Sorry about the yuckiness... Thankfully my flare is over (it was bad enough that I was hospitalized 10 days and took prednisone 6 months). Even after the worst of the flare was over I still had loose...
You'll be feeling better soon. If you have cable, try taping some episodes of "Corner Gas" on WGN (its on late at night so I tape it). It keeps me laughing, and that is the best medicine....
My GI doctor told me to stay away from all dairy. I asked if I should have a lactose intolerance test and she said it is irrelevant because even if I'm not fully intolerant, dairy is hard to digest...
Thanks Judy. Anyone else have experiences or comments about whether you went off some of your other UC meds once you had been taking 6mp/mercaptopurine or imuran/Azathioprine for awhile?...
I've been on 6mp about 5 months. Be sure to get regular bloodwork if you start taking it. When I was at 100mg 6mp my liver enzymes went above normal but they dropped back down when I decreased my 6mp...
I also went on 6mp to help with tapering off prednisone. When I was at 100mg of 6mp my liver enzymes (SGOT/AST and SGPT/ALT) were up above normal. I dropped my 6mp dosage down to 75mg and now my...
I know 6mp and imuran are similar so I pose these questions to people taking either one... Once you had been on the immunosuppressant for awhile did your GI doctor take you off other UC meds like...
I go for accupuncture every 2 weeks. I don't know if it really helps my UC (if it does its not dramatic), but it does help with my overall feeling of well being and stress level. I used to try...
I haven't drank much since I've been on 6mp. I think in general red wine has been harder on my UC than beer....
Too much alcohol is hard on your liver, I'd cut back if you can at least until you find out which liver enzymes are elevated and why. Or until perhaps they start lowering on their own or due to...
What is a PPI? I take 6mp and Asacol. My UC is "under control" meaning I'm not bleeding and only go a few times a day with medium urgency. But its not "in remission" - I have loose movements, mucus,...
Lived most of my life in NY and MA. Guess I had enough of northeast winters, so now I live in Austin, Texas....
I miss having vacation time! Where I work your time off is all lumped into one pool of hours - vacation, sick, and personal are mushed together. So people who are never sick (or drag themselves into...
I'm thankful for every day that I'm alive. That sounds really simple, but ever since I got out of the hospital in May I am aware of the blessing and thankful for another day of life. Its the first...
AST and ALT are two of the liver tests (it is possible to do other additional liver tests too). Lipase and Amylase are pancrease. I get copies of my bloodwork so I can look stuff up myself if...
If you're having fast track and/or significant undigested food in toilet, you may want to try chewable or liquid instead of pills. The calcium pills are hard to break down, I thought I saw them come...
I hope they do some trials with it for UC soon! Thanks for posting......
Many medications can put a strain on your liver. Are you taking any Rx besides the asacol? I get copies of my bloodwork results from my doctor so i can see which specific tests are out of normal...
It could be your 6mp which can affect liver or pancreas. My doctor had me increase my 6mp to 100mg and my AST and ALT went up above normal. I dropped down to 75mg of 6mp and my AST and ALT were lower...
Seriously, is anyone else concerned about all the undigested food that comes back out? I learned a couple flares ago not to eat any raw vegetables - for years for me salad in meant smaller pieces of...
RB, I understand its disconcerting to not have the strength you are accustomed to. Although my weight loss this year wasn't as significant as yours, I have lost a great deal of muscle mass and...
My GI doctor told me to avoid red meat, dairy, greasy and spicy foods. I have found I also need to avoid raw vegetables, apple juice, and seeds. I found the book "What to eat with IBD" helpful....
Here is another site exploring the link between bacteria and chronic disease and autoimmune diseases: http://www.bacteriality.com ...
Do you like to play card games and board games? You could start a group where women in your area can get together in the afternoon and play cards or other games. Maybe start with once a month. Rotate...
I don't know the differences between the various kinds of yoga. I'd be looking for something calming and health boosting, but not really strenuous or difficult. Not looking to build muscles or get a...
My traditional GI doctor, my holistic general physician, and a book I read (What to Eat with IBD) all said to avoid red meat when in a flare because it is hard to digest. I can't say whether it makes...
I listen to rock of varying flavors (heavy on classic rock, progressive rock, psychedelic rock), jazz, bluegrass, reggae, and a wee bit of classical. Some of my favorites have remained constants for...
FYI - some websites say that 6-mp can interfere with menstruation. Do a google search on mercaptopurine and menstrual or menstruation....
Prednisone magnified my anxiety when I was first taking it. If the pred is contributing to your anxiety, that should lessen a bit as you decrease your dosage. I'm still recovering from my worst flare...
pixydust13, Chinese food is ok for me if I avoid really greasy stuff (such as fried eggrolls), really spicy stuff, and really tough/hard veggies. So if I choose correctly on the menu I'm happy. I...
Interesting to read this thread today because just yesterday when talking about UC a friend said he doesn't know much about UC specifically, but that he has heard good results about the Marshall...
I started 6mp/mercaptopurine about 3.5 months ago. I'm not in a bad flare but I'm not in full remission either. I know initially it was high doses of prednisone that got me mostly back under control....
I'm taking 6MP and I bruise easily and I have itching and also new skin things that may be liver spots. I think this is because the 6MP is stressing my liver. My liver measurements (SGOT/AST and...
frangelico red wine dark chocolate with nuts pizza bacon raw vegetables sesame seeds onion rings corn on the cob salsa spicy thai food -- i'd want to go back to thailand again to have the best (if i...
Gigi, Have you or someone you know used their services? I'm still hoping my hair loss will slow down or stop soon so I haven't purchased anything yet. I am starting to look into hair replacement...
My tongue has had a white coating since April, maybe longer. When I was in the hospital I told them I thought it could be mild thrush and they gave me nystatin lozenges. I don't know if they helped...
Thank you again to all of you who post here! I appreciate it every day. Have a wonderful weekend wherever you are! I don't have very major plans for the weekend but I'm looking forward to having that...
My bloodwork sheet says the normal range for white count (WBC) is 4.0-11.0 and normal range for red count (RBC) is 3.80-5.10. Sounds like his red count was just a little below normal. I get blood...
For the past month or so people have commented about my rosy cheeks. I just assumed its one of the many changes in my body due to my meds. When I read this post I looked at my cheeks closely in the...
I hope the 40mg works for you. The first time I took prednisone for a bad flare, 60mg did wonders for me almost immediately. A year and a half later during my next bad flare I took 60mg again...
How much biotin do you take if you are losing lots of hair? I can't for sure pinpoint the culprit for my hair coming out, lots of possibilities, but I do want to slow it or stop it. I started taking...
My GI says not to have dairy (though never had test to see if I'm lactose intolerant) so I stopped yogurt. Now I put my VSL #3 in cold applesauce....
Sherry, when you say you get liver enzymes checked in your bloodwork, do you know if that is SGOT (AST) and SGPT (ALT), or other tests? I've been getting copies of my own bloodwork results recently...
the stuff at the bottom of posts is you signature. near the top left of your screen click on "control panel" then "edit profile" then add info to your "signature" near the bottom of your profile....
Hugs to you, hair loss seems to hit emotional nerves more than other drug side effects. I've been losing a lot lately too, and I'm hoping and praying I don't lose it all. Its starting to be...
I have the yellow liquid sometimes. My doctor says not to worry about it. But of course I worry anyway......
Austin, Texas, USA...
I suspect I may have HYPOthyroidism. My general physician said wait until I'm off prednisone a bit before I do tests and consider taking thyroid meds. I haven't talked to my GI doc about it yet....
Big Dog, 100mg 6mp for a 65 lb person sounds like a lot to me, but a doctor would know better than I would. I just went up to 100mg myself, and I weigh 120 lbs. I'm not sure if mine is brand name or...
You mention you will probably get IV steroids in the hospital. This year I was bleeding heavy and 60mg prednisone at home wasn't working. So I was hospitalized and given IV steroids (100 mg...