TY, SO MUCH.. I HAVE JUST BEEN SO ILL WITH THIS AND DESPITE CALLNG MY DOC EVERY OTHER DAY WITH NO, NONE, NOTA, REPONSE IS DRIVING ME NUTS. I pray for others who are worse off than me but it's still...
Hello, and thank you all for you in put. Yes I would love to chat with Dawg. Zanne, my insurance will not cover that drug. I have been calling my gastro doc for 2 weeks now and he still has not...
Hello, I have not been on here in a very long time. I had a total colectomy in Feb of 10, they could not figure out why I always had so much air and illius in my intestines daily. So since I had my...
Hello, get the gummy vitamins from costco, they work really well. As I have had a total colectomy and everything goes right through me. So these disolve and tast really great. best of luck to you....
My friend has a ostomy, so what I need to know is since they took her illium, do her pills go right through her or are they able to be asorbed. I have looked for the ans all over the place. I know...
tinlou, Whole Wheat: Made from the entire grain of wheat, including the bran Glutin; Gluten (from Latin [u][color="#0066cc">gluten ][u]glue ") is a protein composite found in foods processed from...
John510 yes its true, if you go in with a different dosage they will fill it. At least in Oregon. I too am on Oxycodone as the Vicoden was killing my stomach and it was not working any more. My doc...
Hello, Let me tell you I have had a pain pump for many years with morphine...the things is if it malfunctions you can od. They changed mine to duliodid, to do that they cleared out my pump for a week...
Hello, the one thing I do know is if you take Suboxone its a narcotic too and would have to withdraw from that too.... Leslie...
OMG poor Liz, and you too Allie, I have been so ill myself. They just did a Spinal Tap on me and had to try 3 different areas cuz of scar tissue in my back. For some reason I am having sezieurs and...
Tracy, never let them leave it in to where its noting but blood filling the canister...they did that to me when i was on Vacation in Calif... my canister was full of blood , called for nurse for hrs....
Tracy, I had a total colectomy and had problems with ilius before my surgery and still to this day I have problems with it. If the gas dont move my bowels wont move till the buble moves... I for the...
Leslie...
Daunting Ya its a tricky thing, you have to read every label...even eggs have glutin in them as the chickens feed on wheat. Its going to be hard but your going to make it. Here is the deal with...
Daunting Did they test you for Celiac Disease....my son has that and he has d...
Todd, keep us posted...good job. Leslie...
Daunting With a colonoscopy he can tell if you have crohns, and while he is up there he can biopsy to know for sure. Good luck and take care. Leslie...
Roni No I had no problem after mine. LLQ pain is usually associated with diverticilious, or lites. Have you ever been to a GI doc for a colonoscopy? Leslie...
davis7029 Well I had a resection before and I mean like 2002 and then had a Total Colectomy last Feb... But the resection they only took like just enough to not have a appliance. Are you going to end...
andrealeigh71 I am allergic to dairy so I use a tiny bit of soy silk milk and frozen berries like strawberries and a little fresh bananna, or the mixed of black berries with others but I add some...
twizliz77 Hi, well that sounds more like diverticulosis or diverticulitus, they need to do a cat scan to see.... Good luck.. Leslie...
Glutenfreecupcake Oh hun, dont think that way.. My son is a Celiac too, have cant have a lot of stuff that even says its glutin free...many of the yeasts to make bread still make him ill. His throat...
Thanks so much I will forward it to my son......
Hello all, I am usually on the other site. I will give you this bit of advice. Don't ever think that oh I am going to just have some regular food with wheat for one day...............NO...
Glutenfreecupcake I am so sorry that you feel that way. My oldest son has Celiac and he cant eat a lot of different things either. If he accidently gets glutin in his system his throat starts closing...
chico41 YUP GET THE APPLIANCE, everyone I know who has crohns has a appliance and are glad that they did. my friend is in portland hospital and just got his on monday so cant wait to see...
Alisha Went to see a nutritionist on Monday and she is concerned about my body not asorbing fat. So she want me to get that test and if my body is not doing that she said that they could help me with...
Elle, I wish I could tell you something that would make it easier, maybe eating small meals more often, I could not eat fiber or any fruit or veggies. You do rule your life on you guts, we have all...
Hey all this is Leslie, I have had the total colectomy with re-attachment... A month and a half ago they had to due a dilation surgery, or proceedure on my cuz my astnamosis had shrunk down to pencil...
Quite_Wisper, Has she had her vitamin levels tested? I am waiting on my B-12 results to come back. Had the others done 2 weeks ago and my Vitamin D was almost non exhistant, so they put me on 50,000...
Alibee They told me the same crap, bio=feedback, and the pelvic floor thing too. Sounds like you colon is not working almost at all with those letf in. Did they say if the rings were kind of grouped...
Rosemary I know its great. The thing is that they sent my dentures to a lab to get realigned and they came back all screwed up. So it hurts to bite down on anything and now I have like teeth that are...
Yes, fiber creates a lot more gas for me so I don't do fiber...so you may want to consider what Sue had to say. The Sitz Marker Test will tell you a lot. So sorry to hear that your so young and that...
Alisha Take a deep breath and just try and relax. For me, if I waited for my doc's to call I would go crazy because they took forever. So I always called them because it just made my stress, so much...
summerstorm OMG girl your so funny. Ya what were ya thinking? I need a good laugh today so for that I thank you. Drinking prep for the colonoscopy tomorrow to see if I have a prob. further up and he...
Lesley, I am one of those people your talking about that cant eat fruit or veggies, salad. I stick to chick and turkey most of the time. You will be eating a tiny bit before you leave the hospital....
Lia, Yup, you got it. This is the best place to come for information and support, and loads of compassion. This site helped me figure out what was wrong with me and I am forever thankful. So keep in...
Ya, they did not let me eat for a week when I was in the hospital....92 wow, how cool that your able to do that at such an age...my hat is off to you...80's Chick...Hopefully time will help, you cant...
Alibee Hey, well ya I think Rosemary is right you were just nervous. When they do that Defogram test they told me OH thats your problem and you need bio-feed-back. I told them no, its not coverd by...
Doreen So sorry for your loss. I lost my father a year ago last Oct, I still have a hard time. All I can tell you as I have lost my 18 yr old son to a impaired driver in 2000, that its just day by...
snugglesaurus Hey , you know for me I have to avoid all fiber it make my gas worse then I get the illisus, end up in the hospital with NG tubes..so for me no fiber. It sucks as I love fruit and...
Lia73 Ya, I know its hard. I still almost one year later with my TC ....not able to gain weight. At first you can only eat a few bites and you feel full. But it gets better with time. I still can't...
2b ColonFree They usually dont like gatorade because of the sugars in it...hope all is well.. Leslie...
Hodaya gatorade has electrolites... Leslie...
Thanks Hun...
Hodya, and Rosemary I forgot to say to use Lidex 0.05% to help it heal.. Leslie...
Hodya and Rosemary, Now I can remember who had the blistering and ozzing around the stoma but my friend who has had one for 30 years...says to do: FIRST CLEAN SPRAY ON HOLLISTER MEDICAL SPRAY, THEN...
Hodaya Girl, that just breaks my heart to read your message. I am so sorry that your going through all this, it is very dis-heartning. Try and remain positive ok, I will try and look for some ans for...
Stephanie OMG girl I have a call into my friend to see if I can get some answers for you. She has had a appliance for over 30 odd years and maybe she knows some tricks..I will get back to ya... So...
GISGuy31 Wow, sorry to hear that. Legos now that inventive. I do not have a appliance I was re-connected. So it scares me that if my next surgery goes bad then I will end up with one. But it seems as...