.My husband is already responding extremely well to Lupron/Abi/Pred (Started in December and undetectable by January}, By the time he started IMRT to pelvis with extension to para aortal lymph nodes...
Hello, My husband has psma avid confirmed cancer mets to three subcentimeter retroperitoneal lymph nodes. We chose surgery initially knowing we would have radiation as a fall back given his high risk...
Hello, I am thinking of you and praying for you and your husband. Our husbands are so similar in their progression. I think your husband may have micrometastatic and oligometastatic progression. Has...
I updated my husband’s bio if you want to review it. Praying for your husband....
Hello Wife1, My husband’s psa has been continually rising from 0.06 on 9/1/23 to .270, and I demanded action be taken. His PSMA scan was done at .173, and it showed small radio tracer avid...
Djin, thank you for taking all the time to send this information to me. It is very informative. Interestingly, my husband has been battling severe inflammation in his joints….now I can see that may...
GoBucks, Mattam and Nels, Thank you! It’s baffling but at least we are reassured it didn’t rise again. Happy Friday! Stephanie...
Hi friends, You were all very helpful to me with my concern over my husband's post prostatectomy one year anniversary three month rise from <0.04 to 0.06 in three months, and then to 0.10 in a week...
Mumbo, thank you. I feel reassured but watchful....
Thank you everyone. We’ll see how it goes. My husband has a second opinion consult at Sloan Kettering at the beginning of October, and this week we are meeting with an MSK affiliated radiation...
Thanks Stephen, I read your signature and see that you had persistent psa after surgery and then a rise after radiation. I am glad to see that you are undetectable now and pray the trend continues...
Hi Mumbo, We actually have Aetna Open Access and can see any specialist without a referral. Our issue has been that specialists will not see him without a referral, which makes things more difficult....
Thanks again Djin for being the voice of reason. I appreciate it....
Thanks for that JNF. We are very familiar with Atlanta ans Notthside ourselves after living in Suwannee (Gwinnett County) for three years back in 1994 - 1997....
Hi Djin, I feel absolutely ill that we were not offered the adjuvant radiation. The idea was dismissed by the doctor as soon as I brought it up. If we do not get anywhere at our Tuesday appt, then we...
Stampede, Yes, you are correct. The ADT can initially cause a surge and you wouldn’t want to operate during that time. The date he chose was his best judge for the pca to be withered and sick....
AZ guy, Thanks for your reply. It is good to see how well the quick adjuvant treatment worked for you....
Hi Djin, They could not score my husband’s final pathology due to neoadjuvant ADT prior to surgery to keep things in place and shrink the prostate. The ADT changed the tissue architecture, so the...
JNF, Pratoman. and F8, Thank you. His surgical oncologist considers 0.20 to be biochemical recurrence, not 2.0. Since we are seeing him on Tuesday, I think it is wise to send a message noting our...
Mumbo and Fiddlecanoe, Thank you! I have done so much research for the next steps….(paying attention to doubling times, adjuvant, early and salvage, ADT before during or after, space oar, etc.) I am...
Thank you Cyclone, I really needed some positivity and hopefulness this morning. I hope they will not make him wait too long before initiating further treatment. That is my biggest fear of all. I...
Hi Steve, The test was done by Quest Diagnostics but at a different location than we normally use due to scheduling issues. Do you think that would make a difference? We are seeing his doctor on...
JNF, Thank you so very much for your response. You are correct on all points. I very much want my husband to get established with a radiology oncologist and medical oncologist asap. The issue is the...
Hello, It’s been a year since my husband’s nerve sparing prostatectomy at Yale. His three month PSA’s have been <0.04, but all that changed today. His latest,which is one year out,is 0.06. I count...
Hi Jack, Thank you for looking this up for me. I appreciate having a second look. We will message his doctor on Tuesday! Thanks again! Stephanie...
Hi everyone, my husband has been on three rounds of strong steroid treatments to help with pain and inflammation from either a herniated disc in his neck or severe bilateral carpal tunnel. He is...
So happy to hear this news!!!!!! Huge congrats, and may the less than signs never leave you!🙏🎉👏 Stephanie...
Hi Djin, I love your attitude and I agree with the testing options you are considering with your Uro so you are armed and ready if your psa rises to a level you need to treat. Hopefully, this is just...
Hi SandyMilo, Research all you can, and get him to a major cancer center. Of course there is lots of hope. I am only into this journey a little over a year with my husband, but I do understand much...
Wonderful news. So welcome to see coming from the wife of a Gleason 9, stage 3 patient. I pray the zero detection remains forever for you! Stephanie...
Congratulations!!!!! Celebrate Big!!!! It gives me hope for my husband, that even if first line treatment does not cure him, there are so many other tools available that can! So happy for you!!!...
Such happy news! What a way to start the summer!...
Hello, I think you need some medical attention right away, and if the cancer is confined to the pelvic area, salvage radiation combined with ADT could possibly still be curative but you must act now....
I agree with Mumbo, definitely do not delay on setting up the appt. in Seattle. If they can find the source of the PSA, they can spot radiate. There are also many options to bring that PSA back down....
Boomer and Tudpock, Thank you so much! Wishing you both a stress free wonderful summer!☀️...
Thank you 60Michael,Cyclone, Jimlion, and Mattam….your positivity means so much. I am praying for long healthy lives (or as healthy as can be for you all. So happy I found this place! Stephanje...
Hello friends, I was delighted to open my husband's latest PSA result and see the same undetectables. I get so scared approaching the three month testing times. I am a realist given my husband's...
Good luck to you and wishing you a very long durable remission! Will follow your progress!😊...
Wife#1 Yay!!!!! I am cheering so loudly for you and sharing your joy! I am sure when the last reading was 0.05 you were anxious that it may be rising. This proves your husband’s body is dealing with...
RaquetMan, Please don’t give up. My husband was dx Gleason 9 with Stage 3b. He had up front hormone therapy then RALP. You may just need hormone therapy and possibly radiation which often has less...
Thanks Djin, You are able to clarify things so well. I really appreciate it!...
Thank you Djin for this. I am always on the search for new studies on the prognosis for Stage 3b, which my husband was found to be after his RP Pathology. I will be forever stumped how his SVI...
So happy to hear of his gains. Praying for him to continue to get stronger and get home living well!...
Excellent. So happy to hear! May he continue to do well!!!!!...
Hi Jack, My understanding is that eventually the first generational ADT drugs lose their effectiveness as the cancer becomes resistant to them. In order to stretch out the first generation drugs for...
Thank you all for the congrats! It means a lot! We were shocked and thought it could be a mistake. We won’t be surprised if we have future SRT/ADT due to my husband’s Gleason 9 and Stage 3b We are...
Just checking in with a six-month post RP update. Still >0.04 six months post RP. With my husband’s G9 and Stage 3b path, we know the bump ups can start anytime now, so we are celebrating the good...
Please reconsider. My husband has been treated for Stage 3B prostate cancer. He is age 62 and his starting PSA was 47. He had a robotic prostatectomy with nerve sparing, and three weeks later was...
Hi Dr. V, My husband’s diagnosis was so similar to yours. What I still don’t understand is how he could have bilateral SV invasion but no ECE. He was predominantly filled with G6 and 7’s but they...
I have been doing so much research, talking to so many patients and reading so many journals and diaries. One of the biggest pieces that brings optimism is that most everyone I have spoken to with...