I have severe sleep apnea and have Phillips Resperonics unit, has a pan for distilled water for humidity. I have the nasal pillow and been using it for 9 yrs, assume it helps my sleep , but still...
I meant to post this link on article on brachy therapy showing longer term prediction of success at 10 yrs, no BCR versus the nadir the patient has at 4-5 yr range, may have to paste in your browser,...
Sr Sailor Thanks for the reply, if you dont mind, what has your psa history looked like, and how much does it fluctuate around the 1.0, and what feedback do get from your RO and GP. how long did it...
Hi JNF I am not using the sensative PSA test that the RP folks use. So unsure of the accuracy, they report to the 3rd decimal, Nordx lab here uses the Electro Chemiluminescence method with Roche...
Hi I thought I would start a new thread on my resutls since the"update" thread I had been using was getting cluttered. anyhow had my latest draw this morning, lab is Nordx and the std PSA test. The...
Hi I just had my yearly PSA, I was at .22 ng/ml last year 4/2023 which is my nadir. Was at .36ng/ml 7/2022 9 months before. Had the blood draw this morning and results climbed to .364 ng/ml for...
You had triple play. i had double play, HDR Brachy/IMRT Boost see my PSA tracking without the ADT. I would think your PSA will rise once the ADT wears off, to what degree?? Taken me over 4 years to...
Hi I would discuss with your RO and have another PSA test with the original lab, you may be having a bounce and the last reading could be due to the new lab, I stay with the same lab Nordx to...
Good to hear. And yes, he gave very good advice with data to back it up. Very helpful in educating people....
Looks good. I am yrs out and still have decay in PSA at my annual tests....
He should have the DRE at his yearly checkup by his PCP, also the PSA is a cheap blood test, many of us here were victims of the PSTF who told PCP to stop recommending the PSA test( until patient was...
Hi Just had another PSA test and came back at .221 so still trending down 5 yrs out of from the completion of the IMRT portion of the HDR Boost I had. So relieved after the test results....
Hi Have been reading your threads on this. As I recall you had SBRT for your treatment. Do you think the stricture was caused by the SBRT or the other surgeries or combination. Also when you had the...
You should ask you RO for more details, he should be able to provide the total dosage, # of fractions ( 28) and dose per fraction. Yes I dont have much any more either, they treated the whole gland,...
You still have a prostate. effects of the ADT wearing off. I have taken 4.5 yrs to get below 0.5, but did not have ADT during my treatment. Hang in there and ask your RO what you should expect. What...
Ah, the prep is not a big deal LOL This has been my 3rd one, so a Pro . THey actually sent a report to my chart with 8x10 color glossys showing the colon. Kind of interesting looking up the terms,...
What happened to my signature, doesnt appear? OK I see now it is there, didnt show on my first post. I resubmited my profile. Yes I am 5 yrs out since treatment, so nice to see no effects here as...
Hi I had a colonoscopy yesterday. It was my 3rd one, first 10 yrs ago ( had polyps) and 2nd one 5 yrs ago before my HDR Boost treatment, again had a polyp hence the 5 yr interval. Anyhow I spoke with...
I remember some of Sonny's posts, always contributed and helped folks on the forum. Condolences to his family and friends....
Diagnosed at 55, currently 60....
Nola Be patient, takes time, just make sure to use the same lab for the follow up PSA tests. I just noticed you had ADT with the Brachy. I would of thought your PSA would of dropped fairly low just...
Good to hear!...
JNF Yes I hope so, at what point should the Nadir decay below 0.1, I follow the updates by folks here who have radaition and watch their progress. I was 55 when I started 5 yrs ago. Dont really see a...
Guess I agree, not a fan of todays music, rap etc. Funny, have newer Mopars with U-connect. Been ripping my collection of Cd's onto a USB, pop it in and enjoy all my old stuff from 40 yrs ago LOL...
Congrats, another great result!...
Yes, I am thankful. Only the brothers and significant others understand the PSA anxiety from the tests. I visit the forums but dont have much to add to the good info others provide here. Update my...
Hi Just another update, played the Russian Roullete again this morning, had the blood draw and got the results in Mychart, was 0.36 ng/ml down from 0.55 ng/ml last Oct. So still going down and still...
Very sorry to hear, God bless you and your family....
Sounds like heat exhaustion. Try drinking before, and consider doing portions of the lawn on seperate days. I doubt any of the kids around me know what a lawnmower is, either the parents do it or...
My RO is part of a Group of 5 RO's, they treat all kinds of cancer including prostate. They have 4 locations with Linacs. The RO who treated me, handled the HDR, note he had done over 1500 LD...
Hi I had HDR then the IMRT. My doc does the HDR first and inserts the Gold Fiducials during the HDR when they do the catheter insertion. They act as land marks when doing the IMRT planning and IMRT...
I would send your slides to Hopkins to get a 2nd opinion on the biopsy. Would also try to talk to different RO's who specialize in each of the treatments. Also look for someone who has done a lot of...
might want to check out this link https://prostatecancerinfolink.net/2019/10/01/adjuvant-similar-to-early-salvage-radiation-outcome-in-meta-analysis/ TA has a lot of good info on that site...
I was treated HDR Boost about 4 yrs ago. Follow up PSA tests were std PSA at NorDx, I have used same lab and same test. This year my RO handed me off to my PCP and just had latest results at ..55. I...
That is great to hear!...
Well when the PSTF under the prior regime 13 yrs ago makes bonehead recommendations, these are the results. I read that decision in 2008 to change the guidelines to discontinue PSA screening resulted...
Good to hear, keep us up to date, we appreciate when people follow up....
Hi Sorry your here. Tough set of cards you have been given. I would hang around here and ask questions and educate yourself on treatment options, there are quite a few folks who have battled this...
Ask if the 7 is 3+4 or 4+3 and also what % is the 4 pattern in the sample. Would also ask to send the slides to Epstein at JH for 2nd opinion. Hopefully you are 3+4 with low amount of 4. Time to...
Hi Havent posted much but still follow the forum. Anyhow just had another PSA test and it came back at 0.55 ng/ml. Last year I was 0.95. So very happy about the results. I am about 44 months out of...
Very sorry to hear, condolences to his family. Mike...
You have Dr Kaplan for SBRT cyber knife at Beth Israel....
I decided on HDR Boost, mainly because I felt the radiation treated a wider area than surgery and I had a 30% likelyhood of EPE According to the nomograms. I had consults with 2 surgeons, my Uro who...
Had 2nd pfizer shot Friday, slightly sore on upper arm for about a day. so between having covid and the 2 shots should be good to go,cant wait to end the mask BS, everyone who has had their shots or...
Had covid in January, slight cough, big nothing burger for myself and wife who also got it. Wife has had both shots since she works for law enforcement. I got my first shot today, pfizer. feel OK so...
If I understand correctly, prior to HDR your PSA was 12.68, and roughly 1 yr post treatment you are at PSA of 4 or about 75% decrease. I was PSA of 9.6 and at 9 months was 2.7 or 82% decrease, this...
Atlantic Do you have HDR Brachy with IMRT boost as an option? a mono therapy HDR can treat the prostate and include 5mm around it, can add IMRT and increase the volume. My plan included +5mm with the...
I assume you recently finished IMRT as treatment, dont see and data or anything in a signature? I would stay with one lab and use them for future tests, also assume you didnt have ADT. your PSA will...
Per side effects, currently just more frequency, havent had any major problems thus far, no blood in urine or bowel problems. on sexual side just less sauce so to speak. Did have more effects right...
Have not posted in a while, still follow the forum. I just had latest PSA results, 2yrs 10 mo since end of treatment, HDR and IMRT, no ADT. 2 fractions 19gy and 25 fractions 45 gy Finally under 1.0...