Thank you! I reached out and they retroactively go back 120 days! It still seems to good to be true BUT I am very hopeful....
Are you hydrated enough? That can have an effect too....
I had heard about this before but brushed it off thinking I would not meet the requirements but turns out I do. My infusion nurse sent in my application when I got remicade the first week of Jan. I...
I think everything came back ok....
hello, I was 24 at diagnosis. It sucks and its really hard. It does take time, for me it felt like 3 steps forward 2 back for a while. I hope you get relief soon. All my best, Beth...
when I flare any type of coffee including decaf and oranges exacerbates my symptoms. When not flaring coffee might move my bm along....
Hi Q, I found my report. I had a benign adenomatous polyp removed, they want to know if its sporadic or if I have dysplasia (not likely) so they will repeat the colonoscopy again this year instead of...
Hi Old Hat! Good to see you again. I hope you are doing well! I have noticed I do feel better eating a low amount of processed carbs. I am going to try sprouted grains ..I think that's what it's...
Hi Q! Yes it has greatly reduced the crystal deposits in my hand that I can see. My joints feel better too. Seeing the deposits is what finally got me the dx, but by that time I had just figured it...
It's been a while. I'm doing pretty good, still every 6 weeks on remi, might up my dose as my bms have been a bit looser lately. I had some kind of polyp in my colon, so I will get yearly...
Hi Susie, My DH and I bought a two story house about a year and a half ago...I regret it already! I'm 41 and already nervous about getting around to chase my 3 year old. Thank you very much for the...
I'm a newbie to arthritis but not to HW. I have osteoarthritis in both knees. Stairs are difficult and it feels like one of my knees is going to buckle beneath me. I'll start physical therapy for...
So good to see you guys! My UC is good, they moved me from 8 weeks to every 6 weeks when I flared during my pregnancy. My daughter just turned 3 and now I need to get this RA under control so I can...
I'm baaaaaack. Well really just stopping in to say hi on my way to the Rheumatoid arthritis page. Funny how remicade is used for that too. Apparently my body likes to attack itself. I hope you're all...
I was on Imuran the first 6 months of being on remicade....
I've been on remicade since 2011, I don't remember having any extra anxiety or anything but during the loading doses it was a difficult emotional time, I was still sick, praying it would work and...
Sending non creepy internet hugs and German chocolate cake. It totally sucks and you have every right to a pity party!...
I had a flare in first tri, they bumped my remicade up two weeks and it helped put me into remission again. Hope it's just all the hormones from first tri. Good luck!...
NSSG, thank you for thinking of us. Fiona is 3.7 lbs and finally off the breathing tube and onto CPAP. GI says he won't retest me and NICU says no retest either. I think they are going by symptoms....
Found out I had c diff a month ago was on vancomycin for two weeks 125mg 4x day. Diarrhea got better in two days but my poop has been once a day but it's also soft, not regular for me harder poop. I...
When I have bad cramps I get a day or two of D....
Thank you for your kindness and concern. I do have c. Difficile, I'd prefer a flare. I'm on vancomycin and starting to feel better. I just hope this goes away but I'm scared from reading Dr. Google....
I have c diff too....WTF! Last thing I need. On the vanc too 125mg 4xday...
I did one at a time, some online and some at school, I have 5 left to go. It's worth it but sometimes it really sucks, especially when I'm paying money to take a course from someone and I could have...
Hello, It's been a while. Haven't flared up since first trimester and got that under control with moving up remicade to six weeks. Got a dose 2nd week of December and had a c section Jan 11th at 25w...
Cimzia? I think that is available now?...
Thank you! Q, they are fraternal, hope that will help me tell them apart ; )...
Also GI checked and he said I was not building up an immunity to remicade but that there was also not as much of it in my system, so that is why I'm now at 6w. That's my understanding at least....
Hey, I was flaring with blood and D about 8 times a day and went in two weeks early for remicade and I'm feeling much better now and have had two great poops in the past two days. Going about 1 to 2x...
I'm sorry you are here........ but welcome. I was filling up toilet bowls full of blood and the Dr's office wanted me to wait for 3 months. I got very detailed with them and they got me in the next...
Thanks so much for your responses, it's so scary when I have two other people depending on me. I usually get D when I get my period so def hormones affecting me. I saw the GI this morning and he...
Your GI can test for proteins in your urine for kidney's affected by 5ASA's. If your ankles start to swell then that is an indication. I'm one of those very small percentage, lucky enough to get...
I've been on remicade and flare free for two years and recently my stools have been smaller and less width than they were previously. Then a week ago I get blood on my poop, it's like a straight line...
There are some great low salt recipies on the Davita kidney website, I'm going to make some soy-less soy sauce, hope it's good! I also read a book I think it was called 'Coping with Prednisone' it...
It's so hard when you are flaring. I had to stop my social life and miss out on a lot of things, it was so very upsetting. I read A LOT! That kinda saved me from going completely crazy. I hope you...
Thanks, I feel better........mini freak out over!...
so I looked online and found that Aenta does include remicade but I think it's up to the company plan? http://www.aetna.com/cpb/medical/data/300_399/0341.html...
So I found out on the down low at work that next year we will be changing from BCBS to Aenta and if Remicade is not covered I am going to freak out!!!!! I can't ask anyone yet b/c I'm not supposed to...
Fabulous news! So happy for you!...
thanks for the info scifigal. Knock on wood, I haven't had any symptoms before my next remicade in a year and a half. I'll definitely work with my GI on dates. Congrats on your little one, glad she...
Thanks Ladies! Fingers crossed, it's still very early. I'm only 5'5 but have a long torso and short legs, i have to wear petite length pants, maybe that will help?...
Hello, I have planned to continue remicade during pregnancy, I know there is a cut off time. I have been on it and in remission for almost two years. My last infusion was on 7/24 right before I got...
my last remicade was 7/24, so I haven't had it yet and my next one is 9/20....
Hello, I usually post in the UC board but thought I would be able to get some additional responses over here. I have planned to continue remicade during pregnancy, I know there is a cut off time. I...
Good luck with remicade : ) I get warm blankets, benedryl & tylenol, a recliner, DVD player if I want one, I usually doze on and off and bring my nook and ipad (same as Judy). The nurses are...
so sorry to be welcoming you here Luke. I was dx'd at 24 and symptoms started at 23, it sucks really bad! However, once I got my flare under control I was able to do everything normally again as long...
So sorry you are going through this. The not uriniating much is probably due to the problems with your kidneys, they are not filtering correctly and your body is retaining fluid, which is why you are...
Wow this post was a blast from the past, I was 31 then and 37 now......I've been coming here for 6 years.........
oh wow blast from the past! I went to Lollapalooza in '92 with the RHCP and Pearl Jam it was awesome and then again in '95 with the Beastie Boys and Smashing Pumpkins......ah the good old days!...
Are you on medication?...