Do you have to request that they check for a bacteria overgrowth or do they automatically check it? She gave a sample several months ago and nothing was off. She is supposed to give another one but...
My sister is an adult but she has learning disabilities so my mom helps with a lot of the appointments. I have been telling my mom for months now to push for a GI referral. I've said she really needs...
Hello, oh my goodness, I have not been here in a long time! I am happy to say that I have been in remission for a few years now! I have a question and I'd like to hear your input. My question is...
Hehe, nice perk :D...
I used Entocort for a couple of years. For me, it was my miracle drug! Became dependent though and couldn't get off of them. Had to start Imuran and then managed to taper off of them....
So sorry about your mom. :cry:...
I'm on Imuran. It helped me get off of Entocort. I have not had any problems with it. When I first started taking it it would make me nauseous, so I started taking it at bedtime with a medium sized...
I had this a lot growing up while I still wasn't diagnosed. I considered it normal--though, obviously looking back now it was always the beginning of a flare getting much worse. For me at least....
Lol, very funny =)...
I don't enjoy c-scopes either. I've had four in the last 5 years. I always flare bad several weeks after too. =(...
I've vowed NEVER to take it again unless I'm in the hospital and dying. I was given Entocort instead of Prednison....
Salofalk doesn't need to be tapered for the same reasons as say Prednisone or anything like that. I want to take it slowly so my body has time to adjust. I don't want to just drop 6 pills one...
Thanks everyone. You pretty much confirmed what I thought was right. Hopefully I'll be back to "normal" in a few days! Unfortunately my GI is generic and arrogant. I'd rather not have to call him for...
Hi, I was on 12 pills of Salofalk a day for a couple of years. The doctor wanted me to get down to 6 pills and then drop one Imuran. Over the last 8-9 months I've been dropping one Salofalk every...
Hi, I am feeling the same way. My daughter is three years old and I hope daily that she (or future children) will never have to suffer with this disease. My only saving grace is that should she...
It's a very expensive drug, but for me it was my miracle drug. Although, I had some side effects from it after being on it for nearly two and a half years. The worst long term side effect for me was...
"Now 2-3 times can easily happen and usually does before lunch. It seems when I am flaring or about to flare my whole system cranks into overdrive. Whatever I eat passes in 4-8hrs usually theres no...
I haven't gotten it done yet. Am still considering...er, mustering up the courage. =) My friend has decided I'm getting it done in April, so we'll see, lol. Congrats on getting them done!! How much...
I eat gluten free and have so for several years now. When I first eliminated gluten I felt no difference at all. Then a few days after I started eating it again I got much worse. By the time I...
I was on 12 pills a day for a few years. My GI told me that 12 was pretty much the max and anymore and I would start having problems....
Everybody is different. When I was on them I did not have too much discomfort--slight cramp like a period, but goes away after a few minutes. I've seen people that do have pain and can't keep it in....
I don't have any advice for you. Let me just say my heart aches for your son. I have a three year old daughter and I pray that she doesn't get UC like me. Or any other children I have in the future....
Sorry for my late reply. Thanks everyone for the info and tips! The place I plan on going to comes highly recommended, very clean, ect. I guess I'd be looking at a slightly longer healing...
I'm sorry to hear that you're having to start pred again. Such an awful drug. I was only on it once and never again. Totally wasn't worth it for me. Unfortunately I have no advice for you on how to...
Hi everyone, I have not posted here in a long time! I'd like to think that is a good thing since I've been in remission since October 2008!!! :turn: Though I occasionally lurk to see how people are...
It's always a matter of the benefits are greater than any possible risks. YOU need to stay healthy for your baby. A flaring mommy on no meds would be much worse than taking your meds. When I was...
Well, according to their website it's 86% of people thought that it was better tasting than PEG and other types. It is the same thing as PEG..the only difference is you drink 2L instead of 4L. I...
Yes, for me I'd count all of the above....
In my own experience a couple of months. Hang in there....
I have no idea. I think it's random. Perhaps, seasonal as well? I could understand a build up of bad food causing a flare over time too...too much irritation finally makes flare....
Hello, I took Salofalk (1500mg x 4/day) during my pregnancy and during 13 months of breast feeding. My daughter is perfectly healthy. She is two now. Sometimes the risk is greater--and if you're too...
I take mine before bed (couple of hours) with a medium sized meal. It helps with the nausea....
Usually I start going to the washroom more with more pain. Sometimes I will have a little mucous. My tummy will hurt too. You're only on 6 pills a day...I wouldn't be surprised if your tapering is...
Yah, I'm a vegetarian...since birth, so I didn't get it from a cow! Very interesting that other animals get it too. Poor things... Environmental factors maybe?...
Yes, I went into full flare after my colonoscopy. The day after I felt so sick, blood, mucous, lots of bathroom trips. I waited a few days before I called the doctor because I thought maybe it was...
Yes, blood is a normal part of flaring. And you can lose A LOT. That's why most of have low iron. It can't be only IBS if you're having blood. You can have both though. I have UC and irritable bowel....
2-4, depending on what I've eaten the day before--IBS. When flaring it's like 10+. That's weird that he wants you to take Immodium for going twice a day....usually you would take it if you're going...
Hehehe. =D...
It's definitely possible to skip your period entirely if you're too sick. But, if you've never missed a period in the last seven years than that means you're regular. It also means flaring has never...
I agree with jones_77--Tinkyada pasta is the best out there. It does not mush. It was the easiest transition food for me. For bread I would reccomend Ener-G High Fibre or Ener-G Seattle Brown....
The steroids cause the skin to lose elasticity over time, hence the stretch marks. I have them after two years on Entocort. My upper arms like you, the sides of my tummy, my tummy (but that's from...
Actually, a few months ago while tapering off Entocort I had the same problem. Not necessarily from cold drinks/food. It was more like random tooth pain. Usually the front teeth....
Oh, and if you decide to go make sure you say you'll THINK about buying their products and come back!!!! Sometimes you can get certain things cheaper. Because you can easily leave with $100+ worth of...
I saw a natural path for 6 months or so. She was trying to help me pre-diagnosis. She is the one that discovered my gluten intolerance. I took a whole bunch of powder packed with nutrients but I...
[/quote] It is Salofalk. I'm not sure what the difference is. My GP and GI just call it asacol. I get 400 tablets per bottle and it lasts just over month. I do have medical benefits that covers 70%...
1) Moon face 2) Gained 30lbs in two weeks (came off after stopping) 3) Severe mood swings--either super happy, sad, mad. I would be serving customers at work with tears streaming. 4) Insomnia--and I...
$232.00CND/per month. This includes Pharmacare...it goes down a little every month. Takes the whole year to get under $20. Then shoots back up to $232.00 in January. SUCKS....
I would suggest not using Imodium every day. There is debate on how safe it is. The label even says not to use it if you have UC because there is a risk for mega colon. I woould save it for days that...
I take 12 pills a day of Asacol. I breastfed for 13 months and took the dose while pregnant. My daughter is fine, normal, very healthy. I was only on Entocort while pregnant and nursing (steroids)....
Wow, it really sounds like you need to find a new GI. Doesn't sound like your current one is doing a good job. When was your last colonoscopy? And did the steroids help when you were on them??...