WOW, your mother-in-law doesn't really like you does she? LOL, don't worry I got one similar to that. If your mother-in-law's friend really exists (maybe MIL made her up to push a point) then I would...
Actually suebear an ostomy can be a reason for disability. Retraining, or otherwise known as Vocational Rehabilitation is handled at the State level. Social Security/Disability is handled at the...
I'm no expert with SSI but thanks to all I have been through I have a little knowledge of it. From what I have learned, the decision is based on if your "disability", in your case your ostomy,...
I have had the same problem too. I use hollister and it happens down at the tail. They are small and kind of like bubble wrap. Of course being the person I am I have popped them :shocked: and believe...
Prior to having my surgery I had many problems associated with UC or side effects of the medicine that have since gone away. Joint pain, fatigue and vision problems were the three big ones. I am not...
I rinse my pouch every time. Some say that rinsing the pouch with water will wear away at the wafer seal but I get at least seven days between changes so it doesn't hurt my wear time. John...
Well I will try to help by explaining my process. - First, just like you I collect everything I can think I will need (at first I used a checklist so I would have everything) - I empty my pouch so I...
Since I have four children and ileostomy is not the easiest word to say we call it Leo (i LEO stomy). I have found that having a name gives it more significance and acceptance with my children and...
Suebear, I understand your wanting to promote your successes with the j-pouch and I am glad you have had a virtually event free j-pouch. I was in no way trying to down grade the j-pouch surgery or...
I would check with your surgeon and see if you could talk to the ostomy nurse. She might be able to give you samples or help you order samples to try on your skin prior. You wouldn't need the whole...
airjammer, Welcome to the site. Definately keep working on your wife to log on and just read some of our discussions. She will probably find that many of the things that she thinks are hard to talk...
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Thank you everyone for all of the encouraging words. It really helps me through all of this. mom9mom, the sad part was I almost did die after I applied. I was life flighted and arrived at the...
First, I apologize for my absence on the board lately, it was two fold. First, my computer developed a virus that almost knocked it out permanently (thank goodness I know a little about computers or...
Peace and Prayer, My personal experience so far (and this is only my personal experience) is the people who I have met who complain about having an ostomy (either ileo or colo) seemed to have had a...
Well for anyone who may have followed my nearly fatal situation that led to me having a permanent ostomy then you know it has been a little over 9 months since this all started. The surgery was the...
This is just a shot in the dark but all I coud guess is that a person "knowing" they were an accident would be more then likely a person born to older parents. I am talking parents in the age range...
sig, the sloshing and pain is something you might want to see a doctor about . As far as the crystals go, it sounds like mucus balls. Your rectum can continue to produce mucus (the body's natural...
snowbear, Yes I was diagnosed with UC a little over five years ago. In February of this year I started having the worst flare I had ever witnessed. My GI put me back on pred but no other meds and...
Snowbear, What it sounds like is your mother has diversion colitis. It is fairly common (one in three was the number my surgeon quoted). As soon as I decided not to have the j-pouch surgery the...
J's Mom, I noticed you mentioned that you use a hollister convex flange. Is this because the stoma is flush with his stomach? The reason I ask is because I had a slightly over anxious stoma nurse in...
Yeah the one I accidentally popped yesterday didn't develop a leak at all or even odor. Since you say you are getting them toward the top also then I guess maybe my peroxide theory might be more on...
Anita, I am sorry to hear about all that you have been through. I hope any information I can offer can help you with this seriously tough decision. I had my first surgery in such a rush due to...
Funny you should mention this. Just yesterday I was feeling the tail of my pouch (hollister two-peice) and found for the second time that the pouch had a small air bubble in the lining. I know for a...
My very first appliance change was similar to your story. I use the lock-n-roll two-piece and neglected to lock-n-roll prior to snapping my pouch on. I went about picking up my supplies since I...
I named mine Leo taking it from iLEOstomy. The reason for naming is because I have four children ranging from 13 down to 4. It is a lot easier for them when we discussed my disease to say Leo instead...
To answer your questions Doc; 1. I empty 4 to 5 times a day. This depends on how much and how often I eat but average 4-5. 2. I am able to sleep through the night. Again I think this would have to do...
An ileostomy is a surgical procedure of diconnecting the small intestine from the large intestine (colon) and running the end of the small intestine out through an opening made in the belly so waste...
OK, more update. I am still in the hospital but I am staying optimistic. Had to go back to OR on Saturday morning to have the incisions in rear opened back up and cleaned out due to infection. That...
My second surgery to finish my total colectomy and make it permanent went well. I was set to get out Saturday but by noon I was feeling awful. We decided it was best for me to stay where they had...
Oh yeah, plenty of bowel sounds. In fact we just had the bag pop off from a large amount of output. They probably should have used a one piece instead of two piece out of surgery, oh well. They have...
I had my surgery Tuesday, 12th, to make my ileostomy permanent. I am in the hospital now recovering and unfortunately have developed a bad case of hick-ups. Man they are annoying. The surgeon said...
I think what he was trying to say that 11 years ago when he had his second attack (there has possibly been more since that time) is when the option of surgery crossed his mind, not that that was his...
Well I think I can understand where your concerns are coming from. I think though, that you are worrying that it will turn out bad, which is probably not the case. I can completely understand that...
Apparently your symptoms of the UC are not bad enough to constitute surgery. If you are allowing a minor procedure, equivalent to getting an IV, to be the deciding factor in a major abdominal surgery...
I'm not going to fall into to the "beer is good, beer is bad" argument here. To each his/her own. But I will give out some information that may provide an answer to the original poster's questions....
I inadvertently learned a trick from my ICU nurse back in March that may help you also. She would come in every morning and sit with me to discuss what goals we (me and her) had for me for the day....
I also had a slight "burning" sensation when having stoma output right after surgery. I am seven weeks post op and they have gone away. The sensation felt like it was right on my stoma but since...
I supplemented my meals the first few weeks with Ensure type nutritional drinks. They are not the best tasting things in the world but they might help with keeping her nourished. John...
Those of you that know my situation know that I had a total colectomy in May for my UC but the surgeon left the rectal stump with just a small amount of my colon so if I wanted to have the j-pouch...
I am not sure if this might be the source of your problems but I have noticed that my output gets waterier (is that a word? LOL) if I have too much time between eating something. It doesn't have to...
If you are using a drainable pouch then you could empty it first then fill it part way with water and slosh it around to clean any excess from around the stoma area. If you are using a closed pouch...
I don't think I would be so worried about too much output. Your body can only evacuate as much as you put in and nothing more. Since you no longer have a colon to hold the waste it comes out as soon...
I am sorry xtremefit it is a misunderstanding on my part. With statements like "You know how many times I had Dysplasia in my life?" and "It was always a false positive every time" I assumed that it...
Why, it's not the DR., it's the lab which does the biopsies. I did my own research and made the decision. My Dr. suggested surgery but I refused because of what I researched. He agreed with me in...
I'd get a new doctor if it happened more then once. Scaring someone like that is some serious stuff and I wouldn't take it lightly. Just my opinion though. John...
I highlighted the key word in your statement. Don't freak out about surgery it is going to allow you to continue to live. Sure there will be adjustments but there were with the UC, right? Normal,...
I don't know for sure about j-pouch surgery but I would guess just like most surgeries that they would want to do it for sanitation reasons. When I had my colectomy they put it in after I was under...