Remicade is last option. It's the step before they take your colon if nothing else works. and one can become immune to it eventually. they didn't put me on remicaide until after i was in the hospital...
My doctor wants me to start taking this today. It freaks me out though. Mostly because this is more often used to treat cancer. Is anyone else taking this. What are your experiences?...
i work full time for the city and they couldn't have been more generous or understanding when i got sick and was off work for 2 and 1/2 months. i was in the hospital for 6 weeks of that time. all the...
i think you should ask to have your dose increase a little bit and then tapper off of that. I usually up my dose to 40mg when i'm flaring and it helped almost always....
that's very helpful, thank you judy...
I eat chicken or tofu twice a day. but no i can't eat cheese, milk or beans...
and by rediculous, i mean rediculously amazing!...
thanks, i'm so glad i found this website...it's rediculous how helpful everyone is....
thanks everyone. i think i'll look for primadophilus reuteri. it seems to be a winner with quite a few people on here....
i also use ortho tricylen but not the lo and it works for me. doesn't do anything to my UC. good luck...
i haven't started taking probiotics yet but i know i should. i know what probiotics are but i don't know what's on the market. i don't know what to buy. i'm sure i could find them at any health food...
thank you all so much. great advice as always...
Cipro and flagyl cause really bad flare ups in me too...
My small intestine gets effected every now and again and sometimes I get little ulcers in my mouth during a big flare. I always thought I might have chron's since chron's effects the entire GI track....
I just recently got out of the hospital where I was in a bed for a long time and lost most of my leg muscles. I lost 30lbs and my body changed a lot. I thought it would get better as I got stronger...
avoid anything with carbination! beer will ruin my life personally. when i was first diagnosed with colitis i was 19 so i was by far in no mood to quit partying. (all bad) I would drink a lot of...
I personally can drink soy milk and eat tofu and be ok. I've been afraid to eat edemame because i just got out of the hospital because of a really bad flare. I'm waiting a few weeks to see if i feel...
I've been following this book called eat right for your blood type O (I'm type O) It really seems to be working. it has a list of foods that are beneficial for your blood type, foods that are...
I'm so totally with you. Diet is extremely important! I eliminated wheat and dairy completely and i'm following the eat right for your blood type book, and it's helped me tremedously. it makes...
Hi jellybean. I recently had a really bad flare up...i had 5 blood transfusions, in the hospital for 41 days this april-may, i bled and bled and couldn't eat for about 6 weeks. I started remicade a...
I agree with badgut. I think because our disease is so subjective and personal we tend to over analyze a lot of what we do, eat, feel. I know it's important to be aware of all these things but I know...
it'll prob be a good 2-3 years but yea. a healthy baby and non difficult pregnancy would be great. so the researching starts now. thanks for the advice...
Thank you mitzi'smom. I really hope that your daughter will be able to get back to her life. It's going to take time to get strength back and get used to her "new" body. But hopefully things will...
thanks judy. that was informative...
I breifly asked my GI and she said that she wouldn't want me on remicaide while prego. I don't want to be off Remicade becasue it's pretty much last resort and it's working and to stop taking it and...
Thank you very much. That's a good way to look at it. Even though I know my parents worry so much about me because of this I'm sure they are happier I exist....
I'm curious about UC and pregnancy. I want to start a family in about 3 years and I know I'm going to have to be off Remicade. I read that a lot of women, even in remission have bad flare ups when...
I feel so bad for Mitzi. I could barely handle a really bad 2nd flare up and when i was first diagnosed i semi went mental. I couldn't imagine what this must be like for her. I am so sorry. When I...
I'm not sure if i really do have a wheat allergy or if i'm fully lactose intolerant but while i'm flared up it's better for me to avoid that stuff and slowly introduce things when i feel it's safe. i...
i'v read a little about colon removal and all though i haven't heard of a silicone colon i have heard of ileoanal puch anal anastomosis. which is where they attach an interal puch from the small...
I've read positive comments on remicade so I'm hoping it will work well for me. Thanks. I had both and the cook right for your blood type. I returned the one with the dieseases after i read the UC...
Hello everyone. I was just reading a lot of old posts and they are very informative and helpful. I had a very bad Kaiser experience recently-41 days of hospital fun and 5 blood transfusions. I've...