Wow, it sounds like you are recovering just wonderfully! I am so happy that the outcome is so good for you!!...
Wow, that sounds like a pretty severe reaction to me. What about the Benadryl? Was that administered before the infusion? If not, why not? If so, what do they plan to do to prevent an even worse...
Oh no. You have been doing so well, I hate to hear that you are (possibly) going into a flare. Ugh. But 6 x's a day is not normal for you, so don't let it go on too long. You have been at this game...
Bananas are my staple fruit. I eat one almost every morning, as I can't tolerate too many other fruits that are raw....
I had bad bruising when I was on 6-MP and taking Remicade treatments at the same time. My fingers would bruise just from picking up a hanger with a coat on it, holding a pen too tightly or by...
I recently switched from Silk Soy to Almond milk for most uses. But for my cup of decaf coffee in the morning I use a coconut milk "creamer" by SO Delicious. I also like the coconut milk "ice cream"...
I am so happy for you and everyone that feels so well now after having Remicade treatments. They were a lifesaver for me. I give Remicade all of the credit for getting me into remission and allowing...
UCNewB, Everyone here has such good advice to give. The information that you can get from this forum can be invaluable. As you can see, there is no "one size fits all" where UC is concerned....
After I was on 6MP for about 1 1/2 years I started experiencing bruising when it was combined with the Remicade. Besides the bruises on my arms and legs my fingers started bruising when I would pick...
The photographs are just beautiful Paul! My husband and I are considering taking an Alaskan cruise in 2009 from Vancouver also. Your photos are inspiring me to go ahead and book the trip!...
Sherry, It sounds like the trip to your primary Dr. for a referral to a surgeon is next in line. You have been up and down with your disease and battling it for 15 years. So, I think that you would...
Wow, what an impressive act of bravery. Congratulations on your reward and the accomplishment. Your family must be very proud!...
I was able to reach clinical remission from Remicade after using it for about 1 1/2 years every 8 weeks. My last colonoscopy did not show any signs of disease at any level, including molecular. I...
I had Remicade infusions from December 2006 until February 2008 ( a little over a year). I only felt well consistently after about 5 infusions. After infusion #4 I thought that it wasn't working too...
Sometimes it takes a while to find which medicine works best for your body. I have been on Colazal, Canasa, Prednisone, 6MP and Remicade (all in the past 5 years). I now take Lialda daily and Rowasa...
I use Benefiber (powder) every day. I can't tolerate Metamucil in any form or Fibercon or Citrucel - so Benefiber is my best option. I also eat long cooking Oatmeal some mornings for good fiber....
I use Hyociamine or Levsin as needed for cramping similar to what you describe. It is an RX from the GI. I dissolve a pill under my tongue and it works wonderfully. I always describe that type of...
Bob, Perhaps it is C-Diff that you are trying to think of? That's what comes to my mind. I am so very sorry to hear about your troubles and medical problems. I hardly know what to say. If I were...
I get my P. Reuteri pearls, made by Nature's Way at the local Whole Foods store. They are the only place that I have been able to find them, including all of the local health food stores....
I have had a vaginal yeast infection as well as a vaginal bacterial infection each month for the past 4 months. I have had a culture taken each time by my OB/GYN (I'm really tired of having those...
As many of you "regulars" may recall, I stopped my Remicade treatments after 2 1/2 years of treatments and full remission. My hope was that maintenance drugs (in this case Lialda) could/would keep me...
Sherry, This egocentric Dr. might have been worth the wait IF you had gotten any answers. What a waste of precious time. I no longer see a Dr. that consistently kept me waiting for more than an hour...
Dawn, I'm so glad that you made it home and you are resting in your own bed. Are the dogs keeping you company? It sounds like your hospital visit was quite an ordeal, but sometimes I know that it is...
I have been on Remicade infusions for over 2 1/2 years and it has put me into a remission that I have been able to sustain. I only have a few side effects (mostly sinus issues and chronic cough), but...
Sherry, OMG you are blessed with so many issues! This one surely calls for a big pity party. I'll bring the party hats and the balloons. I really hope that the MRI shows something conclusive that...
Beth, I have considered having the April Remicade treatment, just as you suggested, to give my body time to adjust to the Lialda. I think that's a good point. When I started the Remicade treatments...
ChristieAnn, Yes, my Dr. is on board with this. We have discussed it several times and he didn't want to make any changes until after doing a colonoscopy (which was last Friday). I should have my...
Thanks James. I must admit that I am a little bit nervous. My next Remicade would be April 2, so that will most likely be canceled and I'll be on the Lialda by then. I'm just so curious to see how...
Well, it's not that I want Humira, but I need a back-up just in case. And it's possible that my body will build up immunities to the mouse proteins used in the Remicade. It's difficult to get back on...
I have been on Remicade every 8 weeks since December 2005. It has done it's job for me and brought me to remission. My recent colonoscopy confirmed this. My Dr. was amazed at how great my rectal area...
Like all of you, I wish Bob and his lovely wife only the best. He is such a wonderful caring person, his vibes have always come through on his posts. My thoughts and prayers on top of prayers will be...
I received a flyer in the mail yesterday from the makers of Asacol and it states the following: "Asacol is celebrating over 15 years of helping patients manage their ulcerative colitis. To mark this...
Bob, I'm sending well wishes your way. I hope that the Remicade helps and that you can get back on a regular schedule with it. It sounds like getting a housekeeper was a great move and will allow you...
I really have to watch the amount of raw fruits and vegetables that I consume. I can barely tolerate raw veggies and can only tolerate a few fruits in moderation. I could never make it on a raw foot...
I have pancolitis but am only on Remicade now. The combo of 6MP (was on for over 2 yrs.) started causing bad side effects when combined with Remicade, so I was taken off of the 6MP....
good luck Sherry. It sounds really hard, but it could pay off for you in the end. I hope it works well for you, as I know you are at the end of your rope. So, I guess meeting for sandwiches will be...
I cut out the most of the caffeine and switched to decaffienated coffee that is produced using the Swiss Water method to decaffeinate it. It can be hard to find Swiss Water method decaf, but they...
I can see where the combination of all of those things going on with you are making you feel icky! I hope that you can get some much needed rest. Hang in there. The Imuran will take a while to work,...
Yes, I kept a detailed log for a long time, including foods that I ate. Now that I am on Remicade I only log the days that I am not doing well, this will help me and my Dr. see whether Remicade is...
Here is a recent study on mice regarding the controversial use of probiotics, which many of us take: http://news.bbc.co.uk/2/hi/health/7184011.stm I though that this might be of some interest to some....
Two steps forward, one step back. Just about 24 hours after my Dad took in his first liquids and the stomach pump was out, he started vomiting. Aaaarrrrgggh. So, back in went the stomach pump for 2...
I also had potassium through my IV while in the hospital for UC. Over my 10 day stay, they had to move my IV once a day because my veins were "blowing" from the potassium. I still have trouble...
Sherry You have had to endure so much that I hope you get some relief real soon. It seems like you just get the meds right and clear things up for a bit, then BAM you have problems again. I can...
Dawn, I experienced extreme fatigue when I was on 6MP (Mercaptopurine), which is similar to Imuran. I also experienced weird dreams that I remembered. Although I am off of the 6MP, have quit work,...
Congratulations! You are right, some things you just can't share with everyone, but all of us here really understand. Hope the good trend continues for you and that you feel well!...
I have an update on my Dad's colon surgery. He had his surgery Tuesday and over half of his colon was removed due to the cancer, together with surrounding lymph nodes. We will have the pathology...
Oh No Sherry! I'm so sorry to hear that things have gone from Bad to Worse for you. I hope that you feel better soon and are back up and around. It sounds like it might take a while to get over this...
I'm not currently taking 6mp, but took it for about 2 years between 2004 and 2006. I tapered off of prednisone while on 6mp. I took 9 colozal tablets daily and used Canasa daily while on 6MP. It took...
My GI gave me samples of a probiotic called Align today. Has anyone else used this or ever heard of it? I guess I will give it a try. It's possible that my Remicade treatments aren't as effective as...
My eyes really bothered me when I was on prednisone. I finally broke down and got a new prescription for glasses, but that prescription has changed every year for the past few years. I found that my...