I am currently in a very very long remission with Imuran. I have actually never had a flare on the medicine. I once had to go off of it due to medical reasons....and had a flare within a year ...then...
Im on Imuran (Azathioprine generic actually) and I can report no side effects at all. My blood tests are all normal and scopes are better than ever. My gastro seemed to think that more people than...
I haven't tried 6mp as I was put directly onto Imuran after trying most everything else at the time that was available. Many of us have had success with these drugs. I read the side effects and was...
I was on pred when I began Imuran and after tapering off that drug, I am only on Imuran and have never taken anything else since. Colazol and Asacol didnt work for my pancolitis, so this is it for...
I sound a lot like the original poster! Total type A/perfectionist. Married someone like me too! People pleaser...want the world to be okay with me and help everyone else be happy. Controlling. I...
I have pancolitis...and I was told if Imuran didnt work, that surgery was my next option. I have been perfectly healthy for a few years now, so it's tough to imagine that next step. But I have...
My doc made me aware of side effects as well, though he really made it seem unlikely I would experience anything negative. At any rate, I am on this drug going on 4 years..and no side effects ever. I...
I had not heard about a connection between Imuran and skin cancer. Well..thats a tad bit scary. /community/emoticons/confused.gif . Well, I have had the Promethius test a few times myself, and my...
Imuran put me in remission, and I believe has kept me in remission for 3 years now. I have nothing but wonderful stuff to say about this magic pill. No drugs are for everyone, and I was geared for...
La Jolla is really pretty too. Its not as ritzy, so you are likely to get better hotel rates. Laguna is crazy expensive to stay on the beach. I dont live too close to La Jolla, but we have stayed...
Summertime is the best for good beach weather. We dont have bad weather here in So. Calif though /community/emoticons/smile.gif Once Spring is past, its pretty much sunny and more sunny. I would look...
I live about 10 minutes from Laguna, and there are awesome hotels....especially if you have a larger budget. What time of year were you coming? In the Summertime, Laguna does a great Sawdust festival...
I did Ambien and it was lovely for me. I never woke up feeling drugged, but got my hours in, even when I was on 70 mg of prednisone....
Renee, thats great!!! The more you can keep it in...obviously the better off you'll be. Im another one who really cant handle restrictive diets. I do eat well, and I work out regularly, but my...
Keeping Rowasa in for en entire night didnt happen overnight for me. I'd say, it took 2 weeks or so to keep it in for 8 hours. Initally, Id hold it for 30 minuts to an hour. But as you start to heal,...
I was tweezer happy on Prednisone. OUCH. I had a big ol hairy chain and lip, Moonface, swollen knee joints, Panic Attacks, Acne, shaky hands, insomnia, metal mouth, leg and knee cramps in the middle...
I run low too. Im typically 90/65. During my last flare, I was 60/40 in the hospital. They said I was lucky I didnt have a stroke....
Im in remission with no side effects from drugs or colitis at this point. Imuran is what worked for me. I had taken prednisone for a long time before that and tried to maintain remission with Asacol...
I went after I was unable to even keep liquids down. Generally, my blood pressure would be very low and pulse very high. I was always bleeding heavily, was living in the bathroom, not eating..then...
Im not an especially anxious person (unless on prednisone!) but I am very very very type A. I am a perfectionist with aspects of my life, and this is why I flared at midterm and final exams as well...
I literally could have almost written your exact post a few years back..except that I knew I didnt want more kids again. I've been facing this disease head on since the age of 1. My first life...
I lost weight on prednisone too. Food tasted sooooo gross. I could never get the metallic taste gone and it ruined the taste of food for me. I didnt gain weight til I was off prednisone and in...
Its not my FAVORITE way to spend a few hours, but it is a necessity with this disease. Honestly, its not that bad, and I haven't ever had it make my colitis ultimately worse. You might have some bad...
Stay on your meds!!!!!!!!!!!!!!!!!!!!!!!!!! Seriously....there are probably other factors for different people, but I have always eaten healthy and kept in good shape, yet I always fell ill after...
My gastro told me at 19 that my colitis would get better with age too...Hmm. Not in the least! /community/emoticons/sad.gif My flares each got more difficult to manage and old drugs that used to...
prednisone gave me the worst metal taste, but Imuran never has....
3 1/2 years I believe. I am in no rush to get off this drug as my only side effect is NO COLITIS. :cool: I did years and years (pretty much my whole life) on other drugs that wouldnt keep me in...
Lori, Aww..Im sorry. Im sure you're in good hands now. I was JUST where you are now about 3 1/2 years ago. its like a bad dream now. Im hoping you're feeling much better soon and off the dread pred!...
Tony, I went to my gastro today for my Imuran refills and bloodwork, and he stated that most of his patients report no real side effects with Imuran. I am going on 3 years + with this drug and I have...
Raising my hand! I have pancolitis...my colon is a hot mess. Well, its better right now, but its pretty much all scarred up. Imuran is my drug of choice :cool:...
Side effects are different from us all. I have had great success with Imuran, but went 1/2 bald on Asacol and Rowasa. I have thick hair, so it wasnt obvious to others, but my hairdresser wouldnt cut...
I of course brought those concerns to my dr as well. I believe my dr. told me my chances were MUCH higher that I would get cancer from my colon being constantly inflamed before I would ever get...
Thats really weird that a gastro would say Imuran works so slowly because of the tapering. I started at Imuran on 75 mg (standard dose for weight I guess), and from what I can recall, It was about 2...
I know people who never had negative side effects, but they were on such low dosages. I myself usually started at 70-80 mg and tapered for months. The side effects weren't always so quick to show...
Lori, I take all three of my pills at nighttime too. :-) Michele...
I meant to add that I overlapped both pred and Imuran for a few months as well. I was never so happy the day I was done with prednisone!...
I posted on another thread not too long ago about Imuran too. I dont get here that often these days. Anyway, I have U/C (Pancolitis) and have since the age of 10. I had a nine year remission, but...
I have been on Imuran for a few years now and went into complete remission after several months. This came after YEARS of being sick and getting as close to surgery as I had ever been. Im on 150 mg...
More of the same here... Nausea is HUGE. I throw up while I am on the toilet. Oh the joy. Bloody stools.. Fevers Irritable! Joint pain Tired due to anemia Stomach spasms/cramps Zombie feeling in...
YOU CANNOT GET OFF MEDS EVER. YOU CANNOT GET OFF MEDS EVER. YOU CANNOT GET OFF MEDS EVER. DITTO! I only stay in remission with meds. Left to my own devices, I get sick and quickly become bedridden...
36 and I live next to Laguna Beach, California...
I am in the 120's and I am on 150 mg too. I started at 75 mg, but Promethius tests always bump me up. Dang that test is expensive!!!! I just got my portion of the bill..close to 175$. Uggh....
I know you got a lot of responses..but heres one more :smile: 3 years on Imuran now. NO side effect, no complications. I expected something, since every other medicine had given me problems. In a...
I had mine 2 days ago. My arm is really sore, and yesterday and I had stomach issues. Uggh. Not U/C, but bad enough. I didnt connect that it might be related til I read your post. Yuck...
I havent had hair loss either. I have very thick hair, so I proabably wouldnt notice unless it was extreme. I had huge hair loss on Rowasa though. I lost 1/2 I swear in 6 months. I was so scared. I...
Yes, definitely get the blood work done. My Imuran dose started at 75 mg, and I am now at 150! I weigh 128 pounds, so its not necessarily one size fits all as far as size/dose. Depending on what...
Well, it wasnt elective ( I had a lumpectomy AND an appendectomy), but I was on Imuran at the time. I dont recall any different procedures because of this. All went well... I know my dr's were aware...
Doc, I feel exactly that way most of the time! "If its not broken......" My gastro who I have been seeing since I was 19 (Im 36 now) used to throw out Imuran as "the big bad drug". He would say "If...
I have wondered this as well. I've been on Imuran for a few years now...I think 3 now?? I have had ZERO flares on this drug and ZERO bad days. I would love to not have to take any medicines for my...
Hi, I am certainly no expert in this area, but I did have two MRI's on my breasts last summer. I was going to have a lumpectomy on the right breast, and they ordered an MRI to give additional...