Thanks Suebear, I know j-pouch.org, just not that well. To answer your questions (and I feel they are relevent to this thread)... The doctor didn't want me to take any fiber yet, i'm on a "low fiber...
I should also add, for me, that my texture is practically all D. Not sure how or why, or how to get it to bulk up to slow the frequency. Any help would be greatly appreciated....
I've heard Remicade is intended for Crohn's more than UC. I had three treatments and it didn't do ANYTHING for me....
I have recently gone through the J-Pouch process (2 steps) myself. I'm two weeks out from the closure of my ileostomy and have been having a hard time with the frequency of bms (even though I've...
Thanks Liz3. I can wait, but giving myself shots for NOTHING (if that's what it comes to) is NOT appealing. :)...
Have you been tested for Celiac disease?...
I'm in my 6th week, where it's supposed to take affect within 6-8 weeks. So far NOTHING! :(...
Is anyone else in the U.Colitis world taking Methotrexate? I'm currently taking 1 ml injections, once a week. I'm currently three weeks in. Apparently it takes 6-8 weeks for the medicine to take...
Oh, this isn't good news. I've been on it for 3 weeks at 1ml per week. Perhaps the dosage matters too. I'll have to keep an eye on this one....
I tried Imuran last year at this time. After taking it for a month it got really nasty. I started getting really nauseous after 10min of taking it, throwing up and basically knocked me out for the...
I'm going to do it to....
For those who have cut out carbs, do you eat any rice, or minimal amounts?...
Long over due, but here's an update. I was able to take the Imuran for about 2 months, then it got nasty with me. Each time I took the pill (50mg) I would get more and more nautious until I was...
I tried the asacol for a while, but found that even taking 2 per day that it irritated my colon and I never was able to get into remission. Weird huh? I decided to go back to the sulfasalazine (which...
Not to hijack builttoride's thread... I've been on the Imuran for a few days now and fortunately there's been no problems *knocks on wood*. On the lighter side, the other night my wife and I thought...
I've lost almost 40 lbs. I was up to 265 (which is big for me). Now I'm in the low 230s. It's mostly from controlling my diet (portions, quality food) and eating like the carefree person I used to be....
Lovely, I go on Imuran (azathioprine) today. :(...
I've been on Prednisone for (most of) the last 1.5 years. Today I'm seeing my GI about switching to Imuran so that I can get off the Pred....
I don't cause of the sugar. Sugar can be very, irritating....
I just clicked a few sponsors for you. :)...
I figure it can't hurt to try. I've eaten a can of spinach two days in a row now, and sunflower seeds yesterday. Today WAS much better than normal. Perhaps there is something to this......
I've been on Pred for almost a year and a half. (2 brief periods of nadda). I only flared up because I didn't keep up my maintenance (Asacol/Sulfa) ... live and learn I suppose. I don't really have...
Looks like my days on Prednisone are numbered. As I mentioned above, it helps but not enough to go to remission. Looks like I'm going to be switching to Imuran. Yay, another drug to try and...
I'm in sort of a similar boat, as I'm on the Prednisone and will be moving to Imuran. I'm currently on 40mg per day (split 20 morning/20 evening. I do this as the evenings are hell without the extra...
Sorry Christine1946, I've been away... I've been off/on it (mostly on) for a year and a half. Right now I'm up at 60mg per day to control the disease and it's helping. Can't get the thing to go in to...
I'm only on 20mg per day of Pred, but I'm pushing to go back up because I'm desperate to stop the urgency and pain. The asacol is nice but it's not enough. The other reality is the food has to be...
On one hand my GI suggested I take probiotics (Florastor) especially after taking an anti-biotic. On the other hand, I'm totally left on my own to manage it myself. Problem is I'm not a doctor and...
I'll hop on board the optimism train. My flare has lingered for way too long, and I keep expecting it to go into remission, but it wont. It's been frustrating, but I seem to find new ways to find...
I've found I haven't had trouble with V8 and other 'processed' veggies. It's the raw stuff that causes the problems. For me CORN in any format is death. Corn is a 4 letter word in my house. ;)...
My GI recommended I use Florastor, which has had very good results....
Another difference is in treatments. The mesalamine enemas are affective in the left side of the colon, but not the right since they can't "back track" that far to help....
My eye doctor told me last week that some UC suffers can also have severe eye pain, the medication for which is a topical Prednisone. I've never experienced this 'joy' but it's something you may want...
He is a UC Fighter! Great article....
I should have stayed away from the chocolate covered popcorn. Nuff said....
Very fascinating read. Thanks for posting this....
I started at 40mg (20mg in the morning, 20mg in the evening) and it wasn't enough. I got under control when I took the 40mg at once in the morning. Perhaps the 30mg isn't enough to get you started...
Congratulations, and hopefully I'm right behind you heading to remission....
I was thinking this too. Either that, or "I can eat a package or M&M's and get away with it"....
With this flare (I was out of practice for 9 years) I started by splitting it and it didn't help at all. Once I took it all at once in the morning there was an immediate change for the better....
Good luck damo123, and with any luck I'm right behind you. No pun intended. ;)...
I hear you there. I LOVE McDs. Funny thought, I ate at McDs all the time during my nine year remission. Not a single bad occurance....
I just took my last Metro. Glad to be done with it. Now I'm on to the pro-biotic. Woo, are we having fun yet?...
It's McDonalds fault!!! Let's sue! ;)...
I had a pretty hard time tonight. I'll blame the taters....
Crap, I just ate Hash Browns this morning. Well, we'll see if it rips me up or not....
And I can totally appreciate that. I have a family member that suffers from depression and is on medication. Like the old saying, "You don't know someone until you walk a mile in their shoes" you...
I ditto the other comments here. Lately I've been keeping it in all night, but in the beginning it was tough to do an hour....
I've flared three times and it's been helpful for me. I hope it works for you too!!!...
My primary care physician says Metro also is an anti-inflammatory, so at the very least we have that. I'm still on it but other than urgency once or twice a day I'm not having any other UC symptoms....
It absolutely does for me. Even when I'm tired I make myself go for walks every night before going to bed. I know those endorphins have helped with my healing process. I had a (couple) of brownies at...