Eva Lou, Interestingly it was my primary doc who sent me to the Hematologist. As good as by GI is he seemed hesitant. They are both pretty good so I think they respect each others opinions. Fact of...
Turtle, They had stop my exam as well because I was so enflamed. I think I went a week and a half without food just ice chips and the liquid bags they gave me through a pic line in my arm one was...
I had the appendix surgery about a month before I was hospitalized for the UC and C diff. They did give me pain killers in my IV. along with the Vancomycin. The longer the c-diff goes untreated to...
I have been on Remicaid for 2 and a half years now with no other UC meds. In the past I took prednisone, Asacol, canasa. I was diagnosed with severe UC and was hospitalized for 19 days. As a result...
What antibiotic did they give you?Flagyl did not work for me. Make sure to follow up with your GI ASAP. THe faster you treat it the less damage. I had to take Vancomycin in a liquid form while...
That happened with me and actually continued for months as I was healing. I did go away but it took some time....
Eva Lou, It did take 2 iron infusions for me to get back to normal. The pills were not working fast enough. My GI seemed a little hesitant but my primary insisted I see the hematologist who said that...
Hi Turtle, Stay strong I know how tough it is not knowing if anythig is going to work. I can tell you my bleeding did not stop for a while even with the IV steriods and an expensive liquid antiobotic...
I was almost at the point of surgery after a severe flare that left me hospitalized for 19 days. I have been on Remicaid without a flare for 2.5 years now. and no other UC meds. It did take a few...
Hi Turtle like Kat Kat I had C-diff on top of the UC so the 15X a day is familier. Make sure to use cottenelle wipes also when I was in (19 days) they gave me a spray that I used when I cleaned...
Good luck Eva Lou, The iron Pills are normally the first step I also had folic acid. For me they did not work so fast so I received the infusions (2) over a year after monhs of a plateau the...
Hi Natwell, I have been there. I had a severe flare and C-diff about 2.5 years ago and was hospitalized for 19 days with a sed rate of 100 and anemic as a result. 3 blood transfusions, later iron...
40mg is what allot of Gi's use to get people under control. It should kick in soon. I hope you see results soon....
thanks guys I have had a hard time holding liquid mesalamine so maybe this will be easier for me...
I recently contracted C-diff as well. I am not sure how. I had been in the hospital for an appendix removal where they flushed me with IV antibiotics before and after the surgery two weeks later I...
Continued success in your recovery. I am sure you are glad to be home. I was in the hospital 19 days with a bad flare and C-Diff infection a few months ago once I got home it was such a relief. Good...
I am recovering from a flare and c-diff tapering on pred recently. I have been having solid bm's but still have frequent urgency with mucus like discharge in between. recently the discharge has had...
I heard from my GI today it is at Costco now in San Diego Ca....
Sorry you had to go through that. At least you had the spare underwear. This illness is not fun. I have not had an accident yet but I have to resort to keeping a backpack with underwear a change of...
I just started Remicaid in Sept. So far I have had 3 infusions Before I started my sed rate was 115, last week it was 25. I am now having formed stools but I still have some urgency with mucous like...
I have had two without sedation. You lay sideways during the procedure. It is bearable but it does get a little painfull at the end the higher it goes. Also you might be a little bloated for a day or...
Here are some tips I use. Unfortunately when the urgency comes you don't have much of a choice. I take a backpack to work I keep an extra pair of pants, underwear, moist flushable wipes just in case...
Well I saw my GI Today it seems the iron pills have not increased my Hemoglobin I am still at a 10.7. He wants me to take them twice a day now with vitamin c pills. It is kind of discouraging since...
I have never suffered from pain either to the surprise of my GI. Also diet does not seem to effect my UC. My Uc is in the lower sigmoid I wonder if that has anything to do with it....
I have Bluecross of Ca and I have a prescription for VSL DS#3 My co pay is $40 for 6 boxes....
Kev Man, Are you also taking prednisone by any chance. It causes hair loss, I have not noticed anything from the Remicaid but I suppose it my be possible....
Landcruiser, I had contracted c-diff while being hospitalized for uc about 2 months ago. It is serious I had severe loss of blood with no solid bowl movements also really high fevers. The stool test...
I will look into the b12 also thanks Peety, I found the Slow Fee at Walgreens on sale so I stocked up....
thanks guys I will ask about the prescription kind too. I am getting ready to go back to work in a few weeks so I want to make sure I have energy. I might even ask about the iron infusion since I...
Hi Guys, I saw my GI today and I am making progress but still have a little way to go. I am recovering from UC and C-diff that put me in the hospital for several weeks. My Lab work shows my sed rate...
I have been out of work on disability for the past two months. This was the first time since my diagnosis that I had to miss time. I have always been able to handle the UC but this time I landed up...
I had my doc prescribe retin-a which I used at night. Unfortunately it makes it worse before it makes it better because it brings everything out. You have to sty out of the sun though to because it...
I have had a faster heart beat since I started prednisone. It could be that, but you need to look in to it....
Well from what I found out VSL#3 is never covered by insurance. But VSL#3 DS is the prescription grade which stronger and has 900 billion bacteria in each packet. Talk to your GI, insurance will only...
Beartooth- I am not sure what the doses of the Vanco were. The liquid kind was in a Little syringe that I squirted in my mouth 3 times a day. I had to chase it with juice. When I got home the pill I...
Thanks for the insight Beartooth, I am glad to hear you got over the c diff. A relapse is in the back of my head. I gave a sample last week which showed neg thank God. I got over mine with liquid...
Thanks Quincy, My GI gave me the green light to taper I was surprised because he said to go to 30mg and not 35 the usuall 5mg per week. Does that sound strange to you?...
I still have a ton of Mesalamine enemas. I see me doctor weekly now since things were so bad. I will ask. But in the hospital they gave me cortifoam. Which is better?...
Hi Guys, How long does it take a colon to heal from a bad flare? I have been recovering from a hospitalization during Aug with UC and C-Diff. I have been out 2 months now.I still have major urgency...
Im with Peety I get horrible cramps on on my feet and toes and never when I am off it....
I just had my third infusion yesterday. I don't want to jinx myself(knock on wood) But I slept through the first night in 4 months without having to get up and go to the bathroom. I have had not had...
Hi That is a high sed rate but there is hope. Mine was over 115 and I was in the hospital for for 19 days I was going at least once an hour so it sounds like your 3 times a day is not bad. I was was...
I go for my third infusion on Wed. I had my first one in the hospital. My GI said my colon was one of the worst inflamations he had seen from my c scope. I did not notice anything really at first but...
Hello, A C diff infection is more acute. I just recovered from one and it was bad extreme urgency no solid stools and lots of blood loss. They do need a stool sample. I think if you had it you would...
I just started I have definitely improved but I am not in complete remission I go for my 3rd treatment next week. I know a person in remission for 4 years with it....
Hi Katie, I am in a similar boat I was recently in the hospital for 19 days getting iv salumedrol. I had my first remicaid infusion in while I was in. I am now out of the hospital on just oral...
I am in the same boat. I am a 34 year old man I was a slim 145-150 5'10 and have always had that frame. I was hospitilized for 19 days two weeks on ice chips than I got a pic line with the liquid...
great tips...
Yes I am in San Diego. What about you?...
Any advice on how I can bulk up my stool. I am having broken small particles nothing solid. Do I need more fiber I am not bleeding but I am going frequently....