I'm in a very similar situation. Recently did PSMA scan at 0.5 and didn't show anything. Should I have waited to closer to .1 ? Maybe. High deductible insurance plan. If it keeps going north and...
Thanks for all in the input! I'd be curious to know what the lowest known PSA level was that metastasized and what gleason and stage that person had....
After 7 years post surgery my PSA started to move up and down then the last few times started an upward trend with a doubling time of around 15 months. It got to 0.504 and I decided to do the PSMA...
I really wish there was more info available regarding confirmed benign tissue....
Yes, correction made. Thanks!...
Then we had the scan scheduled and at 0.302 and then canceled when it went down 0.277 because my Dr. said sometimes anything below 0.3 could be inaccurate. (I'm paraphrasing.) Of course I was more...
Yes, we were ready to start and when we checked it one final time, we decided to hold off because it started going down....
It's sorta odd that one and the next two were done at another facility....
I'm in a similar situation although mine started moving after 7 years surgery, doubling time was around 15 months. Mine has flucuated a few times but the last few check its been climbing. At first...
Good question! I'd be curious to know as well....
Hey Tom! I'm similar in that although I was a G7, one margin was less than 1mm from edge. My PSA started changing at 7 years with a doubling time of about 15 months. Mine is a little weird in that it...
It could be benign tissue. I think that's what I'm dealing with. Mine has gone up some after being undetectable for 8 years or so but is fluctuating, up then down. My Dr talked like being it's up and...
Thanks Djin. Correction noted....
Thanks F8. I wasn't aware salvage radiation was an option before 0.2. I was ready and willing at 0.2, then on having the recheck ,the PSA went down. Thanks again....
Again, being that most attribute 0.2 as recurrence time, we were waiting for that number to then discuss radiation. Any before could simply be benign tissue forming PSA, and could still be that....
Well we were discussing radiation when it got to 0.2, then after it dropped 3 times, we thought it was benign tissue forming PSA....
F8,to clarify, I was undetectable for 7 years. I was referring to the doubling time post that. Undetectable PSA since at <0.03 until 8-2018 0.04, 1-2019 0.05, 4-2019 0.06, 7-2019 0.07, 1-2020 0.09 7-...
It was actually 0.302. It's also worth mentioning that the tests have been at 2 different places but they both showed the dips(one 0.18, the other 0.15) and each showed a rise, (0.2 and 0.3.) I also...
Pratoman maybe he's considering being undetectable for 7 years, then slow doubling time, then the dip. I don't know....
Thanks for the kind input. But what do you guys think about dropping from 0.2 to 0.18 and 0.15 then back to 0.3? I would think a recurrence would mean cells are multiplying and it would keep going up...
Basically undetectable PSA for 7 years then went up with a doubling time around 12-15 months. PSA was slowly creeping up til 0.2 finally came. Was then discussing radiation options with Dr's. It was...
Mine started to rise after 7 years of undetectable. When it finally hit 0.2, we were then seriously talking radiation. Then after checking it again, it came down to 0.18 then 0.15. The Dr. said if it...
Mine also started creeping up after about 7 years. Hit the .2 mark and was in talks with Oncologist then it dropped to 0.18 a few months ago then 0.16 this week. Hoping for benign tissue. Best of...
Although no mention of age, his numbers look very similar to mine. My PSA did hit .2 and I was considering salvage radiation and also did Petscan which looked good, then it dropped to 0.18. I'm doing...
I think some may have misunderstood when I said that it had came down to 0.18 from 0.2. Of course number wise it's not much difference. I was just glad that for the first time it did go in the other...
Thanks Robert!...
While having undetectable PSA for 7 year post Robotic surgery, it finally started creeping up from 0.04 in July 2018 to the dreaded 0.2 this last November. I had been hoping that it would start going...
Thanks Djin!...
I'm afraid I'm heading towards a recurrence with PSA at 0.15, Free PSA at <0.02 and %Free PSA at 13. I've never given much thought or attention to the Free PSA numbers. Are those a factor in anyway...
https://www.yahoo.com/news/baseball-legend-cal-ripken-jr-164700933.html...
Last year I was told that there was blood in my urine (microscopically). I have never saw any. We did the scope of the bladder and uretha and everything looked normal. My mother, sister and niece...
I have also read different numbers as to when to start. It may vary per individual as to how long it took the PSA to start moving and how long did it take to double. There may be other factors as...
Melaine, I'm in a similar situation. My PSA didn't move for 7 years then started creeping. My Dr. said they see that often and sometimes it's actually benign tissue that has formed PSA. Now that I've...
Jronne.. I wasn't aware of stopping suppliments! I have taking a multivitamin religiously for decades. Good to know!...
Djin... I remember my clinical stage being T2c ( both sides), 3+3 and 3+4. I wish I had the original path report but I'm sure they said it ended up 3+4 and 4+3.I have read that if they suspect that...
Thanks Jronne, I corrected my previous reply...sorry for any confusion... it's been a long day! Thanks for pointing that out. I hope it make better sense now. I think my margins were also less than...
That would be me. My Dr. was not too concerned when mine started moving almost at 7 years. He said they see it quite often where some benign tissue was left behind. He said a "significant" recurrence...
I'm in a Very similar wait and see situation. Mine has started creeping a bit. I was 47 at time of surgery. My Dr said they see this occasionally happen and he predicted it will stay there and move...
.1 is detectable correct? Not .01 right?...
BlackJack, I'm a little confused by your statement," If PC has left the prostate, surgery will NOT cure it." According to The Walsh Book," Today radical prostatectomy provides excellent cancer...
I'm in a very similar situation. After 7 years mine went from <0.03 to .04 and recently to .05. Testing again soon. Best of luck!...
Thanks guys for the input! I will get tested again in 3 months....
JNF, I thought anything below .2 was undetectable....
While still undetectable and barely going up, it's only natural I guess for me to be a little concerned. While being <0.03 for 6.5 years, 7 years went 0.04 and then the recent 7.5 test was 0.05. My...
Hey Jason! Sorry for the news. I was also diagnosed at 47 and am doing very well. I hope you do well also and will be encouraged!...
Thanks guys!...
For the last 6 years my results have always been <0.03, until recently. My results this week were 0.04 with no < sign. I went to same place I've always gone to and I'm not sure they are using a...
I was also a pT3a... going on 7 years ago! Best of luck!...
I was also a T2c prior to surgery. I did end up at T3a after surgery with no radiation. 6 years out with undetectable PSA! Best of luck!...
I was also less than 0.1..... 6 years undetectable!...