No idea never used Movi prep. . .go litely now that's the biggest oxymoron I've ever heard!...
I'm going in for IV #3 tomorrow, my first one was on a Monday and by that friday I was having less pain and by week 2 I was seeing formation in the stools. I was one of the lucky ones that responded...
I'm going into my 3rd Remicade IV tomorrow and it's been helping so I would say it's worth it. I don't know what kinds of financial help they give but I do know they do offer something if your...
I was August 2000 . .. had been mis diagnosed many times so I can't say how long or when it actually started....
Dancing. . . . .I'll have to try that next! My heart is with all of you that can't seem to find your remission yet. . . .I will keep saying my prayers for you all. That's mostly why I posted, I...
Hey there I miss chatting with you all but well. . . life kinda blew up at me in a crazy but good way. Some of you may remember I was freaking out about starting the Remicade because I already have...
See if they will check your iron. I'm terrible with anemia and when I get low I get tired. Just sometihng to think about....
Thanks for the input. Dearest just called me and said.... "Have they given you any ideas? I love you hunny but I'm not hanging my head out the window for 14 hours!"...
Welcome, Keeping that positive outlook will be a huge help! The less you stress over it the better....
Bumping this hoping someone has so advise about the excessive gas. I have to get in the car for a 14 hour trip in less than 24 hours....
What I did with my now hubby was tell him what makes me comfortable when I'm in the bad flares. I gave him small ideas he can do to help like if I have an accident he's great about getting me clean...
I did the miralax dulcolax prep as well. The volume of liquid that you have to drink is the only issue I have with it. 64 oz is just too much liquid to drink in under 2 hours. Aside from that, the...
SCgal, Try to help him relate to what you feel as far as the other things. I was fortunate my husband went through a bought of the flu that came with about a week straight of D. Yes I felt horribly...
When that happened to me I was told there's a lot of nerves in that area of the body. It started when I had to have a chip removed from the tip of my tail bone from a fall when I was about 23. the...
I had my first Remicade IV last wednesday and since about friday I have started to notice changes. Urgentcy is WAY down, bloating also WAY down, frequency has decreased to 2-3 times a day and I have...
Reverant, Wish I had seen this sooner, sorry for the late reply. As luck would have it was in for my first remicade treatment the day you started this post. In there with me was a college student...
From what other's have said, yes it's normal. Try talking with your mate and help them understand the anxiety. I sat down and showed my husband the things others have said and it's helped us some....
Tabitha After my bloodwork yesterday I had to dig this thread up because I thought you'd get a good laugh outta this one . ..I know I did! So I had 3 different script s for bloods yesterday, one for...
/community/emoticons/smilewinkgrin.gif /community/emoticons/smile.gif /community/emoticons/smilewinkgrin.gif ROFL /community/emoticons/smilewinkgrin.gif /community/emoticons/smile.gif...
I wish I had some insight for you, I have the exact opposite issue but the same results and the same thing fixed it. . . sleep. I get nausea if i don't eat. If I get hungry the least little bit I'm...
Carol, Mom says I'm not concidering how me having a troubled pregnancy will effect everyone else and how as my mother she will worry about me and she doesn't need that kind of stress in her life with...
Yes I have FSGS. They are interested to see what the results of the Remicade on my Kidenys are too, I have to go for bi-weekly blood draws so both doctors can keep track. If the kidney doc says no...
The treatment went ok and was uneventful which lately for me is a major GOOD event in itself. The nurse was careful about picking her vein and only blew one so even that part was what I would call a...
Well Insurance flew through to everyone's surprise and they are moving my first treatment up to tomorrow instead of waiting for Thursday....
I had a friend without lactose issues that added carnation instant breakfasts to milk and drank 2 of them between her regular 3 meals a day as snacks. it was slow but she managed to put on about 5...
now those sound like side effects I could live with (o: How much easier do you find catching a cold since you started remicade or was there no noticeable change in the "catching things" area?...
If you get it straight from the cow and it hasn't been properly filtered and cooled I'm sure raw milk could be bad. I'm also sure there's plenty of people out there that have had issues with it. I am...
maybe ask if they think cutting back to the 6 colazal and 1/2 the Rowasa at night would work again? Wasn't that working for you when you first started the Rowasa or were you getting the asprin side...
I'm curious if there's other options too. with my kidney failure and trouble with the standard drugs they said Remicade is what I'm left with. . . if that doesn't work am I stuck with surgery as my...
Judy, Do you remember how long it took for your UC symptoms to subside....
this is interesting information. . .I'm anemic so I got the big red NO and never even got to the "I have UC" questions. Good to know if by some miracle I do get the anemia under control that I still...
Thanks Sherry, at first I felt like I was a complete failure as a mom but then the phrase "Boys with be boys" really struck home. I wasn't abusing him and I didn't have him in a harmful area. . . he...
I'd be a VERY happy woman if I went back into remission. *crosses fingers*...
nope I drink it straight from the container to the glass to my mouth. I never thought to boil it, we never did before when we grew up on it so it never dawned on me now. Man it just has so much more...
I am interested in the side effect of Remicade too, if insurance moves fast enough *pause for laughter* I will be getting my first infusion this Thursday at 7:30 am. The sdie effects you were talking...
This isn't UC related but I thought maybe you all could get a good laugh out of this too . .. . it really was the turning point of my weekend. . . . So I now am coping with a VERY active 19 month old...
I had this theory but no way to prove it until recently. Here's the thing .. . .I grew up on a dairy farm that my family owned and ran until the herd was sold off when I was about[b] 23. Until that...
I never had too much trouble until '03 when I was really sick. I was too stubborn to stop working but I had to stop driving because I ran into a ditch 3 times in 2 weeks because I was falling asleep...
Hudson NY (South of Albany NY) Donna, How far South of Boston? I am about 2-3 hours travel from Boston, the more south you are the closer you are....
That's fantastic! I know you were looking for a reduction in blood and sounds like you've finally found it! congrats great work!...
Let it out. . . wish there were something I could say to make it better but alas I've been there and know the sheer frustration of it all. I try to do things to relieve the tension inside myself like...
They are leery of the port for me because of having a toddler, they said they would rather wait until he's a little older in another year or so before trying the port. When I pick him up he grabs...
that would be why I drink like a fish and am still borderline dehydrated almost all the time (o:...
That's a new one on me. Keep us posted....
Thanks for the sympathy. I'm sorry I was so cranky . . .all the general frustration of seeming to have nothing in my body work right just got to me. I was taught a harsh lesson yesterday. I was...
I don't normally lose weight from the D either, I have had it since about March steadily which was just after I stopped nursing my son. The irony is that I was losing weight before that and since the...
My scope was Monday and they said they would have to research the Humira for me because of my Kidneys, they are aparently restricting my UC treatment options greatly. I just spoke to the nurse and...
Wish I had some insight for you, some other's may have some. I go through similar issues with the one day of horror too add in hugging a trash can for nausea to the mix. After a major crash and sleep...
congrats Winter that's great to hear! Nice to be reminded there's hope....
ROFL that's great!!!! Thanks for the laughter!...