Welcome. I don't know of a surgeon in Washington, but I would say to do as much research about the surgery and ask lots of questions. You will most likely have to have an ileostomy (at least...
Hi, I am coming from the UC board--- actually I have a jpouch now. I am going through the same thing.. I have been having pain in the center and to the left -- bad pain. I also have oily stools.. The...
I am interested in making homemade yogurt. I mentioned it to a friend and he said that it is not safe... as in I could get food poisoning or really sick if not done right? is this true? Is it...
Diamante- Como te sientes? Me llamo Jackie y soy hija de cubanos. Yo aumente mucho peso durante mi enfermeda ( colitis ulcerativa). Las medicinas, especialmente la prednisona, me iso aumentar. Ahora...
Mom- Yes, jpouch is reconnection. It is when the surgeon creates a "pouch" from the small intestine where the waste will now deposit and then empty through the bottom. I hope your daughter is doing...
My update - Mikeman- since we had surgery within 24 hours of each other ( 10/23) I feel so much better- no unusual problems- going to b-room about 6-8 times and once at night. No leaking or anything...
Chassity- I am so sorry you are going through this... I have a history of depression and have been on and off anti depressants for 20 yrs. After my first surgery ( colectomy and ileostomy) I was...
Actually, Dr. Weiss was my surgeon. He is more soft spoken but also top notch. I hope you get your surgery scheduled asap....
Gosh- sounds like so many of us had great weekends. Vett Guy- I love rainy weather and horror movies. Here in South Florida it was in the low 80's but definitely tolerable. My hubbie and I started...
Well - Dr. Wexner is one of the best in this field and the Cleveland Clinic has great resources and facilities. PLease keep us informed as to how goes with Dr. Wexner....
I had the 3 step surgery and recovery from 2nd surgery was much easier for me than recovery from 1st surgery. You will have a loop ileostomy which is different from the end ileostomy you had before....
Wishing you well on your surgery---...
I am with you Allison-- I have had so many accidents in public. I think most of them were unnoticed by anyone except for the time I had an accident while visiting my mother in the hospital. I have...
Red- I remember that the doctor started weaning me off the shots- I had shots every week, then every two weeks, then every three weeks. It was a long time ago, but I do remember that much. The second...
Thank you so much for a great success story- so true that things will not be the same as pre- UC. I am 17 post reversal and dealing with some of inconveniences you mentioned. I have to keep reminding...
So that stuff is non prescription? Cool! Also, you can find a lot of stuff online- I ordered the Calmoseptine at the online Walgreens and it was 8.00 dollars, I think....
I had leakage even actual "movements" for six months during the time I had the ileostomy. I actually think it has helped to make my takedown easier. I...
Amey- I understand why you are saying what you are about pain meds- but I think saying they are BAD is a definite overstatement. Everyone is different as far as pain tolerance. WIth each of my three...
Well- the hospital will take care of what you eat at first. The first two days - I had only liquids and IV fluids. THe last day in the hospital I had potatoes and some chicken. It didn't sit well...
I had allergy shots twice in my life ( i am 44 yrs old now)- First time I was 13 and I had shots once a week for a year. They worked! No more allergic asthma ( I have environmental allergies). Then,...
The best of luck to you--- I am 11 days post takedown. So going through "it" right now....
I hope everything goes very well-- let us know...
Thank you Taurus- That makes me feel better. Yesterday when I first did this on my own, I thought I couldn't do this again. It was much easier today- but yeah! that wound is deep!! That is funny...
I have to wet the gauze with saline solution and then pack. I just changed it for the first time a few minutes ago. It is a very deep wound. I am a little worried. BUt I did Ok. A little grossed out...
Why Cipro? Do you have Pouchitis? When is a good time to call you? I would like to talk to you but don't want to bother you with the new baby and all :)))...
So my new fun thing I get to do for the next several weeks is to pack my new stoma closure wound. I had a bit of an infection under the staples so they were removed and a river of fluid had formed....
I have used that with when emptying ostomy bag and it worked to avoid splash. How are you doing UCfree... I got my staples out and now I have an open wound that i have to pack for several weeks---...
Good Luck Jingle Bell-...
Good advice - thanks. Actually I am home. I got home Monday evening. So that is a plus. I am up now ( 4:00 am) but feeling a little better. Thanks for the suggestions. You are right, I am stressing...
I always put in on the wafer and pushed it down forming it around the center. It worked well for me that way. In fact they were very helpful when I was having trouble with leaks. Good luck...
day 5 post reversal- definitely not experiencing a fast recovery AT ALL. The doctors stapled my incision and those are bothering and hurt quite a bit- staples will come out Friday. Really going to...
Thanks guys- Today, i am feeling a little better. The doctor sent me some nausea medicine... and am going to the bathroom pretty regularly. Trying to balance Percocet, nausea meds, and...
I am still in the hospital; I had my reversal Friday afternoon. I am having soooo much gas pains- they are excruciating. THe doctor says this is normal... Really? Any insight would be appreciated. It...
wow- I just had my reversal yesterday... Congrats Mikeman. I am still in the hospital of course but feeling ok- as long as I get my dilaudid. I had the bag for 7 months and I also had the 3 surgeries...
UCfree- I have been thinking about you- I knew that your wife was due sometime in Oct. I am so happy for you- this is a great time. It is awesome that you can experience it UC free !! I am also glad...
Hi all- during the worst moments of flaring (UC ) I would get bad mouth sores- on my tongue, inside cheek. They are painful and uncomfortable. Well, I had a total colectomy in March and I have...
HI tracy- Is the doctor talking about reversing the colostomy or would it be permanent? I have had my colon completely removed because of ulcerative colitis and am scheduled for a reversal next week....
So are you having an ileostomy or colostomy? I wish you all of the best......
Another shout out for Dr. Weiss at CC in Weston. He has done my 2 surgeries ( i have one more to go) and done a great job. HE has great team of fellows and his nurses are awesome. The hospital is...
Lizzie-Wow! I don't blame you for being nervous---- I am awaiting my reversal date. I just had my pouchogram yesterday and seeing the surgeon Wednesday for results. I am hoping he will set the date....
I am going through the same thing right now. It took a few weeks post surgery for the shedding to start. I have another surgery soon and I am scared it will get worse....
Sounds amazing--- My family and I like going to the Smoky Mountains in Tennessee and rent a cabin there. Couldn't this year because I am in the middle of my surgeries. But we will next year, God...
Thanks for checking up on us. I have also been in hiding. My new loop ileo--- is doing very well. It is second nature. Unfortunately, I developed MRSA and have been on Vancomycin for two weeks. Then...
I want to wish you the best. So you have a colostomy bag and they are reattaching the colon back together? Sending best wishes and positive vibes....
thanks guys- this helps...
thank you for responding. I just got back home and have picc line in. Not a bad experiene at all. Will probably start antibiotics tomorrow- i think vancomycin? The butt drain as I call it is coming...
Help! I just found out that the fluid I have around my pouch tested positive for MRSA. I have had a drain for two weeks now and the first test did not show MRSA now this last test did. I have no...
my thoughts and prayers are with you and your family :(...
HI susie- Welcome to the site. I was wondering why the doctor would only remove the "diseased part" of the colon. WIth UC, the disease can come back in other areas and eventually affect the entire...
my goodness---- I am so glad you are out of the hospital and starting to feel better. I hope evertyhing is UP from here....