I don't even know anymore what I have and don't have. I know I've been formally diagnosed with Endometriosis ( 4 years ago ) and Fibromyalgia ( 8 months ago) and seriously suspected CFIDs. (...
I also forgot to mention a recent physical revealed I have high cholesterol. 221. This surprises me because I am 5'7" 130lbs and generally eat pretty well. Almost never have fast food and choose a...
I usually post in the Fibromyalgia forum but I'm really at a loss here and wondered if anyone has any advice for me. I'll give you a super abbreviated medical history. Before 27 I was happy, super...
I usually post in the Fibromyalgia forum but I really need some advice. I will try to keep this brief. I'm 36 years old, up until 28yrs I was a very healthy, happy energetic person. My problems began...
Ok so weird thing happened. I was at our local mall and for the hell of it decided to get a 20 minute massage at this Chinese reflexology place. At one point she had me turn my head to the side and...
Ambien frightens me. My husband once took it and proceeded to walk downstairs, get on Facebook and friend 200 people and send nonsensical messages. When I asked him what he was doing he said he...
Andrea11, Yes totally have breast pain thing. It was bad enough that I got my first mammogram which also being in my 30's it was probably time for it, a few mobths ago. Its mainly ine breast. I think...
Denise, Sherrine, Karen Your personal stories are totally a source of strength to me. If you can continue to push forward after the tragedies you've suffered, then I can certainly stop feeling sorry...
Yes definitely let me know how the Neuro visit goes. I'm so sorry you're dealing with similar issues. I used to get the whole "it's stress" thing too and even had a gynecologist ( the second one I...
Andrea11, No you're totally right. I have hit the Rheumatologist wall. Super great in the beginning and then after 9 months of seeing her she's suddenly acting like I'm on the road to recovery and...
Thank you! That was very helpful :)...
I just wondered because I have the whole swollen lymph node thing...but I was watching one of the videos and was floored to hear that getting a CFS diagnosis can really effect your insurance...
Not that I want one, because it seems like insurance flips out if you get one. But I would love to know what other problems/conditions/diseases I should be ruling out before coming to a CFS...
In the simplest terms, what is the difference between the two? Thanks...
Thanks guys...a lot of good advice here!...
Maggie. wow. I research like crazy too and totally totally agree with your thoughts. Personally, I tend to think it's autoimmune in nature, that there is an inflammatory component to this ( nerves...
I have Fibro and very tight, crackly, knotted upper back & shoulder muscles that are in constant pain. I just got a cervical MRI back and no surprise everything is normal. I have to do something...
Gina, Aside from the over-active bladder I could not relate MORE to your story and symptoms. I wish I knew what to tell you. As far as getting your family to understand I don't know that there is any...
Normally I post in the Fibro boards but I just got my blood tests and thyroid ultrasound results back from my endo. Everything is with in normal ranges except my thyroglobulin is high 56.5 (...
Ha ha yes, I guess I needed to get it all out. Yeah if I didn't have a part-time sitter to help me out during the week a few days, I have no idea how I would be able to get to any of these doctor's...
Andrea11, Hmm maybe you are very sensitive to it? I can take it up till 4pm and still fall asleep ok if it's after 10pm. I cut out all caffeine after 12pm too. My fibro slowly started 6 years ago...
Blondie37 your post was exactly what I was wondering about. I was diagnosed with stage 3 endometriosis and had 3 huge fibroids removed 3 years ago. Before getting diagnosed, I suffered from IBS,...
Any women taking Savella on this board who have seen a change in their menstrual cycles? I have endometriosis and fibroids and have always had extremely heavy painful periods, but since starting...
There are so many people on these boards that are right where I am...tired, unsure and feeling crappy. I'm dying to hear what is working for you. I've been taking 25mg of Savella, 10mg of Adderall,...
CrushFibro, Ha ha it drives my husband crazy too.... he's like what IS that noise? Is that your back? It creeps him out....
FMsaddenedspirit- Yes! to all of it... The sweats is sorta a new thing...I'm either always cold or having hot flashes and I'm and I believe I'm a little young for Perimenopause :( I'm so over being a...
I hear more crackling noises when I lift my arms up over my head but luckily not that thud sternum pain you mentioned. I do however have aching pain in my sternum sometimes but always attributed that...
The muscles in my upper back make all sorts of crunching and popping noises when i roll my shoulders. It doesn't appear to me my bones either which is what is confusing me. I always have pain there...
Hi I thought I'd give you all an update: I've been taking 25mg of Savella and 10mg of Adderall once a day. The Adderall has been pretty good at keeping more alert ( surprise surprise) I still feel...
I'm curious, those who had blood pressure spikes with it, was your blood pressure ever an issue before? Or borderline? Or was it to always normal and then just shot up in this drug? Also what dosage...
I just started it yesterday and my doctor told me to stick with the blue pill dosage 2 times a day and see first how that works for a week or two. That you don't have to up the dosage unless it's not...
Thank you so much, both of you! The Fibro 101 was very informative and interesting. Just got back from seeing my rheumy and have a prescription for Savella to try. The thing I like most about her is,...
Hi, I am totally new to this site. I am in that Mystery Diagnosis stage that so many of you know all too well. My problems began roughly 6 years ago with IBS symptoms that got increasingly out of...