Yep that's me, Mumbo! I did six LU-177 (aka Pluvicto) at UCLA before FDA approval. Then when it became FDA approved and labelled Pluvicto, I decided to do six more. Many posts will provide all the...
I believe in the DEA method: Diet Exercise Attitude...
I've been strictly plant-based since diagnosis 7 years ago. Also, no alcohol. Before dx, I was eating chicken & fish with a glass of wine or two. I BELIEVE this to be beneficial, as others here have...
See responses below. I tried to color code my answers but it didn't work. Most importantly, how are you doing now? Doing well, though PSA is beginning to rise quickly. In each of my two 6-treatment...
I had to go back and re-read Cameron Crowe's first Rolling Stone cover on the Allman Brothers. Crowes was 16 when he went on the road with the band, ala "Almost Famous" script. First two paragraphs:...
Todd, Again, THANK YOU. This should be required reading for anyone on this journey. I've been on the train 7 years now and have been blessed beyond measure, having taken full advantage of new...
Jack, Side effects during LU-177 and Pluvicto were minimal, certainly nothing like taxotere. There was constipation for several days after treatment, but “treatable” with laxatives or prune juice....
Thanks everyone, for your kind replies and unwavering support. Will keep you posted. Steve...
I guess that’s what you could call me now, after six treatments of LU-177, then six more Pluvicto treatments under my belt. And now, with a rapidly rising PSA, I’m applying for an Actinium trial here...
I'm back on Ab/Zytiga again now--retrying it after a few years. I have noticed a bit of constipation, but not as bad as my Pluvicto nuclear med treatments handed me. I do know that when taking those...
Interesting article on Actinium--which still appears to be pending FDA approval. https://www.scientificamerican.com/article/this-potential-cancer-treatment-requires-modern-alchemy/...
My Oncologist who administered my Pluvicto has mentioned Actinium as another treatment for me down the road. As some of you know, I've done TWELVE LU-177/Pluvicto treatments with amazing results,...
Fantastic!!!! So happy for this news!...
JudyM, I've had great success with Pluvicto, which I've documented in the HW forum under both LU-177 and Pluvicto headings. I have, in fact, done six treatments of LU-177 (at UCLA in a special...
Thanks for the bump, Cyclone. I hadn't read this before but glad you reposted. -Steve...
It was 14 months from #6 to #7. It took a few months to get Medicare activated before I could start the second wave. My work insurance said no to pluvicto which had just been FDA approved so I...
Update: Pluvicto continues to work extremely well for me. I've now had 5 of the 6 treatments in my second round of this (so, I've done ELEVEN of these!) and PSA continues to drop. In fact, this last...
FANTASTIC!...
DYank: Great news on Pluvicto! I, too have had great success with this. In fact, as many of you know from previous posts of mine, I'm now on my second round of LU-177 / Pluvicto. First round of...
These posts only confirm how blessed I have been since DX over 7 years ago. Now riding on the Pluvicto train which has allowed me to be here, making this post. Based on all these advancements, we can...
Thanks, Cyclone, for checking in. My good news continues: after treatment #4 (or #10 for those keeping score of my entire LU-177/Pluvicto trek), my PSA continues to drop --from 34.3 to 21.7. That's...
Update: Pluvicto continues to work for me. After 3 of 6 treatments in my second regimen of Pluvicto, PSA is 34.3, down from 55.5 the month before. Next treatment is 9/20/23. Once again, to review:...
Thanks all. On my other Pluvicto post, John4803 provided the following link to a great presentation by Dr. Kwon. There I found that there's even MORE hope on the horizon, with a treatment called 225...
The success I have had with Pluvicto reminds me that everyone is different, their cancer is different, and the success of any treatment is an unknown until you experience it with your body and your...
Well, once again, GREAT NEWS with my pluvicto treatments…. PSA just dropped from 147 to 55! And that was in just 26 days. So, I’ve had two pluvicto treatments, beginning when PSA was around 295. Now...
Yes. Been very impressed with Dr Ulaner. He runs nuclear medicine at Hoag. He was referred by both my onco docs at Prostate oncology specialists and at Keck USC in Newport. I never had a doctor per...
Jerry, My Lu-177 at UCLA was before FDA approval and the process was far more time-consuming and cumbersome than it has become since FDA approval. My guess is that UCLA now administers pluvicto in...
DYank-- great news on your PSA drop! You and I have been blessed with success from Pluvicto. I know not everyone has had that same success. You are right about perception--and attitude. I estimated...
Another update-- full of good news. Had my 2nd Pluvicto treatment (of Round @) yesterday. The infusion is now less than 15 minutes duration. All is well today -- laxatives have done their trick; a...
Well, after I had to cancel a couple times, Island Boy and I finally met on our island today. Sure is great to meet a fellow brother/warrior in person to discover the similarities and differences on...
Rick, I’m a little under the weather as of last night. Going to cancel as a precaution. Very sorry. Try to emaill me at my EarthLink.net account with Steve.Fletcher. Thanks...
Island boy: tomorrow at 9, my wife and I will be there. I’ll have a Pebble Beach golf cap on....
See you at 9...
Don’t know messaging either. Black dog State Road VH at 9am Wednesday would work! (You know how amazing this is, right?)!!!...
We’re on the Vineyard now! We’ll be here the next 3 weeks. We’re in west Tisbury. Let’s pick a time and place. Steve....
Island boy—you’re not on the Vineyard are you? You mentioned trip to Boston…. Curious. We live in SoCal but have a home on the Vineyard…....
Thanks for the assist Susie. I’ve now been through my seventh pluvicto treatment. See my post about LU-177 My next Treatment which chronicles my first round of treatments. Amazing success. But you...
Thanks guys. Sorry for confusing context part. I wrestled with that. Bottom line is when I had the treatment my PSA was estimated to be 297. A week after that treatment it was 193. That means it’s...
OK. Preliminary results are in--and they look great! To provide context, my PSA has been rising the past 5 months by an average of 85% per month(!). My previous month's PSA was 214. Assuming an...
Well, I just had Pluvicto Round 2, Treatment #1 this morning. That's technically Pluvito/LU-177 treatment #7 for me. While it'll be awhile until I see a new PSA test, I can tell you that the...
Thanks so much. I really appreciate your support. Steve...
Hang in there Lollie. As Todd said there is hope. And Todd is my personal HERO--whenever I see my PSA skyrocketing, I re-read his posts! Steve...
As I've documented here in the past, I've been blessed to have gotten LU-177 before FDA approval through a compassionate use program at UCLA. To recap that success, first treatment in August 2021,...
Jay, Good luck on your treatments. You're going through much the same protocol as many brothers here have done, with great results. If you ever need a second MO opinion, I highly recommend Prostate...
Thanks all for your kind thoughts and well-wishes. The news of a second round of Pluvicto is especially meaningful as my PSA went from 38 to 88 in the last month. Yes, you read that correctly. A few...
Here's a (good news!) update. While my PSA continues to climb--now at 38.56, I've just received word that a local SoCal Nuclear Medicine group has approved me for up to six more Pluvicto treatments....
Thanks SO much Cyclone. I have PSMA scan at UCLA Tuesday and will report in greater detail when I have the results. Will explore Prince trial today. Steve....
Thanks for checking in , CYCLONE. Always appreciate your comments, concerns and dedication to the brothers of this forum. Always easier to give the good news--like I did while my PSA plummeted from...
A doctor friend, not oncologist, has recommended I begin taking Fucoidan to kill cancer cells. There’s an NIH study which I’m looking for now as I begin researching this. Supposed to be effective for...
Like Cyclone, I was given a Neulasta shot after first round of taxotere, but I had a reaction to it (fever, etc) so they switched to nutropenia (sp?) shots. When my WBC also got to 1.5, I had to do...