So, what would you say it was exactly that helped pull you out of this flare?...
Well I kind of just went ahead and ordered it then told my GI once it was working. Not that I would recommend this approach to anyone else......
Hey, I have been taking LDN for about 8 weeks now and am back to how I was pre-diagnosis. I take about 4.5-5.5 mg a night (I'm not amazingly accurate) and am currently eating whatever I like,...
Taking lots of VSL#3 doesn't cause diarrhoea at all, perhaps some bloating but that's about it......
No it can't, worse side effect is bloating, wind and discomfort, although I take a lot of probiotics and don't experience any side effects....
I wouldn't get worked up over it, if he says no then you can always get it from an online pharmacy or go to a doctor who will prescribe it.......
I take VSL#3 three times a day, one Culterelle and a good quality Pre/Pro biotic from Kordel each day!...
Quincy, I'm interested to hear why UC is damaging to the liver, this is something I wasn't aware of. Is it due to meds we take or for other reasons?...
Well not "over the counter" so to speak, I had to order from an online pharmacy (alldaychemist) but I really did my research before hand to ensure they had a good reputation. Everything went fine and...
I'm on LDN but have gone down the self prescription route. If you want to persuade your GI I'd suggest bringing in a printout of study results and provide him with links to all the relevant sites....
So how about taking magnesium supplements? Would that not do the same thing?...
Sore Guts, how much spinach exactly have you been eating?...
You can buy it online or perhaps from your local pharmacy. It is also available on prescription, and to put it in perspective, the amount I take per month would cost around $200 but I get it free...
Correct me if I'm wrong, but there are currently two types of stem cell treatment available. 1. A drug such as prochymal which contains adult stem cells is given as an infusion every so often to keep...
LDN is Low Dose Naltrexone. It's not sanctioned for the treatment of UC but there are a lot of people using it with great success. I'm sure if you run a search in google you'll find plenty of info....
Remission for me would be 1 or 2 fully formed bowel movements a day with no urgency, cramping, pain, bleeding or mucus. I've only been there once and that was on Pred. Currently I'm in a flare which...
You should be able to get this on prescription. Nearly everyone at my GI's clinic does now...
Works really well for me but only if I take 3 a day minimum. It won't totally pull me out of a flare, but will dramatically reduce symptoms....
This is really interesting. I wonder if there is any way that fecal infusions can be done or in a less gross way, or if they can me mimicked with science.. Has there been anyone who has received a...
I don't know why the American's have the impression that British people all have bad teeth, it's all myth and probably comes from old images of the royal family (who's poor teeth could perhaps be...
Well if everything goes well in the stage 3 trails then it could be approved for Chronies within a couple of years. As for UC, it could either be used off label of we will have to wait 3-4 years I'd...
I feel the same way as many of you, but am determined to hang onto my colon for as long as possible. there are some very exiting advances in stem cell treatments and drugs being trailed like...
Anyone know if this drug or anything similar is being trialed in Europe. All these stem cells have me on the edge of my seat.......
Can you get these in the UK?...
I use VSL3 but it only works if I take 3x the recommended dose. You should be able to get it on prescription if your lucky......
I'm from the UC board but would like to add my short story: 2 courses of pred (40mg weekly taper) and recently diagnosed with AVN in both hips.......
Can't imagine it at all... The colon is an extremely sophisticated organ and I doubt a piece of silicone could replicate it's functions....
My 2 cents: I was heading into a flare recently, the signs were all there for a couple of months and things were teetering on the edge. I should have upped my meds/probiotics and gone on a bland diet...
I don't know how you Americans do it. I'm always reading about how expensive the treatments can cost, I'd be bankrupt if I was paying for mine or even having to pay for insurance (which is about...
Have you been tested for other immune related conditions? There are many that share several symptoms with UC (things like lower back pain and eye issues are common in ankylosing spondylitis)....
The first time I took Pred I was very impressed with the speed in which it worked. I was feeling better the same day and had a huge appetite and plenty of energy (which was nice after feeling low...
Well I've done two courses, zero side effects and then 3 months later I get diagnosed with Osteonecrosis and am looking at two surgeries. I honestly believe it should only be taken in life or death...
Well I did it for three days straight and my stools were definitely firmer, but other that that I'm not sure if I saw any other improvements. I took two days off as I ran out, but will try it again...
So what options are there for long term pain control then? I know we're not supposed to take NSAID's, so whenever I'm in pain I take codine and paracetamol, but as this is an opiate I'd rather use...
I second this...I just found out I have AVN after only two courses of pred. I'd warn anyone taking the drug that this is a serious issue, and never once did my doc suggest such a rapid bone disease...
It will probably just pass, did she suffer many side effects from the Pred?...
wow, so my bones could be dissolving after just two courses of pred? What a bugger.......
I had a moderate flare about four months ago and ended up having to take a course of pred as nothing else seemed to be working. I finished the pred four weeks ago and in the last two weeks have had a...
I had craps when first diagnosed, but haven't had one since, either due to the 5-ASA or probiotics. I would def up the probiotics and see if that makes a difference....
My god John, that's quite a list of ailments you've suffered from......
I hope your talking about Rugby.......
Yea I'm an only child, why do you ask? I suppose she could have been misdiagnosed, but my grandfather (on her side of the family) had spondilitis so I guess it would make some sense (at least from a...
This has gone pretty much way over my head, but there are definitely some interesting ideas being brought up by Doors. One thing which might never be understood, is what causes diseases such as UC...
I feel I should post a response here for two reasons. 1. If it had not been for Quincy preaching (yes I know she does it a lot) about rectal meds, then I may have not been able to deal with my last...
I've only had one colonoscopy and it was here in the UK. It went really smoothly and the worst part was the prep, in fact even the prep was ok, I just hated not being able to eat all day. Oh and I...
I think it's more beneficial for me than VSL3 and it's cheaper and doesn't need refrigerating. Not sure about the dosage though, perhaps UC sufferers would double the normal recommended dose as it's...
I've been reading about it on several websites and am interested to see if anyone has tried it and if so what happened. It seems like something that might be hard to get a prescription for so I...
Perhaps because of what's involved with the procedure. "Fecal Transplant" really doesn't sound that inviting :-)...
I always worry that a potential cure will be swept under the carpet by the pharmaceutical companies, but I think that better (and more expensive) drugs are in everyones best interest. It's unlikely...
So how is one supposed to know if you have an acute or chronic type of the disease? I'm pretty sure that my condition is chronic, but having never looking into the possibility of a fungal imbalance...