I used to have Blue Cross and never paid for my infusions either. Now I have United and it's pretty similar, I have to pay about $100 an infusion...
Depressed - no Mood swings YES I typically go from awesome/take on the world happy until the lack of sleep kicks in, than i get moody/angry but never depressed...
1. Let your dr. now ASAP 2. It's possible you immune system was compromised enough to let a flu creep in - don't give up Reimicade has been my wonder drug for 3 years now...
Nice - i read your post and reached for the bottle of asacol on my desk that i neglect 30% of the time and took my dose. Don't blame the drugs man, and asacol from all my research is pretty...
It varies from case to case. I highly suggest keeping a diet log. For me Tomato Sauce is bad but I have no problem with other condiments even spicier ones....
Hopefully it will die down as I cycle off - letting my hair grow out has helped cover it up a bit though it's driving me crazy....
This board is really helpful for new people - just remember what set off on person's flare may no effect some one else at all. I for instance can't even catch a scent of coffee when flaring without...
I was diagnosed at 28 and once we got the meds right my life become completely normal...
I'm on a cycle of Pred for something un-related to my UC and am currently cycling down for 60Mg to 40Mg and am getting acne really bad. Back_shoulders_ spreading to my chest and really bad on my...
Rapid weight loss...
I'm on Pred right now but not for my UC, something unrelated and it's keeping me up all night. Usually my only reaction is increased hunger but it's been a few years since I've been on it. luckly...
I haven't had a flare since I started Remicade (almost 3 years) 2. That depends on you really, the earlier to go to a DR to get on something the shorter it will likely be. 3. Mine has improved...
hard to say for me - I was coming off Pred when I started Remicade so I wasn't in a flare. All I can say it that I've been on it for two years and it's been outstanding. I can push the infusion to...
been taking 12 a day for 4 years w/ no side effects...
I have been in remission for 1 year now w/remicade treatments...
my dog sucked one up once, he was fine...
I've been on remicade for about a year and I can just now tolerate coffee. Try hot tea instead...
I have a good deal through my insurance we I get 90 days of Asacol for 1 copy...
call the doctor, mine will usualy just push mine back for 1 week....
I used to be a once a week guy, they were huge, i wasn't allowed in certain houses as a kid because I caused plumbing problems. Those days are long gone....
9 months and counting for me...
I've been on Remi for 6 months, complete remission, 100% normal habits. Weight it up to over 200 for the first time ever, energy is fine. My only concern is how I'm going to pay for it after...
I'm on my 4th infusion with no sideeffects...
I used to have urgency but never that badly, I always had a solid 5 minutes or more....
working wonders for me, there have been points in the past 5 months where I have actually forgotten I even have UC,...
I'll put it to you this way, before remicade I came to this board daily. now I come about once a month out of guilt. wonderdrug!...
everyone is different, I think most can drink, you just have to figure out what you can in can't tolerate. For example I can't tolerate draft beer....
Remicade works great for me, if you are covered for it I wouldn't wait....
when I wake up, after lunch, before bed though I forget teh before bed at least twice a week....
I got headaches from tapering too fast recently....
wow 60 is alot, do you suffer severe side effects? i know alot of people on here do but I'm fairly lucky with it....
I'm doing very good, have been in remission since Early March, getting my 3rd remicade infusion Friday (no side effects) I am having a little trouble getting off pred. I tried to drop from 10mg to...
I work go the gym 2-3 times a week (including running/swimming) and I never have joint pain from Pred....
I just finished taper off Pred 2-3 days ago and I am exhausted, I slept 12 hours yesterday and I have a headache. Anyone else expereince this?...
I've never had to take more pred to get the same effect. i've done 3 cycles in 4 years, every time I start at 40 MGs and cycle down. The only side effect I ever suffer is some minor acne, usually on...
I just had my 2nd infusion, feel great, no side effects and have gotten off all steroids. Its would be a relaxing 2-3 hours every time but my nurse is annoying. NEver shuts up and take my vitals...
It's too early to say with remicade (only on my 2nd infusion) but if this keeps up it is completely worth the $1000 a paid out of pocket....
So often we only post when things are going badly or we're having issues. I'm celebrating a solid month of remission today and by the end of the week I'll be off pred. and have had my 2nd remicade...
I've had 1 infusion with a 2nd scheduled next week, i've had no side effect but it's still early. If you insurance will cover it I recommend giving it a shot....
It's a peice of cake if you tolerate well, basically you get to relax for 3 hours, read a book, watch a DVD what ever. Just don't count on napping because they check your vitals every 20 minutes +...
every 2 years unless your having problems. I just had one last month and we're going ot do another 1 after 1 year of remicade to see the progress...
they gave you medical advice for wikipedia? that's kind of scary in itself....
I know that but if I switch jobs I have to start over with paying off a new deductible and out of pocket maxium with the new insurance plan. currently my ded is $500 and my out of pocket max is $1000...
10,000 is pretty insane Kelly, it really bothers me to see so much disparity in health coverage in this country. My self-employed parents may hundreds sometimes 1000's of dollar a month in medical...
My main concern about, the Remitstart program it will take awhile for them to processing my claims i think I will be on my 3rd infusion before they start kicking me money back. I feel good this...
and accept for the part where I had to pay $500 it went very well, the only annoying part was they kept taking my vitals every 20 minutes so napping was out of the question. And the fact they made me...
that is a pretty small dosage...
I am supposed to have my first remi infusion friday but I'm thinking about backing out, I just finished a pred cylcle and I feel great. 0-2 BM a day and since my first remicade infusion is going to...
just email her a pic of your next nasty mucus and blodd laden BM, that out to shut her up....
I'm on my 3rd week of Pred and I feel great, BM's are normal and rare (0-2) a day....