No, I have to drink some fructose-infused liquid and then I blow in a breathalyzer every 30 min for 3 hours total. (I have to stay in the waiting area for three hours and they call me back for the...
To make a very long story short: I have basically been flaring non-stop since July with only a let-up of the bleeding/diarrhea for a few days in a row, but never a total resolution of it. I have been...
I go yearly. A couple of years ago I had a whack Dr who said "we can let it go to two years". I was worried to death so I scheduled it yearly anyway. Two years seems like a long time with the...
Yes, I wrote it myself. Talent? more like a twisted mind....
I have UC & my daughter was dx at age 18 with "indeterminate" IBD. (Pathologically, they could not decide if it was Crohn's or UC. Per her Dr, this is the case approx. 5-10% of the time. Symptom-wise...
I can' t resist. There are just so many things that rhyme with poo and pants. Hope this lightens some spirits tonight! Tomorrow is another day, A formed BM I'll see I pray, I will not poo inside my...
I was raised on 70's rock but now gravitate to jazz but I have to say I love anything by Lenny Kravitz (and he's also my "bad boy" crush!). I also really like Maroon 5. Something about them reminds...
Quick question: I have been having what my GI calls a "smoldering flare" of my UC for several months now. I'm not the sickest I've ever been, but I never really seem to recover to a somewhat "good"...
Strange as it sounds, I miss broccoli with cheese sauce and creamy soups like potato and broccoli/cheese or clam chowder. Also scrambled eggs. All of those things double me over now. Also raw veggies...
I find a little ranting once in a while helps. The other day when I had yet another "accident" I got into my car and then yelled "why can't I get a @#$%^* break in this life." For some reason it made...
I am currently on Plaquenil per my rheumatologist and I'm getting pretty good results. You do have to be monitored by your eye Dr. every six months though because it has the potential for side...
This wouldn't work for me unless I was able to lie in bed for most of the morning. Walking around is what really gets me started with the trips to the bathroom. I mean a lot of walking at once like a...
My appt w/ my GI is finally today! (I was on the "wait list" but that didn't help.) I have kept a daily journal w/ my symptoms & I'm not leaving that office until we have some kind of a plan in...
I have been having "pencil stools" for over a year and have a lot of pain with a bm even when I am not flaring. My GI says I have "lead pipe syndrome" which he describes as "your colon looses its own...
For years my parents would say "what did you eat" or "what are you stressed about " everytime I had a flare. I finally lost it once and told them how stupid those comments were and that it had...
I really like my GI too. It just seems way harder than it is to get in and see him. I can't travel to a larger city because of the "closed" nature of my HMO. They do not refer outside of their...
That "position" seems to work the best for me too. I do ok holding it but just having it in there makes my left side feel like it is going to explode - - so much pressure on that side. When I look...
I know this sounds weird, but has anyone had problems getting Rowasa in "where it needs to go" so to speak? I feel like my left side is so swollen that the Rowasa won't even go in there. I squeeze...
I had an adverse effect from "Kifer" that liquid yogurt-like probiotic which was suggested by my GI. My diarrhea increased within a couple of days of starting it. When I stopped the Kifer, the...
Does anyone else have problems with accessibilty to their Dr? I have had the same scenario play out multiple times over the past couple of years: flare; call Dr; can't get in to see him; Rx called...
My daughter's Prometheus test came back "inconclusive" so I guess it is not foolproof. I was quite surprised by this as the Dr. had presented the test to us as the "end all" regarding the diagnosis....
This literally made my day. I laughed so hard I cried. (Can't remember the last time that happened.) My personal favorite wasn't listed though - - I usually flush WHEN I sit down so nobody has to...
I was told by my GI that approximately 5-10% of IBD cases cannot be classified as either Crohn's or UC. Apparently there is a blood test (last I knew done by a lab in California) that analyzes the...
Thanks Suebear. FYI - - my daughter had the j pouch surgery in 2003 and is also doing well. Her case of uc was extremely refractory (responded to nothing as far as medications, infusions, etc.) and...
"Downstate" IL - Code for out among the cornfields...
Thanks, yeah I do think a counselor might help. No one in my immediate circle seems to understand the stresses of a chronic illness. (I guess you really can't understand it unless it happens to you.)...
I have had problems with eggs for about 10 years. I cannot tolerate scrambled eggs at all. (My theory is that there is too much air whipped into them - - its just a theory.) I have recently had good...
Hi, wondering if there is anyone else out there who has had UC for an extended period of time like me (30 yrs). It seems like after this long of a time it is hard to find a physician who is...