I actually started with Uceris for 2 weeks but then last weekend had a lot of blood all of a sudden. So my GI switched me to Prednisone. I'm going to try to start taking my mesalamine enemas every...
Hi all, Started up on 40mg of Prednisone 3 days ago due to a flare from what I think was caused by all the stress from early stage breast cancer (surgery now radiation to my breast). My radiation...
I think if you lie on your right the enema won't absorb as it won't flow down the left side. I couldn't sleep on my stomach either. But you are supposed to take it at bed in and stay on your left...
I guess if you have radiation to the pelvic area you do have a good chance of GI upset. But today my radiation oncologistbsaid that isn't very common with radiation to the breast. He also said the...
Stool still formed today but yesterday had some mucus. Seems to go back and forth. Definite pressure in the rectal area and an overall achy feeling in the lower abdomen. Joint aches are back after...
Been on generic Colazal for over 15 years I think. I had been taking Rowasa enemas 5 nights a week as well but had to stop those after surgery. It was too painful to lie on my left side since that is...
Hi all, Has anybody on here had radiation (not to abdomen, pelvis or rectal area)? I'm dealing with breast cancer. Had my lumpectomy 6 weeks ago, stage 1 with clear margins and lymph nodes clear. My...
Hi Old Hat, Sorry for another note! But I'm just curious if the reason you don't recommend both surgeries at the same time is mostly the recovery? It was my surgeon who said many women get the...
Interesting as my niece had bad constipation for some time after the hysterectomy. I didn't know about the incontinence with bladder so will for sure ask about that. I'll need the 4 weeks of...
My niece kept her ovaries but had the tubes removed....
That's my biggest worry - the gas they leave in there. For my colonoscopies I have to have them remove as much of the gas as I can as my body doesn't seem to absorb it. I've ended up in the hospital...
Yes the doctor actually was the one to tell me I could get all the surgeries at once, which is made me seriously consider it. It really takes down the toll on my body. I'm not sure how it would be...
Unfortunately I cannot take HRT as my cancer is strongly estrogen/progesterone positive. I will be on Tamoxifin or more likely Arimidex after surgery to help prevent recurrence of the cancer. I was...
Hi all, I haven't posted here in a few months so hope you are all doing well! I was just diagnosed with breast cancer (Stage 1 as of now) and am deciding which surgery to get. I'm also leaning very...
So my GI got back to me and gave me cortizone suppositories. Not sure if those will help as although my rectal area is where it hurts the most I am having an achy feeling in my abdominal area as...
Whoops I meant ever since May 7th! Sorry about that. Was looking for the Friday after the shot and looked at the wrong week :) I already take 9 Colazal pills a day and a mesalamine enema each night...
Well I got my first Pfizer dose exactly a week ago on May 5 and ever since about the 14th I've had an upset gut, diarrhea, abdominal cramping (bad today) and frequent BMs. I haven't had this in I...
I just want to say this post has been really helpful for me! I haven't been in here for a few years, but still remember many of you who have posted in this thread. My UC has been in remission for...
Just curious, is that version at Costco the prescription version? Or over the counter? I've got about 5 days of VSL #3 DS left and then I will start the box of Visbiome Extra Strength I got. I eat...
I'm finally feeling better today, I haven't even had a BM yet today. Not really much gas today either. My scope results were fine - no active inflammation but waiting for biopsy results maybe this...
Oh whoops looks like that's an antibiotic! I'm supposed to stay away from those as they can make cdiff come back....
Normally I'm constipated, but ever since the cdiff haven't gotten back to that. I used to go 1 time a day in the morning and sometimes no times a day. Now 3-4 small formed BMs. Well except now after...
I just took some Levisin which is for spasms so I hope that helps. I get Propofol (not sedation) so that is less likely to cause the gut to slow down (although its not slowed down, I wish it was!). I...
Had my colonoscopy (and an endoscopy) 2 days ago and still having so much gas, burping and having diarrhea. This is my 14th colonoscopy over 25 years and 20 years ago I used to be just fine after...
All done. No cdiff (I misspoke in my original post). My scopes, both the endoscopy and colonoscopy, looked normal. Biopsies next week but my GI didn't think those would show anything. So my 14th...
Whoops sorry I think my post was unclear. I don't have cdiff. I'm just always worried I'll get it again. The prep was ok but now 4 am I'm left to drink the last 2 glasses and I feel horrible. I was...
So I've got my colonoscopy tomorrow (and an endoscopy due to some upper GI issues I've been having). This may be my 14th colonoscopy over the past 26 years? Anyway, I've been having diarrhea since...
My GI told me that painkillers can cause constipation and that would prevent me from getting rid of the c diff bacteria (since it leaves the body via going to the bathroom). They said I would have a...
I have to say, I never thought I'd look forward to a colonoscopy so much as I do this time! :) 3 weeks to go, I just have to make it to then! I HATE prednisone so I don't want to go on that, but...
I was surprised to get a notification of activity on this old thread! :) Update on my cellulite - I still have it on my thighs but it doesn't look quite as bad as it used to. I workout a lot - at...
Funny you should reply to this at this moment, as I was just looking up long-term effects of c-diff online! I started feeling a bit better in April after I was done with the Vanco 2 week course. But...
So over the past day or so my colon seems to be slowing down. Yesterday my BMs turned from orange (which usually means everything is moving through you too fast) to very dark. I also only went like 5...
Nope we were in South Africa. Luckily I didn't get sick during the honeymoon. Guessing that somebody just didn't wash their hands after using the bathroom, and then served me food. Or somebody had...
I will definitely go back to my regular probiotic schedule after I finish the antibiotics. Which is 1 packet of VSL#3 DS a day plus 1 Ultimate Flora Critical Care pill a day. I really feel that helps...
I think my doc is being extra cautious as he said C diff can be hard to get rid of. He's at Mayo and they tend to do more research than you can imagine, so I suppose he has studies that show that...
Well it seems my GI doesn't really want me taking anything. He doesn't want anything to slow down my colon or I won't get rid of all the bacteria that is in me. :( I took Tylenol last night just to...
Ugh, my GI said I shouldn't take an antispasmodic any more than 1 every 4 hours (if I even take any at all) because it relaxes the colon and can keep the bacteria in the colon longer. So pretty much...
Hmm, Levsin actually is an antispasmodic (my GI gave me that long ago). A lot of people don't seem to know what it is. The generic of it is Hyoscyamine and I can take 1-2 tablets every 4 hrs. It...
Is there anything anybody recommends for abdominal cramping? I'm having horrible cramping with this C diff infection. It's been a week now with these cramps(I just started antibiotics 2 days ago)....
I suppose my GI is saying that it's kind of a waste to take it since it's making it ineffective. So it's not really doing anything. I will admit those packets of VSL DS I have are like gold now since...
So my GI has said to stop VSL #3 DS as the antibiotics make it ineffective anyway? And that there is no clinical evidence that it is helpful during an acute infection like this. That seem confusing...
Got some non chlorine bleach to wash clothes in. My husband couldn't find bleach wipes at Target so he just got spray. I think my house (and my bottom) will both be cleaner than they've ever been!...
Oh I will for sure take the entire 10 days of it. I was just wondering how soon it may make me start feeling better. The cramping is just really getting hard to take, I've had that almost a week now....
I pretty much NEVER take antibiotics. Once every 5-8 years maybe even less than that? So my body isn't too used to taking them. I feel as though my VSL #3 DS really has helped keep the 'good'...
Thanks for replying! I'm on it for 10 days. I hope that's enough. I guess I will say I'd rather take these then be in a flare up and go on prednisone and maybe be sick for months. So at least there...
I'm going to start the antibiotics today. I'm back on my VSL so hoping that helps. I am at least going less than I was a few days ago and I've been able to eat where the first few days I could barely...
So in 25 years of having UC I've never had Cdiff or salmonella. Until now after returning from my 10 day honeymoon I started having horrible diarrhea and cramps plus a low fever. Fever is gone, pain...
I am in the US and have Medica managed by United Health. I never did hear back from them about the Visbiome. I'm sure they don't want to cover it and are probably very happy VSL DS will no longer be...
Looks like Visbiome isn't covered by my insurance (even though when I search for it on their site it does come up, so they seem to know it exists). I wrote them a note asking if they plan to cover it...
So I saw at least one post on here saying others are having trouble getting prescription VSL #3 DS. Looks like it may not be made anymore? I've been taking it ever since trying to get out of a flare...