you see see a rheumatologist, but it sounds like what happened to me on remicade...a lupus-like reaction...it was so painful, i would cry, my fingers hurt my ankles hurt...oh god...going off the...
oh, goodluck! I finally got an appointment, but not until January...
My Gastro is at the crohns and colitis center at mass general, as I live outside of boston. He has contacted a neurologist at mass general, but supposedly has not heard back from him. I was hoping...
Thank you all for your responses, i am hoping that my dr will call soon with a neurologist appointment (fingers crossed). I have also read about the nervous system side effects on some of the TNF...
I have been on Cimzia since July, I am thinking this could be a side effect (I am almost hoping this is a side effect so it is not something worse). I have noticed that my hands are constantly...
is it joint pain?? cimzia can have a lupus like reaction...see a rheumotoligist...
I am in a bad pattern of flaring, everytime I think I am healthy, I get sick again. I eat well, exercise daily and take all my meds. I am thinking I need to do more. I have inconsitistanly tried...
i just had my 4th shot and I havent felt it working yet, but i'm sure it works differently for different people. The shots really dont hurt which is the good thing...and i have had only a few small...
The first few times I took prednisone, i gained alot of weight. Since I have been dealing with this now for almost 10 years, I have learned not over indulge when I am on steroids. I make sure to...
thank you for your input..i have never had an obstruction before....maybe it is??? so far i can keep liquids down...i only have the urge to trhow up when i am trying to go to the bathroom...
I have vomited bile two times this morning...both time i was on the toilet and having abdominal cramping (going to the bathroom) The throwing up has happened before, but never bile... any ideas? (i...
you may want to have your doctor do an ANA blood test...i developed drug induced lupus from remicade and had horrible joint pain and fatigue...
you should call your doctor I know for my injections i was taught to pull back on the syringe a little before injecting to see if i had hit a vessel, but the nurse said in nearly never happens!...
I have always had really nice skin...until i started cimzia. Ha sanyone else had this happen...i never had it happen on remicade or prednisone... I know that the cimzia and chrons are more important...
do you guys get the shots administered at the doctors office or at your home? does anyone do it by themselves? i think my doctor mentioned sending a home health nurse....
I am starting cimzia as soon as insurance oks it. I had a lupus-like reaction to remicade and thye would not let me try humira due to the similar make-up of the drug. I am so hopeful that it will...
I had a fistulotomy this past friday. Pain has got much better and thankfully after looking at it, the doctor said it was only "superficial" I was wondering if anyone has had this done, and how long...
the best thing i ever didi for myself is get into a gym routine. I try to go 4-5 days a week...if i can only do 15 minutes, fine...but i always feel better after...and it keeps my body strong and...
I am anxious that I am developing a fistula. I had a peri-anal abscess that was drained about a week and half ago and seems to be healing well, but i have developed a few small irritating bumps...
I just spent 5 days in the hospital, it was the first time I have ever been admitted in 9 years. I was diagnosed with UC for the past 9 years, but just got re-diagnosed with Crohn's. My doctors have...
same thing happened to me...humira has the same mouse protein. my doctor is going to try me on Cimzia in a couple of weeks. he said he has had many patients who reacted to remicaDE And humira have...
Always happens to me...next time, try a different antibiotic...i have better luck with some than others......
maybe time for the heat pad :-/...
I am having lower back pain on both sides. I am in a pretty bad flare. I have been reading the boards and it looks like it could be joint pain, but could it also be my inflammed intestines??? really...
thank you...i have been doing the enemas for about a week... i think i have another week in me before i really give up....
I have been on 40 mg of prednisone now for over a week. I am also using rowasa and hydrocortisone enemas (alternating every other night). I have seen progress in the amount of bowel movements I am...
I was in a really bad flare...was on flagyl and levaquin and as soon as i finished those, went on 40 mg of prednisone. I was doing really well until I tapered off the streroids (i think i pushed it a...
I am going through this right now. I gained 10 lbs in about a week and it is making me absolutely miserable. I pride myself in exercising often and had just lost about 30lbs (that i needed too from...
i find that doing half of the drink i am always fine. They always compliment me on how well cleaned out I am....
Thank you for your replies...i have an appt with my dr. in a week and have an email into him...hopefully it is as simple as going back on nexium......
I was diagnosed with GERD a few years back...I also have Ulcerative Colitis. I was feeling alot of nausea if my stomach was empty. I was on nexium and had alot of relief, but went off it last spring...
Thank you everyone! I am noticing a difference already...was able to leave the house today for the first time in 4 days! I may even go for a walk since I am home sick from work :-)...
You all have some nice friends...mine still give me a hard time for not coming out more People do not seem to understand the extent of my UC. The sad part is they are all nurses and social workers......
My doctor started me on 40mg of prednisone today, i am in the middle of a very bad flare. I have not needed steroids for over a year (which has been really nice!) I am having a hard time remembering...
I spent yesterday in the ER and after the worst pain in my life (i didnt even know it was a flare the pain was so bad) they told me I was having a UC flare. They were able to tell from a abdominal CT...
My doctor wanted me to come into the ER today for fluids and a CT scan (i have no clue of what?!?!) I have started keeping extra plastic bags next to the toilet...it is just so strange after having...
Thanks for your responses... I will call my doctor tomorrow...I do have GERD and often feel nausea if i have not eaten for a while. This could be related to the acid reflux. I also have been...
Hi Everyone, I have been in remission for almost a year and doing great! Now I am having some symptoms and they are coming on strong. Twice in the past week I have had to run to the bathroom, i sit...
thank you....it must be... my doctor spelle dit for me over the phone...but m and n can easily be confused...now i can do some real research..thanks again!...
has anyone ever hear of this medication? My dotcor talked to me about it today over the phone...i cant find any information on the internet......
what do you think is better...rowasa enemas or hydrocotisone enemas?? I use dto do hydrocortisone at night and rowasa in the am...but i dont want to do them in the am anymore...which do you think...
thank you for your replies... I do think it is a combination of the extra cold meds...and also my immune system trying to fight off too many things. I am hoping as the cold gets better, i can get my...
I have had a really bad cold for about a week (not on antibiotics) but have been taking over the counter cold medicine. In that time I have started flaring. I went to my primary care doctor and she...
when im not flaring (like now) I have 2-3 bm's a day....when I am flaring I go 15 times a day. I was beginning to get symtoms when I began taking this supplement, but was not in a full flare. I...
Hi everyone... I had poseted about this a couple of months back, and now have actually tried it and wanted to get the information back out there... I had a really bad string of horrible reactions to...
just speaking for myself....i am not currently in a flare and I am hoping NOT to have to go back on steroids. This was the mind frame of the person my doctor was sending this information too, so i...
lots of good feedback. I am seeing Dr. Kenneth McQuaid, but he is only there for another month or so and then I will be seeing one of the other two directors of the colitis center. I figure at this...
I received this e-mail from my doctor as mass general hospital in Boston, MA. I though I would share the information because I am going to look into it. Anyone heard of this before?? I also wanted to...
I just wanted to post and say that I had a "lupus-like" reaction to remicade, a drug I was taking for ulcerative colitis and it was absolutley debilitating for months. I am finally feeling so much...
Thanks!...