Such awesome and encouraging comments guys, thanks so much....
Thank you, you guys are the greatest and know just what to say to ease my mind....
I did feel good after talking to the RO yesterday. But this morning, the urologist staff called to schedule an appointment to start the surgery consultation. I told her not to bother that I’m going...
Had my virtual appointment this morning with an oncologist at Simon. I will be taking bicalutamide until I receive my Lupron injection which will be in a week or so and at that point I will stop...
Meeting with the Simon radiation Oncologist went well. He Started me on Bicalutamide and will be on that for two and a half to three months then radiation will start. I thought the RO said...
Does RO perform the actual treatment? If I am talking to an RO at Simon and then ask about the treatments to be done locally would that be different then if I just talked to the local RO in the first...
Met with local urologist today and discussed surgery and radiation. I did not realize radiation would be done every day for about 8 weeks. It would be quite a task driving to Indy that often. I do...
Thank you for your input. The statement, "Diffuse physiologic uptake in the bowel. Liver, kidneys, spleen, and pancreas are unremarkable" may or may not refer a normal uptake of the Tracer in these...
Had my PSMA scan yesterday and the results were just posted. It seems good but don't quite understand the following paragraph which I copied form the Abdomen/Pelvis section of the report. PSMA-PET...
PSMA has been approved and scheduled for May 9. Follow up with my local Uro May 14. I also have an appointment with the Simon Radiation Oncologist May 15. I plan to tell my Uro at the May 14 appt....
Steven, it's funny you mentioned following up with insurance and the authorization. My wife contacted the insurance to check on the PA to see if a request has been put in by my doctor's office. On...
I agree, the wait is so frustrating....
Had my appointment with Simon Indy (hematologist oncologist) yesterday. We discussed some scenarios depending on what the scan will show. Still waiting on the scheduling of my PSMA or Bone / CT scan....
Still no scheduling of scan. I have an appointment at IU Simon Friday. Recap: Feb. 7 PSA 13.6 - Feb. 15 PSA 15.6 - Mar. 20 MRI - Apr. 1 Biopsy....
Yesterday the urologist said she has no problem with me getting a second opinion. Since I have not received a definite treatment plan or a scan yet, I did not ask to be referred to Simon at this...
PSMA will be done if Insurance covers it. I asked about paying out of pocket if insurance doesn't cover it and she mentioned a cost of $47k. I did a general search online and found $10k maximum for...
thank you, I have printed much of this to bring up to my urologist...
Or even stories from people that have heard about those that had the surgery. Oh, and flow has been a problem and seems to be getting worse....
Yes, incontinence is definitely a concern. I have read it can be bad for quite a while after surgery and may get better, but I don't think that's guaranteed. Would certainly like to hear from those...
This support from everyone here is so awesome. I took a break from everything internet this past weekend because I always gravitate towards PC research. With my appt. and conversation with my...
Thanks Mumbo and everyone....
I called Mayo MN, just to see what time frames I would be dealing with and they asked if I wanted to make an appointment record. I told them I wanted to talk to my Urologist before I commit to an...
Is IU Health Simon Cancer Center (Indianapolis) highly recommended or should I seek out Mayo or MD Anderson? How do I approach these places? Ask my Urologist or just contact them myself? What can I...
Thank you all for the quick support. I have an appt. with my Urologist Tuesday and hope to hear something about good treatment options or a team of doctors because at this point, I may go along...
thank you so much! Larry...
Didn't think I was ready to log back into this site but couldn't sleep. I have been on Dutasteride for I would say 10+ years because of PSA of around 3 and DRE that seemed large to my Dr. After first...
I am 64 yrs old, new to the site, received biopsy today and my wife and I are devastated. I will add more info later but for now well... would like to hear from others. G) Prostate, right base,...