Thanks for the supportive comments. Will keep you posted and hope many others can experience similar success. This treatment is so new, seems like we really don’t know why it works for some and not...
I completed six Pluvicto treatments in December 2023 and returned to Mayo in Rochester on January 31, 2024 for a Choline Pet scan to see if it would reveal any non-PSMA PCa. My doctor reviewed the...
Mumbo, I’m on Lupron and Nubeqa. Doctor said I’d likely stay on Nubeqa for about one year after the Pluvicto treatment....
Just completed Pluvicto treatment #3 today at Mayo, and received results of a new PSMA Pet scan from yesterday (after two treatments). Major findings: several PCa sites have disappeared entirely and...
Thank you CYCLONE for your enthusiastic support. I had my blood work done this week, 3 weeks post-treatment #1, and everything looks to be in range so treatment #2 is a GO on July 6 in Rochester, MN!...
What a special treat to meet with Steve and compare our histories, perspectives and just talk with someone who is on a similar path, and can understand and empathize. It will be so valuable for both...
Looking forward to it! Lots to share with each other… Rick...
Great! See you there…8 am or 9 am ( I had suggested 8 but can work w 9)....
Can you direct message me on this site? I’m not sure how to do it. I’m off island through Sunday. How about a little coffee/breakfast at Black Dog Cafe on State Road 8 am Wednesday?...
I've had low to undetectable PSA since diagnosis in 2019. It's a sign, I believe, of a more aggressive cancer. I had a biopsy done in 2022 and it came back as adenocarcinoma, but my doctor says it...
You bet. I will update as I get more information....
Been a while, so thought I’d provide an update. After six rounds of docetaxel + Carboplatin, which ended February 28, my tumors appeared to have shrunk a bit, and reduced their intensity (SUV), but...
Thanks very much for the information, very helpful. I will follow up as advised with AZ....
Just completed six rounds of docetaxel+carboplatin last week and will be seeing my doctor at Mayo on March 30 for further scans to gauge progress and evaluate next steps. Meanwhile, my oncologist at...
Thanks CYCLONE for thinking of me — just getting packed for the trip from Boston to MSP! Hoping that snowstorms don’t delay me…have been lucky so far this winter. No major complaints so far, just the...
Thanks to you both for your encouragement. As you suggest, I’m going one step at a time. I’m exercising, eating well and living very much in the present. I’m with Kwon @ Mayo and very, very happy...
Checking in after my first three (of six) chemo (Docetaxel + Carboplatin) treatments, also on Lupron and Darolumatide (Nubeqa). Thanks to all the great advice on this site, I've had minimal side...
Thanks for the advice — am taking it to heart, and more. I had my first chemo treatment on 11/10. On 11/17, my Absolute Neutrophil # was 0.31; as of 11/21, it’s dropped further, to 0.18. MY doctors...
Thanks Mumbo. I appreciate the insights. The Levofloxasin is definitely a precaution, just to build up some resistance if I encounter some germs out there. MY question is about the WBC and how low do...
I had my first of six chemo treatments (Docetaxel + Carboplatin) on 11/10. Took my blood test yesterday. My White Blood Cell (WBC) count dropped to 1.15. My doctor’s office called and put me on...
Received my first treatment of Docetaxel + Carboplatin on 11/10 from Dr. Hugec at MN Oncology in Minneapolis. Am scheduled for six treatments (one every three weeks), with blood work and PSMA Pet...
Cyclone, what a resource…appreciate the thread and, particularly, your detailed contribution. I have printed it out! Thanks, Mumbo, for the weather report. We will pack accordingly! Will keep you...
Quick update -- I followed Cyclone's advice about communicating with my current doctor, and I've now officially switched horses, so to speak. All went smoothly, no ruffled feathers. I'm flying to MSP...
I talked to Kwon this am. Bottom line, he is wondering why I’m not doing chemo yet. Said he would recommend taxotere plus carboplatin, do three rounds, then do another PSMA scan to see how it's...
I believe the FDA approved the expanded use earlier this year. All the feedback has been very helpful and I will try to create a communication channel between the docs and assess the risk of waiting...
I would welcome your thoughts and advice on a quandary I'm in. My doctor at MGH/Boston put me on Lupron in early October, and has scheduled me to go on Nubeqa by mid November, with 6 infusions of...
Thanks for the feedback. I will continue my research, and take advantage of the open enrollment period. At the every least, Nubeqa appears to offer a free, first month trial…and then the charges kick...
Are drugs such as Nubeqa covered under Medicare Part B, or is there a big out-of-pocket cost because it's a specialty drug? Just trying to get a handle on my treatment costs. My understanding is that...
Thanks to all of you for your helpful comments. I’m gaining some valuable insights and, in reading your own stories, hope and inspiration. As you have been, and still are I’m sure, this process is an...
As I said in my last post, I went for a CT scan last week and now have the results. I'm including them below in their complete form so I can realize the maximum benefit from the experts here (which I...
Thank you Melaine for your comments. I had also been concerned that my cancer was neuroendocrine so was relieved when I got the call earlier this week that it was normal, adenocarcinoma instead. In...
NewspaperLover, thank you for the sage advice about the triple play. Excuse the naïveté, but is there any reason why Lu-177 would be less effective before all the other treatments have failed, and...
Cyclone, thanks for sharing your history, and words of advice & encouragement. I take them to heart. I did reach out about six months ago to Dr. Kwon but I did not hear back. I will try again. Thank...
Mattam, thanks for the link. So exciting to read Steve’s story, and the potential of Pluvicto, and the whole area of radioligands Gives me a glimmer of hope. Your post didn’t seem matter-of-fact, so...
Thanks for your very frank response and assessment. One of the issues that has arisen in my discussions with docs is that they say the profession doesn't have enough experience reading these PSMA Pet...
Thank you in advance for reading my story, and offering me whatever guidance you can. Understandably, I'm a little nervous writing in. Have kept news of my disease confined to close friends and...