Thanks for the replies! I have been sleeping all day and i am going to rest until tomorrow as much as possible and see what happens. I'll give it one more day before I pursue antibiotics - but if I...
I am soooo sick w/ a sinus infection but I'm terrified to go get antibiotics... I've heard people say that it made them go into a flare. I'm on 6MP so my immune system isn't working great and this...
Serpentskurt, I totally agree with you that I got my C.Diff from the colonoscopy!! I was in a "normal" flare, went in for a scope and a week later was just about on my deathbed w/ C.Diff. For me it...
Did he check you for C.Diff? When I wax exposed to CDiff was the only time I started vomiting. If you're in the hospital i imagine he tested you, but I'd make sure. good luck! renee...
I ended up in the hospital last summer after about 6 weeks of a horrible flare. After 2 days of vomiting & fever on top of the bloody diarrhea all day long, I went to ER and found out I had C.Diff so...
Flagyl didn't help my C.Diff at all (and had some yucky side effects for me such as nausea, etc). Within 2 does of the Vanco, I was on the mend....
I felt like total crap-ola for about 3 months, dry heaves in the morning if I didn't eat, tired a lot. It was seriously like morning sickness! I even took a pregnancy test at one point, LOL. I've...
I had to go off of Lialda due to headaches and am curious about this new version of Asacol. I like the idea of taking less pills!! But I'm curious if I'll experience the same side effects (headache)...
i've had a headache for the past 3 months every single day, ranging from bad to migraine. my regular doc has me on Topamax, Butalbital (as needed, I try not to take it often), Muscle Relaxers (they...
That cracked me up!!! I was in such good shape before my flares began (in fact, used to be a personal trainer) ... now I can barely make it up the stairs without being out of breath. UC really took...
My husband struggles to keep weight on (just part of his metabolism, and he works out a LOT) so he has always been a fan of high calorie shakes and smoothies. He does not have UC, so I'm not sure how...
I've had 3 flares, each one about one year apart (since first diagnosed 3yrs ago). My doctor told me that my likelihood of a flare within the next six months is about 75% if we don't take precautions...
I have developed an itchy, burning red rash on both of my cheeks. I started 50mg of 6MP last Thursday and am tapering the Pred (down to 2.5mg every other day). I left a mssg for my GI, but was...
Oh Lord yes! I love the paint mixer analogy - that was totally me until I was down to almost zero Pred. I trembled constantly....
yep, i was sick as a dog on it. switched to vancocin and worked like a charm (was taking for cdiff)...
My sister gets epidurals for a back injury. it's not like a childbirth epidural - this one allows you to walk just fine and lasts her for about 2 months. she is able to function completely, where she...
It didn't do anything for me when I was flaring. (But it was a baaaaaad flare). I haven't tried it since then. It may work better for less major stomach upsets??...
I am on Celexa too (20mg) and it has helped me tremendously w/ anxiety. Everyone is different, but I would give it a few weeks before you give up on it, as long as they side effects are bearable....
After paying $110 a month for my Lialda for the past 2 years, I went today for a refill and it was only $20! I looked it up and Blue Cross changed Lialda to a Tier 2 Drug as of July 1, 2009 (Tier 3...
I started aching when I got down to 20mgs of Pred. I had horrific knee pain the 2nd night of tapering to 20mg, then it slowed down, then this week i had it again when tapering to 15mg. I think it's...
I know it's gas pain when I let one loose and feel better. HA! :) I remember doing yoga positions trying to "work it out" -- doing the duck walk across the floor (this one really works), lying on...
Yeah, I'm going to miss the energy too. As I sit here working, my legs are bouncing bouncing bouncing in my seat. Nice to have the energy after being SO weak for so long w/ the flare, huh?...
Yep, I have been tapering from 60mg for 6 or 7 weeks now (started 15mg today). I haven't gained a pound, though I seem to be hungry all the time. I think the "speed effect" raises my metabolism. Now,...
GasX and Phazyme did nothing for me too. I would lie on my left side like Samantha said. Some of that left-sided pain could be the UC though. The pain for me resembled sharp gas-like pain. Try a...
Flagyl really messed w/ my stomach/bowels. When the doctor switched me to Vancocin, i got better. (my treatment was for C Diff). I definitely think it could be the Flagyl (or it's not helping,...
I work from home and it's the only reason I've kept my job. I cannot imagine having to go into an office with this disease. I really have no idea how you guys do it!!! I did not tell my boss for the...
My doc gave me Phenergan. It does make you sleepy but it's better than throwing up! FYI, the nausea and vomiting was my first clue that I had C.Diff on top of my UC. Just something to keep in mind. I...
I'm thinking that's an antidepressant or anti-anxiety medication (like Zoloft, Celexa, etc.). I'm not saying it doesn't help, but it sounds like one of those docs that think UC is just stress-related...
Tks Glamourgirl - I didn't even make the alcohol connection. I haven't really had anything to drink for a few months while I was flaring and so sick, and I did have some Firefly that night (my...
Thanks so much for all the replies! I'm really perplexed as to why my doc would say that it has nothing to do w/ my UC. I started feeling the aching in my knees before I went to bed last night, but I...
Thanks for the quick reply Dee. We really need to chat - have way too much in common. I also have three boys (ages 9, 7 and 3 - how old are yours?), we're close to the same age, and take several of...
I have been tapering Pred for about 4 weeks now. I started at 60mg and am now down to 20mg (as of Sunday). Last night I woke up to horrible pain in both my knees around 4am. By 5am I had to get out...
Bless your heart. I had C. Diff about a month ago and it about killed me. I ended up hospitalized for 6 days, then had to go back a week later. That's really great that you are staying hydrated -...
Also, the Vancocin antibiotic is specially formulated for C.Diff. It won't do anything for, say, a sinus infection....
i'm on the fence about it too. My doc and I had a long talk on Thursday about my options. One thing he said helped a bit: "Yes, you have a 6x larger chance of getting cancer. But, anyone on the...
My doc game me Hyomax (supposed to calm the stomach/colon) but it never did anything for me. the only thing that worked was Lortab (combo of Hydrocodone & Tylenol) but you can only take that so long...
My doc gave me Lortab (a combination of Hydrocodone & Tylenol). Great stuff! Just be careful of getting hooked. :)...
Emily, I just had C.Diff a few weeks ago on top of a bad flare and it put me in the hospital for 6 days. For me, they started me on Flagyl and it didn't work. I didn't start to feel any better until...
Some of you may have already read my story so I'll just say that I was recently hospitalized for my UC and found that I also had C Diff on top of it. I have been home for a week and a half and on my...
I had a similar situation a few weeks ago and it ended up that I had C. Diff on top of my UC flare. C Diff has several of the same symptoms as UC but predominately (for me) the stool became really...
A good question and one I've wondered as well. Anybody out there w/ a good response?...
Joylu, I just want to say Thank you for starting this thread. I can get myself so worked up reading about all of the negative side effects of the different medications we're all on. While I think...
I can't remember what it was called, but they were 2 small bottles of clear fluid. I mixed it with Sprite and it really wasn't that bad. The nurse recommended the Sprite....
Yep, I've got it too. I thought it might be from the Prednisone or something. I just got out of the hospital with a 6-day stay to pull me out of death's door w/ my UC and C.Diff and came home with a...
I have been taking Lialda for 2 yrs and drink often. Never any problems unless I'm in a flare! Everyone is different though....
to UC in Memphis: Well, things didn't quite go as planned. I truly think that the Colal-Pred was working as you can see from my original posting, and it went on getting gradually better for a couple...
Some of you may remember me as the person doing the Colal-Pred study. The first 3-4 days into the study I saw steady improvement, then things turned really, really bad. By last Monday morning I was...
Urgh, I don't know, man. I'm so freaked out about having an accident in public that the panic would probably send me into the worst flare EVER! :) Also, I don't know about you, but when I'm in a...
Since it's a blind trial, I obviously don't know the dosage I'm on (or even if I have a placebo), but I'm pretty sure I've gotten a smaller dosage. After day 2 I was feeling "better" - less...
You know you have UC when... Your priority in buying new pants is "how easy are the buttons, can I get them down fast enough??" (women will understand this) You know way too much about which is the...