The second i start thinking it might be a flair, i begin logging symptoms and if they last three days, I call the doctor. I used to be much more wait and see, but all that i was seeing was continuous...
Hey--I've been on it for 2 months, and besides a flair I've felt pretty good--but then again, i'm on a lot of drugs! I recommend starting at the lowest dosage and working your way up. I started with...
I can't recommend accupuncture strongly enough for pred issues--including sleep, crying (over everything) and being a total jitterbug. I'm on 40 mg right now and still managing about 6-7 hours a...
I used cherry once and orange once, both were equally not-delicious, but not terrible. I wouldn't use a straw though, since straws draw more air into your system and increase gassy-ness. The best...
Thanks, I am going to try that. There is some kind of goo on the applicator, but it is not as gentle as vasalene wld be. This is not an area where I need to save money, at this pt. my bottom side...
The box just says: "Mesamaline Rectal Suspension, USP Enema", so I guess its the generic kind? Whats the difference? I know its working, but the irritation is getting worse...thanks! lb...
Hey--Has anyone had irritation from Rowasa? I don't want to gross anyone out (although i'm guessing all of our tolerances are pretty high) but my bum has gotten irritated and i think it might be the...
I totally agree that what we know does not equate with what actually occurs or is possible, my point was just to explain that cervical cancer comes from HPV, and that is a disease that only impacts...
My doc says that VSL # 3 is the only one that has been tested in a clinical trial, and i could def. feel the dif btw. it and regular acidophilus. Good luck!...
Beth, I hate pred and want to taper as soon as possible, but i agree with you that you have to GO SLOW as much as it sucks. For me, if i am going to flair, it is generally in 4-6 days after i go to...
Hey--I am all about the drugs, BUT I do know that accupuncture has really helped me and there are some good chinese medicines out there--if you are done with the west, i really recommend it. But you...
Thanks, that is exactly my worry, with starting MP6. However, my GI doc thinks that I am probably more immune suppressed from all the steroids I am taking, then I will be when i am on the right...
Hey Everyone, I didn't know that HPV could mean warts on anywhere but women's private parts! There are three kinds of strains of the virus; ones that cause genital warts, ones that cause nothing, and...
Thanks for the responses everyone--definitely helped me go into my doc's office prepared. I'm gonna do it--praying on that miracle cure! Thank you, discovering healingwell is definitely making this...
Does anyone have any experience with treating these two illnesses together? I have had both for the last two years, with high risk HPV being diagnosed about three months before my colitis symptons...
I just want to second the mention of accupuncture. I'm flairing right now, have been for the last five days and I am hitting it with pred, rowasa, canasa and my reg high dose of asacol (16 pills a...
Hey Laura, How does the Tumeric work? I am enticed by it being in all caps in your signature! Lb...
I had an MRI a few months ago and it wasn't too bad. Just be prepared that the shot for the contrast is a big needle and it makes your whole body warm when it goes in. I don't know if they will need...
Hey Red_34, One more question, how bad is the hair loss? I already have some from the strain of Colitis, and i am trying not to be vain, but its hard... Thanks! LB...
Glad to hear it, as I said, I think i just have some kind of very latent allergy! LB...
I took it from a tincture--I am not sure how cooking it would affect the potency. It is some pretty potent stuff! Lb...
Hey all, I find that fennel tea really helps absorb gas, I just put a heapfull of seeds that you buy in hot water, let it steep and then drain it. It takes a bit of honey to make it tasty, but it...
I do accupuncture for the pain associated with my UC, but it also really helps my stress. You have to make sure you have a really good practitioner but it can really help--esp.when i am too sick to...
Yes, I've been on the blandest of diets pretty consistently from the beginning, and i do accupuncture for the pain. When i'm flairing, I basically eat chicken, baked potatoes, soy mac and cheese, and...
Hey--I had a bad reaction to the oregano oil, massive heart beats and hives, but i think i must just have an allergy. I'd just suggest starting with a very little amount, and then move up to the...
Sara--Thanks! We have a very similar history, but i've never tried metamucil, does it help? Lb...
I got through my last colonoscopy pain with a whole lot of fennel tea--it helps absorb all the gass that they pump into you. Maybe that could help? Good luck, LB...
Hi--I've used ambien off and on, but haven't ever been able to definitively tell if it is bad for my colitis. But yeah, colitis and sleep are not a good combo. Good luck, and yes, sleep whenever you...
Hi, what are the 5ASA retention enemas? Is that the same thing as Rowasa? A miracle sounds good! LB...
Thanks for the thorough response! My original doctor diagnosed me as having UP, but it is right in the border zone and a few doctors who have looked at my chart said that they would have labeled it...
I also vote for rectal meds. I, also, definitely go bland with the foods. I go on a pretty strict diet of soy products, chicken, potatoes and white bread. Also, and this is the hardest for me, no tea...
Hey, I know that asacol can take up to a month to get into your system, so it makes sense that symptoms are just starting now, but you might still adjust. I say talk to your doctor sooner rather than...
Hi, i am currently considering taking this drug and would love to hear other's thoughts/ experiences. Here's my History: I am a 29 year old women. I was diagnosed with Ulcerative Proctisis in...
I took malarone when i went to SA and Mozambique and experienced a major flair (i was on asacol at the time) but it very well might have been something else that caused it. Word to the wise, always...