so you're saying you went bald on ADT? or you were already bald but hair grew on your head while on ADT?[/quote] No, when I started treatment the top of my head had wisps of hair. When the hair fell...
Hi Jack, Im just starting my 5th year on ADT so I figured I would give my experience. Basically my body hair all fell off other than my groin. My armpits, legs, arms everything. But strangely I had...
Given my treatment plan, my nadir was set at 0.0, even though that was influenced by Lupron. So my Dr has me taking PSA tests every 2 months and is planning the PSMA scan if I get to...
As promised, here is the locations Pylarify is/will be available -> [/url]https://www.pylarify.com/ordering-and-reimbursement...
I am seeing a specialist at Tulane (New Orleans) that has the Pylarify available for PSMA scans. Just hoping I wont need it or my insurance covers it before I get to a PSA of 2.0. Currently at 0.7. I...
Actually the FDA just approved a second drug for use in conjunction with PSMA scans that should have much broader availability....for example this is available in New Orleans, which is much more...
Hi Redwing57, thanks for that feedback, the more data points the better. Part of my skittishness was because my urologist wanted to immediately start lupron again, while my oncologist wasnt...
Hi, I guess I never posted to this thread, but I am also a G10. Introductory post here -> https://www.healingwell.com/community/default.aspx?f=35&m=3399522&g=3989734#m3989734...
Thanks Sr Sailor, can you talk about the progression to 1.3 ng/ml ? Did it slowly inch up while you sweated bullets and then leveled off....or was it more like a step function ? That's the toughest...
Yes, Nancy ! She did my IMRT and jointly did the LDR w/my Urologist. I actually like her, but I'm sure her credentials dont match up with Dr Sartor. I guess we're neighbors. I'm in South Forsyth by...
Thanks for the feedback guys, definitely helpful. I was on a 6 mo testing schedule, but that changed to 3 mo after this latest result. So I will be following up in 10 weeks or so for the next test....
Hi all, wanted to get some feedback on my latest test results. Quick recap, diagnosed G10 in 12/17, went through IMRT, LDR and 2 years of Lupron. Lupron treatment ended in 2/20. Shortly after my T...
@DjinTonic - I didnt realize you were originally diagnosed G10 ! With your always thoughtful input you can certainly be my sidekick !...
Ii was so happy to get my latest lab results, I thought I would share. I am a G10, as far as I know, the only G10 on the board without mets. Quick recap, diagnosed in 12/17, went through triple play...
@DjinTonic My PSA bounced around between 3.0 and 4.0 for a few years and I had multiple DRE's which were negative. My PSA then jumped to 6.0 and then 9.7 on a re-test before I had the biopsy. Clearly...
Hi Stecruz, February will be 2 yrs on Lupron. As a G10, I didnt have much choice but I did start with a lot of pushback on ADT, particularly after my first 3 month shot. But now I have adjusted. Yes,...
randyd, Geez, I didnt realize I/we were so special to be the few G10's. So I guess my question about G10's without mets is a longshot. Totally understand your position on ADT given your situation....
So far so good on the treatment. My PSA has been undetectable since radiation treatment. My 6 mo shot of Lupron takes me to August 2019 which will be 18 months. Figure I'll do at least another 6...
I was diagnosed as GS10 in Dec 2017. Feel lucky that no mets were found, but I seem to be quite unique to be GS10 with no mets. Are there others ? I have gone through IMRT, LDR Brachy and ADT. My...
Interesting info about your URO comments about local vs outside recurrence. As a VHR that went through IMRT and LDR brachy this is the kind of info I starve for. Is there any decent data on outcomes...
This has been one of my biggest frustrations with treatment. I went through IMRT and LDR brachy very recently, but there is almost no data on impact of ADT in concert with the 2 radiation treatments....
Thank you both for your response. At this point I guess I'm just looking for confirmation on my current treatment plan, but it appears there is no clear cut answer on this one. I will likely continue...
Hi all, this is my first post. I was just diagnosed with PC in Dec. Since then I have already started ADT and am almost halfway through a 5 week session of IMRT. Approximately 3 weeks later I am...