We had the appointment at Roswell Cancer center with the Medical Oncologist. We felt this was the right decision and the place to treat his cancer. His decision of course and my first choice too....
Well. Husband had biopsy of T4 on his spine. So he has Prostate cancer in his Lymph nodes and T4. We will meet with the radiologist at the cancer center first. We are going to Roswell Park for the...
Sr Sailor and Mumbo, Thank you for the replies. The RO wants a biopsy for the spot on his spine. He is just not sure and needs to be sure to focus on next steps. Okay, that is a good step. I am not...
I finally have the MRI results from his Thoracic spine, Abnormal T1 hypo-, T2 hyperintense marrow signal within the T4 vertebral body with slight vertebral body height loss and mild bulging of the...
Hello Stephanie, Thank you for the response. Our husbands do have a lot in common. We both thought that this would happen at some point as he had the EPE and a positive lymph node at the time of...
Thank you for the help, Surgery 09/2022 PSA 11/2022, <0.04 02/2023, 0.05 05/2023 <0.04 08/2023 0.05 11/2023 0.66 12/23 0.7 Dr. wanted it done at a different lab, his lab. I think he wanted to be the...
Here are the results of his PSMA Scan. Our appt. is Friday to discuss. Any advice appreciated. Thank you. 1. Status post prostatectomy. No evidence of local recurrence 2. Lymph nodes: There are 4...
Wife here and know that this forum helped me so much. I was basically on my own with research and trying to figure out the next steps. You are in a great place. Hang in there !...
JNF, yes removal did help with urinary issues. But, as we know removal has other issues at times. It was the right choice for him and moving forward is all any of us can do....
F8 and JNF, thank you We went to the Urologist that has a Cancer Center also. We saw their surgeon and radiologist. RO said because of his severe Urinary issues he would TURP first and then 45...
Husband has been on a 3 month PSA schedule since RP 09/2022. PSA has been <0.04, 0.05, <0.04, 0.05 and this week 0.66. We saw Dr. today and he will do repeat PSA and then a PSMA. Our plan would be to...
We do love our Bills !!...
Try living in Buffalo, disappointment year after year. This could be our year ! Putting your thoughts to paper is good and what helps you is the most important thing right now. You never know how...
Thank you for all the advice. We are close to Roswell Park Cancer Center and had our second opinion there and liked the Radiation Dept and Doctor Kuettel. At the time he did not recommend radiation...
Husband had his 11 month PSA test yesterday. The result is 0.05. So far, this is what we have, 11/2022 - <0.04 02/2023 - 0.05 05/2023 - <0.04 08/2023 - 0.05 They checked his Testosterone and it was...
I follow all the journeys in the forum. I know everyone helped me so much. I will have you in my prayers. That is about all I can do, but I do it sincerely. Ann...
I am so sorry for the loss of your dear husband. My sincere condolences and prayers. Ann...
You will get tons of great advice here. Everyone helped me so much with my husband that is a non talker. He took his stool softner every day and I also gave him a cap of miralax with his juice in...
Thank you for all the words of support. Life is in 3 month increments as mentioned. I have to remember that there are plenty of options, if and hopefully never will we need them. My sincere thanks...
Today's follow-up PSA is <0.04 . Surgery, sept 2022 Nov <0.04 2023.. Feb 0.05 May <0.04 I talk a good talk to Mike about we can do this and handle anything that comes along. We will deal with...
We did ours back in 2014 before husband was diagnosed. We took it step farther as my brothers and sisters are greedy vultures. I wanted to make sure there would be no issues. So, 50/50 to our kids...
God Bless Jim, you and your family....
Glen, I was so hopeful that you were done with the stricture problems. I am so sorry and all I have is continued prayers for you. Hang in there you will find the answer and conquer this !...
Glen, I am so happy to hear that you are doing well. Happy Easter !...
We are from WNY area and did go to Roswell Park for our 2nd opinion. We liked the radiation Dr. and if we ever need to go for radiation that would be our choice. We chose a different surgeon, but it...
Glen, I continue to look every day for your updates. The updates sound positive and it seems like you are doing better. I will continue my good thoughts and prayers for you....
Glen, I have been thinking of you and I know tomorrow is a big day. You have been in my prayers. Now, for answers and getting well. Good Luck !!...
We saw the Dr on 02-17. I asked about the differences in the surgical pathology findings between our hospital and John Hopkins. Our Doctor was not real concerned as he considered the differences...
Congratulations on the good news. You can see from my signature that we are on the waiting and hoping for stable PSA tests every 3 months too. He is pT3apN1pm, so the Doctors are cautiously...
Glen, i am hoping the Dr. gets you in quickly and you can start on the recovery. You have been on a long stressful journey with the stricture. Feeling sorry for yourself is normal but do not dwell in...
Glen, I have had you in my thoughts and prayers as I follow your posts. That is the way it always is in Buffalo too. The weather is so unpredictable until you have something important to do. I will...
I am so sorry you have this ongoing problem. I can only imagine the stress and how scary this must be for you. It is terrible you have to wait so long for your appt. I will say extra prayers for you....
Djin, this advice has made a difference in my thinking. I feel better and this is what I told him and our kids. I would highlight above my post, but can't figure it out, so I copied. Think of any...
Glandless, As a wife I can now say, I know more about penises than I ever wanted too. My husband had his surgery 09/26/22. His story had a few bumps but the men and women on this forum are helpful...
I read on this forum every day. I will update his signature. The husband has recovered well and wears a small shield when out. He thinks he may dribble a bit, but not really sure. It is for security....
Western NY right now is a mess. I will be glad to put 2022 behind us and move forward on our journey. Also, thanking everyone for the advice and support this past year. Merry Christmas and Happy New...
A Happy Thanksgiving and many blessings for all...
Happy Thanksgiving ! The husband is new to this journey and all the posts give me hope. He is a golfer too...
Taylor1154, Mumbo and Jack64, things are moving along, and we bought the golf pass. He also plays Pool and tonight he is going in to do a bit of practice and see the boys. That is huge for him. All...
I logged in the John Hopkins sight after I saw that Medicare was billed. I think it is almost the same as our original pathology. Same Gleason and same Grade. I see no mention of Cribriform cells as...
Mike had his follow-up with the surgeon. He was happy with the <0.04 PSA. The disappointing part was the John Hopkins 2nd opinion not back yet. The decipher not back yet either. So, the Dr. mentioned...
bbqdude, I never thought of the whistle, what a great plan. Mike had a few issues and some days were not good for him. He did threaten to choke me with his catheter at one point. He also walked out...
First PSA after surgery, <0.04 at Quest. They use the Siemens chemiluminescent method. I asked for Ultrasensitive and the Doctor said, no yet. We see him on 11-16 for our first Post-Op visit. He is...
Motown Paul, your post is exactly what I was afraid would happen. You must be as hard headed as my husband, of course I mean that in the nicest way. I think that he also was surprised how bad he...
Djin Tonic, that is true and I never took the time to think about it. An unfortunate complication for sure and the goal is moving forward. A chapter in his story, is so comforting. I knew how much...
Thank you so much Mattam and 60 Michael. I am trying my best and the support in this forum is huge. He does feel so much better minus the catheter. We are both hopeful that we are on the way to start...
Maxwellcatmom, Yes, it has been very stressful, and we had a bit of a setback with the fever, abscess and hospitalization. So, he only was without catheter for 4 days. It is like starting over today...
We saw the surgeon today the blood cultures and fluid drained from abdomen both were "No Growth". So he feels all the symptoms and fever, were due to the removal of the lymph nodes. He stressed how...
Thank you and this should be his forum and he should be reaching out. He will hear it from me and I tell him everything. We have come a long way since May with me dragging conversation out of him....