Congrates...
Just started Xandi while on lupron 3 weeks a go. PSA drop from 1.4 to .5 in first week. SE constipation and weakness so far. The second SE showed up while 30 miles from home diarrhea....
Just follow Dr's advice. Most are done without issues. No real pain with mine just discomfort for a day or two....
Similar PSA and still going 18 months later. I expect a few more years and I am 71. Someone here with more experience with join in. Hormone therapy works well for most....
Yea thought that might be the case Thank you...
My PSA was 1 and free was .79 any info for folks on hormone therapy. I hope I got this right as both are going up....
Will soon be on one and yes I see and oncologist he wants me see a radiologist first urologist wants to start 2 nd gen now . Will start shortly. I have other issues(osteomyelitis) that might impact...
Stop the casadex early 30 days i think. Yea was hoping for longer response with lupron. My doubling rate is troubling to me 30 days. Went from .1 to 1 in 3 months but fewer mets and prostate shrank...
Waiting for radiologist to call, Thanks for the reply...
DX 8/21 PSA 32 HT 8/21 Casadex Lupron PSA 1.4 9/21 PSA .41 10/21 PSA .3 12/21 PSA 6/21 .1 PSA 9/22 .1 PSA11/22 still .1 PSA 1/23 .4 2/24 .5 2 bone scans 1 ray 2 MRI w/o contrast DX all over the place...
PSA on the rise after a year of .1. Jan 23 PSA .4 Feb PSA .5 March PSA 1 MRI shows two spots on spine . Prostate has decreased in size as have other mets. Next radiation specialist visit to address...
Great news...
I wish I just had Georgia on my mind. Right before my daily hot flash I get a strange feeling of confusion then the hot flash. Anyone else get a strange feeling? Best luck to all...
Thanks for for replies . Just a nervous first timer and sweating the small stuff. Good luck to all...
Thanks Redwing...
1 year on ADT and PSA .1 but Testosterone has gone up from 11 to 14 . Still good but is it a sign to be leery of? Trying to get into Stanford soon. VA has suggested 2 nd line ADT after old leg bone...
ADT has made a semi healthy 70 yo the same as you mentioned. The loss of interest is not fun as being retired leaves a lot of time to ponder on the situation (depression). I had hep c and Interferon...
Thank you....
What has been the lowest PSA on folks whom have had Lupron only? Is .1 the bottom to expect with still having a prostate. Thanks in advance...
Thank you Todd. Hoping to last (on ADT) till a cure is found. Well back to living as that's all there is to do. My Ono asked what I was doing to get my .1 and still have a prostate ; I replied living....
On Lupron since Sept 2021 psa 32 now .1 last 2 tests . Hot flashes yep, tired yep and alive yep. learning to live with it and waiting on 2nd drugs. Thanks for having this thread. My question for...
PSA still .1 hoping for a looooooooooog run. Lupron SE manageable Best wishes to all...
Hang in there, I'm right behind you. Enjoy every moment and relive the past that mad you smile. Love to all...
Thank you for your responses....
Any folks taking a second drug with Lupron who are new to PCa . My ono wants to start adding drug not sure of name yet will find out today. Lupron has lowered my PSA from 34 to .2 in 5 months. The...
Never understood(I do now)depression and the Holidays sometimes go hand and hand but they can. Hope things workout....
Lastest PSA .2 . Surgery out for now. MRI's 2 one confirmed mets one no mets. Two different machines one agreed with xrays as no mets one of thorax said we got mets. So adding to lupron one of newer...
Yep I'm finding these scan are not as accurate as I thought. Thanks for the reply. Merry Christmas to all...
2 MRI (w and w/o contrast) spine and thorax inconclusive on thorax clear on spine. One ono suggested surgery might help with cancer load another said surgery not that good of an option. Still pain...
69...
Daytime flashes not a problem but at night they can wake me up. Mostly short duration at night ....
Testosterone 11.14 as proven by 12 hot flashes a day. Any clue on how long the hot flashes intensity changes over time? Thanks to all...
I feel ok no pain. Correction PSA .41 free PSA .3 . I have cancer so the ratio is probably a mute point. Hope to find out with an MRI how widespread the beast/blob is moving. Thanks for the reply...
PSA .3 yesterday and s aw oncologist and setting up MRI. Happy Thanksgiving to all...
"The bone scan showed two small "hot spots", which subsequent x-ray plain films showed not to be evidence of metastases. They were either prior injuries or arthritic." Copied and pasted from Redwing....
Bone scan Friday 11/5 came back same as earlier one( multi mets). Next oncologist and hopefully figure this thing out. Interesting is I had an MRI on my leg(osteomylitis active) and no mention of...
VA doc seems ready to do more testing if scans are inconclusive. Me being retired have ability to see other options not having to work around employment. So let the journey begin. Interested in folks...
VA setup new bone scan for Friday. Dr was concerned as surgery is not an option with several mets. ....
Already had bone scan, ct scan, biopsy and xrays. Next up VA Nov 1 uro for advice on treatment. The conflict with bone scan is the issue. X ray said no and Uro Dr confirmed no mets hope to have VA...
Thanks for the replies. All the info helps as the stress of deciding and not wanting to rush. Hopefully the HT allows some time to make a decision. Again Thanks to all...
JFN, I was hoping to avoid surgery (5 major ortho already). My leg infection showed up on the nuc scan and tech just noted it as a possible met. My body has been banged up thru accidents more than...
Pratoman Thank you for your reply as this is my current situation just waiting for a better scan/test to confirm the mets situation...
Nuclear scan showed mets but x ray said the opposite. So 2nd opinion or third. Both uro and uro surgeon said I was 2.5 on a 4 grade system. All confusing to me. Surgeon did not accept patients with...
20018 66 y.o. PSA 12 on routine check symptoms just a lot of peeing and urgency at times. 2019 12.2 Dr said biopsy was an option but agreed to AS next PSA 12.5, 3 months later 10.6 and then 3 months...