Hey Susie, It's been years since I've posted as well! I was trying to find some information on my past symptoms/lab results that I knew I posted on here about, looked myself up and then ended up...
Hi Amanda, I am turning 29 in July so I am about your age as well, and have had a diagnosis of ulcerative colitis since I was 14 with symptoms of lupus since then that I always brushed off as...
What do they do the field of view test for? What is it an indicator of?...
Hello! I think you read that in mine! :) Unfortunately I guess I am flaring now and have been for several months but I had been feeling okay and not having any symptoms that raised concern for a...
I went to the rheumatologist yesterday.. Apparently, he had it noted in my chart that it was SLE all along - he originally wanted to treat me with Plaquenil and discuss with my GI on whether or not I...
Thanks! :) My doc called me finally and agreed that while she supposes the antibodies could still be elevated even now if it had been drug induced, the fact that I had dsDNA antibodies before is...
Thanks for the reply :) I hope so too! My primary doctor (an internist) is the one who ran all these labs... First time seeing her but I love her, she's great and VERY thorough - she even wanted to...
Hi indigosunrise.. I actually was diagnosed with DILE back in 2011 from Remicade when I was having a severe flare of lupus-like symptoms, a positive ANA with homogeneous pattern and a very high...
Hey everyone! So back in like 2011, I had posted here as my doctors believed I had Drug Induced Lupus from being on Remicade for a few years. I had several bouts of severe lupus symptoms (I had...
SouthernGirl6- I agree.. I'd join! It's always nice to put a face to a name...
I haven't tried Humira, but Remicade worked great for me for about three years.. It was the only thing that helped me finally get in remission and even though I've been off it for over a year now, I...
I have been lucky that I haven't been in a serious flare in the past four years of dating my now husband. I started taking Remicade shortly before we got together and it kept me healthy. But of...
I'm with somedude- I usually just eat what I want or what I have to and pay for it later, lol. And if I'm going out to dinner with friends, I load up on immodium or pepto so that I won't have to...
We just got new insurance as well and while it's better than no insurance, it still sucks. I have to pay 20% of everything (doctor visits, labwork, outpatient procedures, medications) which is...
If you're passing a lot of blood and undigested foods, and you're in a lot of pain, I don't think you should only be on mesalamine enemas. In my past experience, they always treated me with steriods...
The bleeding can definitely be scary- especially if it's something that you didn't experience very often before- but it is very common for UC patients to have after a colonoscopy. Our intestines are...
Hi lealee... So you were just diagnosed a week ago? Sorry to have to welcome you to the boards, but you've found a good place :) I used to come here all the time when I was really sick and it has...
Lol I actually just came across a product the other day called "Just a Drop"... it's in a little Visine type bottle and you put a drop of it in the toilet before you go, and it neutralizes odors...
Thanks, Andrina! I am currently working as a temp because the company I work for doesn't hire straight on, they make you be a temp for the maximum amount of time until a position opens up and then...
Wow... It has been too long since I've been here. I was browsing around and saw a lot of familiar usernames and just had to log on and say hi. I hope everyone is doing well. After flaring severely...
I know :( I have always been a "what if" worrier. And I have to research everything and know everything, so I've been reading all about lupus the past few days and really... It makes perfect sense....
Hey! I remember you as well! :) How have you been doing otherwise?? I am anxious to get back to the rheumatologist or GI to see what they say about my results... I just hate the idea of stopping...
I'm sure most of you (if any of you!) probably won't remember me as I haven't posted here since 2009... I can't believe it's been that long!! Life just flew by, and my work blocked HealingWell which...
Also... Funny, my last post on HW was when I had that episode in 2009 - http://www.healingwell.com/community/default.aspx?f=38&m=1449518&g=1451532#m1451532 ...
Hello everyone, It's been a while since I've visited the Healingwell forums, as I used to be a regular on the Ulcerative Colitis boards but my UC has been in remission for some time now. Plus, my...
Thanks for all the responses and well wishes everyone. Just wanted to update you all... I went back to my doc today.. Apparently the CT scan showed quite a bit of thickening of the wall of my sigmoid...
Well, the primary care doctor I see is an internal medicine doctor as opposed to a general family practitioner. I was hoping that would mean she might know more but it seems that might not be so. I...
So lately, I've been feeling like I'm just on my death bed. It started Sunday, with some mild pain in my knees. But by Monday afternoon, it felt like I had developed SEVERE arthritis in every single...
I have had three infusions now... After my very first one, the only improvement I noticed was the next day my severe joint pain that I had been having for weeks was completely gone, and hasn't come...
I'm going to go with the general consensus here and say you need to find a new GI!!!!! First of all as you know prednisone can be extremely dangerous to stay on for that long... After being off and...
It seems like it's gotten a tad better, I was feeling really run down and achey yesterday and today I feel okay. Still having liquid stools but not as much and it's a little less water, more like...
Apparently a lot of people are carrying MRSA, in their nasal passages or elsewhere and don't even know it. I work in an operating room and we get MRSA patients a lot.. They are on isolation and then...
I just had my third infusion yesterday and I'm definitely not in remission, though I had been feeling better. No blood or anything... But three days before my appointment I felt really sick; I...
I get all sorts of stuff in the mail since starting Remicade, mainly from Centocor and the program AccessOne, which does the rebate thing. So I'm sure any division that deals with Remicade probably...
Oh absolutely. I started drinking these things when I graduated high school, staying up all night and partying, and I loved them. Monster, BooKoo, SoBe, those were my favorites. I drank one every...
I'm in Florida but my GI has UC and it really is great! I almost jumped out of my chair with excitement when he shook my hand and said "from one person with IBD to another". He's been on all the same...
Fantastic! Congratulations, hope it keeps up :)...
Yikes, I got a 67... The diet sucks though!! All these things I love: sugar or any forms of sugar white foods (white sugar, white flour or white rice) Breads Pastas corn rice Any product containing...
I thought I had read somewhere that you shouldn't get your infusion if you're sick, have recurring infections, or have any open wounds. I am scheduled for my third infusion on Thursday and I just got...
I do the same thing. I never admit to how bad I'm really feeling. It's always "I'm okay" or "Not too bad" even when I feel like death warmed over. I guess it's the same reason I put on makeup every...
Ugh, yeah, dating or doing anything spontaneous is just not fun. I'm recently single and the thought of dating again just freaks me out. Dinner and a movie?? Uh no thanks! Unless the movie comes...
Absolutely. I tried every type of mesalamine product including enemas and they all made me much worse. I saw more bleeding when I was on these products than when I wasn't on any medication at all.....
Yeah, as of right now he has no idea I've already found a place with my friend, he thinks I'm living with my parents for a bit.. Which I was going to do but after staying the past two weeks there I...
Thanks for the well wishes Becky :) Whenever I start to feel myself getting sad or guilty or second guessing myself, I just think about all the things I want to do that I couldn't do before and all...
Karen, No, you remembered correctly I was talking to a guy at work.. We are still friends and talk though we weren't hanging out for a long time. He ended up getting together with this girl though...
Some of you may remember my posts from a few months back that I was having troubles with my boyfriend of four years. Long story short, we had moved back to Florida after spending two years in Iowa...
To be honest, I know VERY few people who didn't drink in high school. Including my parents and their siblings and their parents. And it doesn't help when every high school themed movie includes a...
Well, I can't give advice from a parents' standpoint as I am not one but I can say.. I was diagnosed with UC at age 14. I started partying when I was about 16. Drinking on the occasional weekend-...
Oh wow!! Good luck today, I'll be thinking of you and sending healing vibes your way. Hope everything goes perfectly and you have a smooth recovery. Keep us posted when you can....
I have no advice because I'm stupid and eat things regardless of how they'll feel, haha. For example, I just got done eating some strawberry shortcake AND thin mint cookies. Sooo delicious, but I'm...