tue and I'd expect to see it then. I am also very interested to see what they found....
Hey Paxton, My RO thought it reasonable to wait and take another PSA reading in three months. My Urologist I think is nervous but I'm waiting. So I had a PSA test on Monday, 4 weeks after my biopsy...
Hey JNF. After being turned down for HDR by Dr. McChord and referred to Emory Medical Center for proton therapy I relayed that to my RO. His comment was that proton therapy is viable but he still...
Well, I had a consultation with Dr. McChord in Atlanta re; HDR as a focal therapy and he declined to move forward because of my history before the Cyberknife therapy of high volume on the right side...
Indeed. I was out on my motorcycle today having fun.[/quote] What bike do you ride? If it was me with this kind of news I'd be riding for a couple of days, finding a watering hole and drinking...
SS, thanks for the link. I read the paper and did note that for some reason Brachy or HDR was not available to the study group for salvage procedures, yet HIFU was. In my research for a path forward...
Djin, I'm wrong about cryo; it does target the tumor and not the whole gland....
My hunch is that it avoids additional radiation at the risk of not treating areas that could have unidentified microlesions. In other words, risks similar to primary focal treatment. Djin[/quote] I...
I believe it is not whole prostate but areas with lesions. If I get a chance to talk to Dr. Coleman at Sloan I'll be sure to ask those questions. It apparently has no SE but I've read that...
Re: IRE/NanoKnife, is there anybody on this forum that we know of that has had this therapy? I've only seen one comment on another forum from a man who had Dr. Coleman do it in 2014 but he didn't say...
I have all my reports uploaded to Dr. Coleman's office at Sloan Kettering in NYC and I'll report back on what they say about accepting me as a patient as well as the out of pocket costs for...
Djin, I saw it: 32.5 Gy: 11 35.0 Gy: 24 37.5 Gy: 31 40.0 Gy: 174 I was a bit confused as to what this meant, IE, was it just that this many men had these doses or did the 174 have better outcomes...
JNF, I just talked to my RO and he said the total dose of the cyberknife therapy was 36.25 over 5 fraction (sessions). I think this is probably standard for CK....
Terry, I did just have the slides sent to Epstein, thanks. I took a look at your signature and noticed your PSA progression after your SBRT (which I assume was CyberKnife like I had) and it shows:...