The book, written tag-team style, is a provocative and frank look at the bewildering world of prostate cancer, from the current state of the multibillion-dollar industry to the range of available...
American Cancer Society changes course on screening quoted below: http://www.nytimes.com/2009/10/22/he....html?_r=1&hpw related article, with graph:...
I am one of those who was talked in to getting a treatment that was not necessary. I was a perfect candidate for watchful waiting-- Now I suffer from severe incontinence that has nearly wrecked my...
webstergl, I did consider the AUS and sling as well. I researched it extensively, and visited several doctors. I had a session with the doctor who pioneered the procedure in NYC, Dr. Blaivas. He has...
corvetteman, You are only a year out from your surgery. I think you can probably still expect some improvement on the ED front. However, that was not much of an issue for me. Oftentimes I wish that I...
Oh and BTW, the contigen injection seems to have lost it's effectiveness now, a year later....
It's been awhile, but I am back. I am back to work, but still dealing with the challenge of staying dry. My life appears normal from the outside, but the hassle of dealing with incontinence is with...
I would like to contact those who have had a successful sling implant to find out who their docs were. I am in the NY/NJ/PA area and would consider having the operation if I could find an experienced...
Hi all, I've been absent for awhile. Jerryv, thanks for the suggestion about Afex. I tried that system, and still use it from time to time, but it leaked on me a couple of times and I found that very...
just a quick update. I have moved to a different state, no longer under the care of the surgeon who did my prostatectomy. Just as well, I believe since I don't think he was levelling with me. I now...
Hello all, and Happy Holidays I'm 2 months post bladder neck incision surgery now. I am still just as incontinent as I was after the prostatectomy unfortunately. I contacted my local urologist a...
Berb, Thanks for the info. My experience with the Bard clamp is similar to yours. It's not the most comfortable solution, but it's generally effective. I admire you for your courage in not letting...
Hi Berb, I'm curious about your experiences with different clamps. I am using the one that the doc just precsribed, it's the Bard Cunningham Penis Clamp. It's crude, but effective. I wonder if I can...
WADR, if you had your surgery in October of this year, then your recovery of incontinence could be merely from passage of time. The great majority of patients recover continence over several weeks to...
thanks for the reply Gene. I suspect you are right, that my surgeon has given up on any further improvement for me. I suppose that they simply don't want to say that, and I can understand why for a...
I had my one week post cath follow up today. The surgeon scoped me again and said that my stricture is gone and healing well. He said that he expects my continence to continue to improve for the next...
I was just reading this thread again. linda & bob, susan, kw, and all of you-- thanks for the words of encouragement. It means a lot....
Thanks for the support and the kind words, puget. I am trying to think positive. Perhaps it just needs a few days to settle down. I got up this morning and worked in the yard, something I haven't...
Hello everybody, And Berb, I hope your condition improves. Don't know if we are in the same boat physiologically or not, but we're definitely suffering some of the same symptoms. I got the Catheter...
I had the bladder neck incision done on Tuesday. Surprisingly, the recovery from this procedure has been more painful than the recovery from my prostatectomy. My groin area is very sore. I am taking...
How would we arrange a sale of this device?...
One week post-dilation: My continence has not improved, but my stream is better. Well I have made the decision to have the "bladder neck incision" done. I'll go in on October 30. I'm hoping that the...
Hello all. Today I had an appointment with my surgeon to investigate my continence situation. He did a cystoscope and confirmed the findings of my regular urologist that I had a stricture that was...
a close friend of mine called me yesterday. He is 18 months out of surgery and he reported that just in the last week or two he was able to acheive a normal, healthy erection without assistance. He...
chas036, I don't agree completely. While recovery is probably quicker in general for people who are in shape, that's not the most important thing, as I understand the anatomy. The area around the...
Hi everyone and thank you for the encouragement. I am trying to keep all this in perspective. As many point out, here and in my personal life, the important thing is that I am cancer free. The...
Hi Gene and Puget, Sorry for the long delay in posting. I visited another doc today for another opinion. He seemed to think that I should try dilation and see what happens. He admitted there was a...
Hi Gene, I can sympathize with you. I am four and a half months post surgery, the laparoscopic type. My continence situation has remained unchanged since the day my catheter came out, and it sounds...
Oh, one more thing, Gene. I asked my local uro doc about the bio feedback, and he said that I had very strong sphincter muscles, and he didn't think the biofeedback would help me much....
Hi Gene, Yes, it sounds like we stricture sufferers are a small minority. For that reason, I am not eager to have this treated. The small incidence of strictures leads me to believe that many doctors...
Berb, My physician's conclusion about my sphincter not closing when relaxed was based on what he observed through the scope. I too wondered how a scar near the place where my urethra was cut could...
I am in the same boat, see my recent post. I certainly hope you are getting some good advice. I think there are probably some docs who specialize in fixing problems like this. If I find one, I'll...
Well, today was not a good day. After no progress on the incontinence issue since my cath was taken out, I finally went back to see my local urologist today. I had my surgery done at a university...
I am trying to search the prostate cancer forum for "stricture" and nothing comes up. Hard to believe, so I tried "incontinence", still nothing. So, what am I doing wrong, or what is wrong with the...
Puget, Thanks for the response, and the explanation. If you were able to find humor in a situation like that, how bad could it be? I gotta admit, that was pretty funny... "whale sounds"??? ;-)...
Thanks for the link. I am going to go to a local urologist (not my surgeon) and get a second opinion on my condition, and hopefully a referral for a biofeedback therapist. I'm pretty frustrated with...
I would like to find out more about the biofeedback training for incontinence. Has anybody tried it? Was it effective? How would I go about finding someone who's expert at it? I feel like perhaps...
Oh, one more snippet. Since nothing I do seems to affect the incontinence situation one way or another, I have felt free to eat my spicy foods, drink coffee, and have my regular glass of wine with...
Hello all, Just a quick update. I got the results of my PSA test on Aug. 10 and it was "less than zero." I'm relieved but I am not exactly celebrating. Unfortunately, incontinence is still an issue....
Hi Bluebird, My personal journey has been unremarkable, I think. I agonized for a long time about what type of treatment to have, and did not discover the healingwell forum until after my surgery...
Hi everyone, First I want to thank the forum participants and moderators for providing a fantastic resource. I haven't posted before, but just reading others posts has helped me cope with my...