Hello SteveO, Every fellow I know feels anxiety, every time there is an uptick, even if it's slight, in PSA scores. One thing my oncologist has emphasized, over time, when I am feeling anxious ... he...
Hello, SteveO. ~ As you know, that's a very low PSA. My oncologist has emphasized that there are bound to be minute fluctuations in PSA, from time to time. That being said, would it be worth trying a...
Diagnosed in 2013, and trying some new medications and treatments, my oncologist and I met every four weeks for the past decade. Each visit included a trip to the lab. With this regimen, I have had...
Always good to see new members joining us here, but it's also very meaningful to see longtime members here, who continue to post & share their first-hand experiences. Within that, there is the...
That was a sobering ... and infuriating case. Elizabeth Holmes ... ruthless, charming, shrewd, cunning ... SHADY ... "Pride goeth before the fall." And fall she did ... CYCLONE...
I agree ... There's so many medication advertisements lately, for new FDA-approved medications, available through one's doctor. But, there's also an abundance of 'snake oil" commercials ... magic...
Hello, Pratoman ~ I have pursued the vaccines, along the way. Had a proactive conversation with my oncologist ~ and he agreed that if I got corona ~ he would immediately place a prescription order...
Something that gave me reassurance, that should now give you reassurance ... There came a day when I realized I was pursuing a multi-layered treatment approach ... in my case, it was ADT injections,...
Hello, Zeke ~ Typically, my visits to Mayo Clinic revolve around visits to 3 of the medical buildings ~ Hilton Building for labs, the Charlton Building for tests and scans, and the Gonda Building, to...
Hello, Zeke T. A typical Mayo Clinic schedule involves a day of testing, and then a consultation with Dr. Kwon the next day, when scan and test results are then shared. For my own convenience, I...
I have some of his music in my collection ... a true talent, in the realm of jazz music ... CYCLONE...
Hello, Zeke ~ In my experiences with Mayo Clinic, appointments are well coordinated. One walks from one building to another, and the buildings are in close proximity. Dr. Kwon is a proponent of using...
Thank you for posting that article, Sr. Sailor. It's an interesting read, and I hope this represents another breakthrough. CYCLONE ~ # Iowa State University...
Diagnosed in 2013, my local oncologist looks after me like a brother, but I added Dr.Kwon to my team in 2015. He is a maverick in his approach. When I needed additional treatment, he had a Mayo...
I hope this new approach sails through the clinical trials, and becomes a new & viable treatment option! Promising news! Here's to the possibility of new breakthroughs! CYCLONE ~ # Iowa State...
That's great news, Pratoman! After having my PSA assessed at the lab every four weeks, for almost a decade, I now have it assessed every 10 weeks. I might have more PSA scores in my file than most...
This article really underscores how many advances there have been in the treatment and management of prostate cancer, in the past decade. It also highlights the impact of new imaging techniques for...
Hello, Joe70 ~ In regard to your post ... I was in my 40s when I was diagnosed with prostate cancer. Then, the lung scans came back, and both my lungs were "peppered" with lung nodules. A lung biopsy...
All the treatment procedures and medications that have helped all of us here, collectictively, were based on original research and then clinical trials. When all is said and done, ongoing RESEARCH is...
On the national news tonight, there was a feature story in regard to the immense amount of time that patients in need often have to WAIT to get a doctor's appointment. A key point was the amount of...
Hello, Zeke ~ I started with Lupron, but it did not fully suppress my testosterone, so my PSA showed "spikes and flares." I then tried FIRMAGON. I had very painful & swollen site injection reactions,...
Sending supportive thoughts for healing! With caring thoughts, CYCLONE ~ # Iowa State University...
May he soar high, and I am mindful of the loss of a loyal member & contributor here. CYCLONE...
We have new members who have asked about experiences with ADT injections. This thread gives great insight, from many loyal members here. CYCLONE ~ # Iowa State University...
Sending this to the top, for newly diagnosed members. CYCLONE ~ # Iowa State University...
This is for those who recently joined us, and are facing a new diagnosis. CYCLONE ~ # Iowa State University...
Sending this to the top, for new battle brothers joining us here. CYCLONE ~ # Iowa State University...
Hello, Zeke ~ Just checking in, letting you know others are thinking of you. By now, you might be experiencing what I called the "chemo crash" which often hits a few days after the infusion. Luckily,...
Hello, Zeke ~ Glad you forged through your first TAXOTERE chemotherapy infusion. I, too, had an allergic reaction concern, so my oncologist slowed down the drip, and added a Benedryl infusion upfront...
Sending supportive thoughts your way today, Zeke, as you begin your first TAXOTERE chemotherapy infusion. Getting the first infusion done is "peace of mind" ~ as all subsequent infusions then follow...
I remember in 2013, I faced a tough diagnosis, with a PSA that was skyrocketing rapidly. What I needed, more than anything else, was to find just ONE story that would give me some sense of hope. It...
I know how uplifting a piece of good news can be. I'm happy to hear your results, Sir Swan. Happy to hear of the downward trend in PSA values. Here's to your good news! CYCLONE ~ # Iowa State...
We already have common links in our story ~ with a rising PSA, initial ADT injections, the chemotherapy infusions with TAXOTERE, and Dr. Kwon at Mayo Clinic. Dr. Kwon is the one who recommended I...
Hello, Zeke ~ Check out the screen. I just posted the "TAXOTERE SIDE EFFECTS" thread that many of us worked on together. Read through it all, and make notes of the points that you find most helpful....
Sending this to the top, for a new comramrade here. CYCLONE...
Hello, Zeke ~ We're here for you! I was diagnosed over ten years ago, with a PSA of 138. I was just in my 40s then. By the time I was diagnosed, the prostate cancer had infiltrated my lungs, as well....
We are all here to encourage you & support you! With my best, CYCLONE ~ # Iowa State University...
Started out with a PSA that was rapidly rising, during the initial diagnosis phase. It skyrocketed up to 138. That was tough news to hear, when I was still just in my 40s. Prostate cancer had already...
Hello, Sneddoh ~ We welcome you here. You will find support and encouragement here, from our members. We are all in this together, and we support each other, and we welcome new members. When I was...
Impactful treatment results! It was interesting to see the data points, with the noticeable drop in PSA scores! Your treatments really made a significant difference! Here's to that! With all my best...
Diagnosed in 2013, I have been on continuous ADT, ever since. First Lupron, then Firmagon, then Zoladex, which suppressed testosterone better for me, to help keep PSA in check. After diagnosis, I had...
Great news! Couldn't ask for better news than that! CYCLONE ~ # Iowa State University...
Best thing I EVER did was to add an oncologist to my medical team. All my urologist talked about was the ADT hormone deprivation shot to suppress testosterone, which was my initial treatment. My...
Hello, JC9sav ~ We are here to encourage and support you. I was diagnosed with prostate cancer while still in my 40s, and a PSA over 100. By the time I was diagnosed, prostate cancer had infiltrated...
Zoladex works best for me, after trying Lupron then Firmagon. Those two did not suppress my testosterone consistently, leading to "spikes and flares" in my PSA. One thing to consider ~ I get the...
I'm sending you all of my supportive thoughts and encouragement, Steve. You have blazed so many new trails in your treatments, and I follow all your posts. Gosh, is it even possible for a fellow to...
Hello, Ash ~ Both of us have common threads in our "story" ~ I was diagnosed in my 40s, with a PSA that was skyrocketing over 100, and prostate cancer had already infiltrated both of my lungs. I have...
Hello, SteveO ~ Just checking in on you, my compadre ... Has your situation improved since you posted? I assume you are doing all the "right" things to aid digestive issues ~ fresh fruits,...
Seems so many medical facilities are "landlocked" ~ so to speak. As thry expand, wings get added on ~ creating labyrinths. At the Mayo Clinic Campus, some buildings are connected by enclosed skywalks...
Hello, Larry E. ~ I follow all your posts, and I am so thankful you visited Dr. Kwon at Mayo Clinic. When I needed a doctor to lead the way with a new approach, he led the way. I have never met...