Thanks for the support! I do plan to appeal it, as I've appealed many claims in the past. It's just so frustrating that just because I have polyps, my procedure is not covered. They still have to...
A little background: I was in remission for two years and on no medications until last October when I started flaring. I started seeing a new doctor and he wanted to do a colonoscopy to see what was...
For me, the swelling in my face takes as long to go away as the amount of time I was on Prednisone. So if I'm on it for 8 weeks, it takes 8 weeks for my face to go back to normal. I know that isn't...
Immodium and Xanax are the only things that help me when I'm nervous about an appt or outing....
I'm on Cortenemas and Entocort (for about 3-4 weeks now) and I'm still having bleeding, urgency, d, the whole nine yards. Along with that, I also have times where I go pee and without feeling like I...
I was in my 2nd trimester and I somehow got c diff. I wasn't on any antibiotics. I had c diff my entire 2nd trimester and then it finally cleared up. Within a week or so of having my daughter, my...
It's Uceris but I can't find an update on it's approval. I always wondered why a drug like Entocort couldn't be made to deliver further into the colon. It sounds like this might be it. lol...
I'm glad you're starting to feel better. My GI is really pushing for me to try Humira but I'm just not ready yet. It's good to see positive results from you and I'm anxious to hear how the others who...
I take Immodium quite often. Sometimes it makes me feel blah later on in the day or the next day but for the most part, I tolerate it well. It's my saving grace and gives me peace of mind when I...
I'm not on the pill and I always get D right before my period starts. I went off the pill years ago because I didn't want anymore drugs in my body besides all the other stuff I was taking. My periods...
I was given propofol last time. The nurse even commented that it's what MJ took. lol She told me it's newly being used for c-scopes. Before that one, I had never been told what I was given and have...
Unfortunately you won't make any money off of me. lol Stress doesn't effect my UC. I've had some really stressful life events over the course of the last few years when I was in remission with no...
I'm glad to hear you had a great vacation and your symptoms are doing pretty well....
When I first start using enemas, it's a given that I can't retain the first one. I just surrender to the fact that I will need to do two tries each night for the first week or so. I am usually too...
When you have blood drawn does the person wear gloves? I always thought they did, at least that is what I remember. I am seeing a new primary doctor and I was there on Tuesday and again today, both...
I'm glad it was short lived and you are out of the hospital. My hemoglobin from Tues is at a 9.8. I am off to the lab today to get more blood work done. Fun times! I'm usually always anemic and never...
We went to a wedding when I had moon face and guess what the bride and groom sent with their thank you card? A picture of me and my hubby at the wedding with my big ass moon face. I nearly cried. I...
As horrible as all the Prednisone side effects are, honestly the moon face is what bothers me the most. I know it's stupid but it makes me feel like a total freak. For me it takes just as long to go...
I'm sorry to hear about your sister. It would be nice to have someone so close to share this horrible disease with but at the same time, you don't wish it on anyone. I like the humor in your blog. :)...
There are only a few things that I've noticed that at times have bothered me. They aren't every time I eat them and it can happen either in or out of a flare so I think it's just a fluke and no...
No clue and no clue! lol I flared for pretty much 7-8 years straight. I was on 6MP for several months and the bleeding finally stopped. 6MP was giving me issues with my appetite and it was around the...
Food doesn't seem to effect me. I was medicine free and in remission for 2 years and eating whatever I wanted so I'm not a believer in diet changes for me....
Yes, I was only on the 6MP this time for one month and had my blood taken every two weeks. Over the course of the last two months, I've had bloodwork four times....
I was in remission, med free, for two years. About 2 months ago I started having some bleeding. My doctor did a colonoscopy right away along with some stool tests and confirmed my UC was back. To...
It's weird for me because I have to really split my dose up and take it four times a day. If I don't, I feel like I get really sick right before I need to take my next dose. For example, when I take...
Do you take Immodium? I'm just wondering because it does wonders for me in circumstances like those. Even when I was in remission, I would still have occasional days where I would have to "go" in...
I have this problem and I always attributed it to being dehydrated....
What's the lowest dose anyone has ever started on to get their symptoms under control and how long on pred total? My GI's always start me on 40 mg and it takes at least 8 weeks to ween. The side...
It's amazing how quickly we can forgot how horrible flares are. Can't you go back to what meds you were on? Thanksgiving is still a week away, maybe you can get things better before then. I've been...
I don't get pain with my flares either. The only way I know is from the blood. It sounds like a good plan to start the Asacol enemas to nip it in the bud. I hope it stops it in it's tracks for you...
Flagyl never worked for me when I had c. diff. I had to take Vancomycin which I had to do what's called a pulse dose of. I can't remember the exact regimen but it was something like, 3 days on Vanco...
I plan to eat as normal. Food has never been a factor for me in my UC so I can pretty much eat and drink whatever I want....
I was on 6MP when I went into remission last time. I stopped taking it about 2 years ago because I was having problems with the side effects. Somehow I managed to stay in remission for those 2 years....
I just stopped 6MP after being on it for 3 1/2 weeks. It made me feel so tired, no appetite, and just blah! I was on it a few years ago and hardly had any side effects. I'm not sure why this time was...
It's probably been about 2 years or so since I've been back. I'm happy (and sad) to see many familiar faces. Sad because that means so many of us are still sick. :( Around December 2010, I stopped...
Does anyone take Immodium on a regular basis, like 3-5 times a week? I've been taking it that often for several months. I feel like it's the only way I can leave my house and not worry about having...
Bactrim is actually the only antibiotic that works well for me w/my UC and does not cause c.diff for me. I've suffered severely from c.diff which came all on it's own, I wasn't on any antibiotics....
I tried it and it did something weird to my leg muscles. I could hardly walk. I had to stop taking it because the side effects were too much for me....
Seriously!?!?! Is it really this hard to find a good doctor? I've been diagnosed for 8 years and I'm on my 5th doctor. I've yet to find one that I truly like. At my appt. on Friday, the doctor's cell...
He's okay. I have issues with all the doctors I see. lol I think because I've had the disease for so long, I know what works and what doesn't work for me so there really isn't anything the doctor can...
I'm curious what the doctor will say. We see the same doctor and his answer to me has been Remicade. I've avoided it all summer but I'm still bleeding so at my next appt. I might finally give in and...
I know exactly how you feel! I'm on 6MP and it helps but doesn't put me into remission. I've had the disease for 7 years and I've been pretty much bleeding the entire time. I've tried all the ASA...
Hmmm, interesting that you posted this. I don't get cold sores but I get canker sores. In the last few years I also get a tiny bump (just one but in a different spot) in the vaginal area every 3...
I flare year round but I've noticed that fall and spring are the worst for me too....
My UC started as c.diff. Somehow I got it without being on any antibiotics, I had it for 3 months and had a really hard time getting better. I was pregnant at the time too, it wasn't fun! The c.diff...
I'm glad to hear that you're doing better. I know how much you've struggled. It must be such a relief to finally have medications that work for you. All of those antibiotics would probably kill me....
I'm having a colonoscopy in a few weeks. It will be my first one with Movi Prep, I've always used Fleet in the past. I'm really nervous about the amount you're supposed to drink. I haven't picked up...
I tried daily meds but they gave me side effects so I stopped taking them. I hate the thought of being on another med that I have to take daily. I've thought about trying them again but it's just so...
I saw one before and they basically had me practice leaving my house, etc. It really doesn't help me when I have a colon that poops whenever it feels like. lol. Basically it's the disease that causes...
Before UC, I was the most laid back person..no anxiety and never let daily stress get to me. Now that I have UC and never know from day to day when I'll have to use the bathroom, I have major...