Thanks for the reply! Hoping to finally get to the bottom of things. How are you getting on at the moment Lynnwood?...
Anyone? Forgot to say!! Had two biopsies-histology and immunoflorescence. Why would the derm be sending me to photobiology?...
Also along with the many symptoms, I have Raynaud's, splinter hemhorrages and a new intolerance to penicillin....
Hi all, Rheumatologist acknowledging I have something inflammatory going on, had problems with joint, sun sensitivity etc for years, plus most of the symptoms of lupus. All tests normal apart from...
He didn't do it! But he said next time the rash appears I can call and go in the same day....
Well today is my biopsy, I'm gutted-for the first time ever I've deliberately gone in the sun for 3 days and I have no rash! Will he still do it?...
Could anyone help please? I've had a consultation with a dermatologist today and is going to do a biopsy on my face. He's asked me to come off hydroxychloroquine in preperation and explained why but...
Keep us updated....
How did your appointment go?...
Me too. And my nails come off. Tick test?...
Hi I'm sorry that you have no replies, hopefully someone will be around soon. Your symptoms are the same as mine. Do you get splinter hemorrhages in your nails? Sun sensitivity? I'm yet to be...
Bit of an update. Saw my rheumy for the first time in 8/9 months and she's really pleased that the plaquenil she started me on back then is giving me my life back. Also she's referring me to Graham...
OK thanks butterflake....
Yes it sucks in winter too. Not quite as bad for me fortunately. I saw the doctor this morning. She's going to write to the hospital to ask them to bring my appointment forward and she's doing blood...
Hey thanks Butterflake! I am so glad summer is over, I am so sun sensitive. But in the colder weather my arthritis is worse but I'd rather have that than staying in all the time to avoid the sun....
Thank you very much for your help....
Hi I'm on 400mg hydroxychloroquine daily. It worked wonders for the first 6 months and I seem to have gone down hill. I've not seen the rheumy since April and due to them running behind I won't see...
Did anyone find that after so long of initially being started on medication that it had to be increased, due to symptoms coming back/getting worse?...
Melissa sounds exactly like I try to describe-'to the bone'. How were you diagnosed?...
I'm glad you have help when you struggle. How long did it take for your diagnosis?...
Funny that couchtater I'm always on the radiator! I am so thankful I have medication but I still think about getting that diagnosis every single day....
And my night sweats are so much better since being on the hydroxychloroquine....
Hi Lynnwood, thanks. I'm glad you don't suffer as bad with it now. Yes I'm the same, it happened last night and I didn't have a fever. I do have raynaud's really bad and I felt so cold yesterday, my...
Really hard to explain but here goes... Recently because of the cold weather I've got a duvet and two blankets on the bed. I also have my bedroom radiator on in the evening and wear pyjamas. Several...
Thanks for the comments. Couchtater I've noticed from other posts that you have Raynaud's, when was your onset of this? Was it when you first had symptoms of lupus or years before? I think mine is...
Oh gosh I'm sorry :( Thanks for the information. So does number 10 not include Lupus anticoagulant?...
Hi I've been on this forum for a few years. Just been looking at very old posts and would very much like to get in touch with redrose77 as she has been diagnosed from only having positive...
Thank you....
Hi all. Can a general optician detect inflammation in the eye from auto immune diseases? Thanks....
Keep having the tests and best of luck....
That's exactly how I've felt, and feel! I ended up in tears this week with her because I'm so fed up with it all. Wonder if she'll tell my doc the same?! Amitriptyline might help with your sleep and...
Oh thank you. Handy to have!...
I agree you need to get her to agree to start you on meds. I was the same as you the other day. I expressed to her how much it was impacting on my life and that I needed medication, after years of...
On the info page it states there is a graph to check if your eyes are affected by plaquinil, it says, 'go to this site and scroll down'. Well I've looked and can't find it! Anyone?...
Thanks Lynnwood. Yeah I've been told it can take that long. Will have to pick it up tomorrow as I didn't have time to wait and I felt so rough today. Can't believe it's MORE waiting again....it's...
I've had my rheumy appointment today. Told me my second anticoagulant rest was negative so asked me to have it done again. It all got a bit too much and I got upset telling her that it's impacting my...
Thanks for your help :)...
Thank you! Yes back and forth to the rheumy. Just feel like I'm not being taken seriously but hopefully after the positive anticoagulant and my appointment on Thursday she will? Just think she'll...
Thanks. Sorry was very vague, it's a long story! Had a positive lupus anticoagulant test and waiting on the second test and blood culture results. Have all the signs of lupus although all other tests...
Anyone....please?...
Hi all, No diagnosis as yet but been told after an ultrasound that I have inflammation in the achilles tendon which "should not be there and not due to wear and tear". Has anyone had the same? Thanks...
Thanks for the reply. I meant failing to get a diagnosis from a rheumatologist because of negative blood tests....
Anyone? Thanks :)...
Thank you hypo. That's an informative website....
Do any of you Thyroid sufferers get a related rash?...
Ok thank you :)...
Thanks MsHippo for that. What's an MD?...
Thank you. I will ask....
How would I find the root cause?...
Thanks to both posters. I don't think those tests have been done. She's sending me off to rheumatology-will they do it? Not got the appointment yet. No medication, not been diagnosed as the doc is...