yep. me. 7 years on azathioprine. did great the whole time, and no real side effects. I was at 150mg/day. Got off recently because no signs of UC even when biopsied from a scope, but now having some...
Hi Renegade88 -- Hopefully this is a helpful point, I just throw it out there because you sound frustrated ... I understand that it is tough to feel like your doctors want you to take drugs you may...
thanks so much to all of you for this info. I'm actually seeing my GI tomorrow so will mention both the Psyllium and the Elm. I'm excited for some non pharma options...
Hey HillHunter -- I live in a house divided. I'm a Carolina grad, my husband is a Duke grad.... As for the Elm, that's interesting. I take all my medicine at the same time -- every evening before...
interesting. thanks for your thoughts...
ok. thank you for the quick response...
thanks Probiotic and Gary. so so so glad to hear it can be effective....
yeah, avoiding side effects would be great. as for geography, Pittsburgh also has very cutting edge medical care, so there goes my geography theory!...
I've noticed some of you take Slippery Elm. I'm looking to add some non-pharmacological supplements to both help my UC and also boost my immune system. So, for those of you who take Slippery Elm, can...
Thanks for the quick reply, BananaGirl. My symptoms aren't bad (yet), but I have to travel next week so we are trying to nip this before it gets going. So, I don't want a higher dose (unless my dr...
Have any women out there flared post partum? I gave birth to our first child 14 months ago (vaginally), nursed her until about 4 months ago. Now my body is back to normal, but am starting to flare. I...
Hi. I've had UC since spring 2007, and though it took a year, found remission in spring 2008. Now am flaring for first time since then. During my initial diagnosis, I required 2 courses of prednisone...
Oh, as for high fiber, works for some but not others. For me I couldn't have any fiber while flaring hut now like to start my day w big bowl if oatmeal....
Hey. My thoughts, for what it's worth. The first year is scariest because you have so many questions and fears about future. Take a deep breath and try to relax. This gets a lot easier w time. As for...
Hello. I just finished a round of antibiotics on Monday for non-UC infection and within days got very ill. Found out a couple of hours ago I have c diff, and have been started on vancimycin. For...
Hi. I have been getting some tingling in all sorts of extremities - arms, legs, hands, feet, lips, knees - on and off for awhile now, and recently it has been worsening. It could be that this has...
probably the pred. I've been on Imuran for 2 years - no taste from it. good luck. maybe sucking on a hard candy would help?...
not positive, but pretty certain entocort only works w. Crohn's disease. I'm not sure why, but i remember thinking it would be a great alternative to pred, and being told it wasn't effective in UC...
the manufacturer of Remicade have a program to reduce cost for people who can't afford it. I'd do some research there and also discuss it w your dr. as your dr. may know about it also....
i wouldn't worry about it at all...
Coffee is one of the only things I know I can't tolerate. I can basically handle everything else. seriously. so, I drink a black tea with milk. or sometimes hot chocolate, but not hot coco everyday...
This essay in the new york times is about living with IBD (specifically UC). ...
This essay in the new york times is about living with UC. ...
steve hanauer at U Chicago is one of foremost GIs. a little old school, but definitely just as reputable as Mayo. u chicago is good in general for GI...
I was the one who wrote them, and so I had long followed Sue's posts. I am SO SO glad you think they are good and useful. Approval from fellow UC-ers is very important to me. -Loren...
FYI - just released. I wrote this about UC but the package I am working on now is about Crohn's. This is the same format I will be using for the Crohn's package. Brief essay on controversy...
FYI.... just published this afternoon Brief essay on controversy surrounding when to have surgery for UC: http://health.nytimes.com/ref/health/healthguide/esn-ulcerativecolitis-ess.html Interview...
tums - I feel VERY strongly you can get back to what you are describing, either w/ meds or surgery. But, Aza can take a long time to become effective. for me it was 6 months, which feels like...
princes - did this happen to you before UC also, or is part of your post-UC life?...
I was TERRIFIED of it. has been really wonderful for me. haven't been on pred since it kicked in. haven't lost hair or any of the other awful side effects. haven't gotten any flu bugs, still loads of...
Hey Dawn - I just wanted to say hello and send you some positive vibes. I am sorry to hear you're in the hospital, but it sounds like the docs think they can control it, so that's very good. By...
hey. I have been feeling great. but lately one of my shoulders has been bothering me, so of course I am freaking out that I am getting arthritis from UC. But the thing is that bad shoulders run in my...
for those of you who have it, what were your symptoms? hod did you know or get diagnosed? thanks...
some days I am just not hungry, which is very unlike me and did not happen before UC. does that ever happen to you?...
For some reason, today I was wondering how many of us got diagnosed with IBS prior to getting diagnosed with UC? I had IBS for years, supposedly, before getting UC..... Now I wonder if really I had...
I know you are worried about the aza working, about it keeping you off pred..... I just wanted to throw in some words of encouragement and let you know that aza has worked for me, and I have...
hanauer is at U. Chicago...
what did the GI say? how are you feeling? hang in there....
for what it is worth, the acne goes away after oyu get off the pred. I have pretty good skin, but broke out on pred, and then it went away once off pred. maybe just get her some good concealer/make...
dakota girl - what is this website? I have never heard of Associated Content....thanks for sending...
I have been on Imuran about 10 months and actually seem to stay healthier than many of my office mates, who have gotten crazy flus this past winter that I never got. I use hand sanitizer and I do NOT...
by the way, even if you search for "humira," the website will bring it up as the generic name, which I think is adalimumab (or something). but it's the same thing...
I was also going to suggest U CHicago, and Hanauer specifically....
I have never heard of UC settling down in your 30s. that would be great, but I wouldn't put too much stock in it, personally....
I am not in the study but I had to do some research recently on clinical studies. you can find out who is coordinating the study by doing this: go to www.clinicaltrials.gov do a search for ulcerative...
don't feel like an idiot or beat yourself up. yuo probably drank too much because you were with people who don't have UC, an djust were hanging out and having a good time and being a normal person. I...
my GI recently told me that Methotrexate is not nearly as effective in UC as in Crohns. My understanding is that remicade has better potential in UC, and also, potentially, fewer side effects. it...
I have. I have been interviewing GIs about promising drugs, and this is one they think may eventually have some potential. I think, though, that it is early....
so, my UC is great. no blood, no urgency, no pain, no frequency, no D. Amazing. Rectal meds ROCK! but now, some nauseau, lots and lots of burping, churning stomach (doesn't feel like UC churning). GI...
Joan - thank you for the generous offer. I don't know how far the NYT will go with its coverage in terms of how many features it will devote to UC, but it is a great idea, and one I will definitely...